Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shared Equipment


samcarter

Recommended Posts

samcarter Contributor

So I never thought I was this sensitive to gluten. I knew that if i actually ate something with gluten, I would start getting the symptoms--headache, sometimes a bad stomach, most often neuropathy. I had been avoiding even stuff with wheat starch (like Pringles). Because I knew that would cause the same symptoms.

Then I went to Trader Joe's yesterday, to get some pizzas for the kids. I picked up a bag of tortilla chips--should be safe, right? And a container of spicy guacamole (which turned out to taste horrible, but that's beside the point).

A few hours after dinner, I had a horrible stomachache, the same kind of sleepiness I get when I've been glutened with a big dose of wheat, and a headache. I looked at the labels--"made on shared equipment." Now, I i had seen this, but before on Trader Joe's labels they make a point of saying that their providers take care to avoid cross-contamination. Not any more, it seems. It also seems my sensitivity is getting worse, not better. UGH.

Anybody else have trouble with trader joe's food? seems like even if they say it uses gluten free ingredients, everything is made on shared equipment. I'm going to have to go back to buying dedicated gluten free foods from dedicated facilities, and whole foods all the way, I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I completely avoid food made on the same equipment. I have reacted every single time.

ciavyn Contributor

I personally don't have issues (thus far) with foods made on shared equipment, but from what I've read, folks have different levels of sensitivity. You may need to avoid it in the future.

NorthernElf Enthusiast

For the most part I avoid it too - been zinged too many times. I used to eat Tostitos with my family when we would have the occassional nachos...but it was hit & miss and I got tired of the misses. Ugh. Now I eat Riceworks plain chips while they eat nachos.

When we were in New York last summer we went to Trader Joes and I got hit a few times. Gotta admit, I wondered what the big deal was with TJ's because before I went it was recommended to buy food there. I did much better at a small natural market that carried a lot more gluten-free food. Is it TJs that has the "gluten free" label and then has the "made in a factory that uses gluten" on it ? Those I avoid totally.

I have noticed some things lately labeled "naturally gluten free" and then have that disclaimer...it's a loophole to sound gluten-free but not be. Same with the one that goes along the lines of being made without gluten ingredients.

conniebky Collaborator

For the most part I avoid it too - been zinged too many times. I used to eat Tostitos with my family when we would have the occassional nachos...but it was hit & miss and I got tired of the misses. Ugh. Now I eat Riceworks plain chips while they eat nachos.

When we were in New York last summer we went to Trader Joes and I got hit a few times. Gotta admit, I wondered what the big deal was with TJ's because before I went it was recommended to buy food there. I did much better at a small natural market that carried a lot more gluten-free food. Is it TJs that has the "gluten free" label and then has the "made in a factory that uses gluten" on it ? Those I avoid totally.

I have noticed some things lately labeled "naturally gluten free" and then have that disclaimer...it's a loophole to sound gluten-free but not be. Same with the one that goes along the lines of being made without gluten ingredients.

Oh, terrific. man I'm having a gluteney day. I'm sitting here eating Tostitos.......

laurelfla Enthusiast

If it is a product that I eat regularly, I don't do shared equipment. However, if it is a one-time thing, or I'm at someone's house and that's all there is to eat, for example, I'll make an exception.

Sometimes I think it's good to call the company and see exactly what the situation is, how they minimize cross-contamination. However, I know some people aren't able to eat anything that's processed on shared equipment. I never have experienced a negative reaction from doing it, but then again, I've never done it on a regular basis.

Skylark Collaborator

Most of the time I tolerate shared equipment food OK but I've had an occasional glutening where that was the only sensible explanation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Oh, terrific. man I'm having a gluteney day. I'm sitting here eating Tostitos.......

Connie, I don't have a problem eating Tostitos, Lay's regular potato chips, Fritos, Cheetos, etc. (I'm talking about the plain ones as I'm sure that not all varieties have gluten free ingredients...I always check the label before buying). So maybe I'm not that sensitive. Hopefully you'll be fine, too!!! biggrin.gif

larry mac Enthusiast

I never worry about it and haven't had any problems. I only worry about gluten ingredients.

best regards, lm

GFinDC Veteran

I avoid foods made on shared equipment. It just isn't worth the risk to me. I used to eat Tostitos but when I stopped soy I cut them out. Wylde brand gluten-free pretzels are soy free. Tiny but tasty.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748

    Jennbo
    Newest Member
    Jennbo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.