Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shared Equipment


samcarter

Recommended Posts

samcarter Contributor

So I never thought I was this sensitive to gluten. I knew that if i actually ate something with gluten, I would start getting the symptoms--headache, sometimes a bad stomach, most often neuropathy. I had been avoiding even stuff with wheat starch (like Pringles). Because I knew that would cause the same symptoms.

Then I went to Trader Joe's yesterday, to get some pizzas for the kids. I picked up a bag of tortilla chips--should be safe, right? And a container of spicy guacamole (which turned out to taste horrible, but that's beside the point).

A few hours after dinner, I had a horrible stomachache, the same kind of sleepiness I get when I've been glutened with a big dose of wheat, and a headache. I looked at the labels--"made on shared equipment." Now, I i had seen this, but before on Trader Joe's labels they make a point of saying that their providers take care to avoid cross-contamination. Not any more, it seems. It also seems my sensitivity is getting worse, not better. UGH.

Anybody else have trouble with trader joe's food? seems like even if they say it uses gluten free ingredients, everything is made on shared equipment. I'm going to have to go back to buying dedicated gluten free foods from dedicated facilities, and whole foods all the way, I guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I completely avoid food made on the same equipment. I have reacted every single time.

ciavyn Contributor

I personally don't have issues (thus far) with foods made on shared equipment, but from what I've read, folks have different levels of sensitivity. You may need to avoid it in the future.

NorthernElf Enthusiast

For the most part I avoid it too - been zinged too many times. I used to eat Tostitos with my family when we would have the occassional nachos...but it was hit & miss and I got tired of the misses. Ugh. Now I eat Riceworks plain chips while they eat nachos.

When we were in New York last summer we went to Trader Joes and I got hit a few times. Gotta admit, I wondered what the big deal was with TJ's because before I went it was recommended to buy food there. I did much better at a small natural market that carried a lot more gluten-free food. Is it TJs that has the "gluten free" label and then has the "made in a factory that uses gluten" on it ? Those I avoid totally.

I have noticed some things lately labeled "naturally gluten free" and then have that disclaimer...it's a loophole to sound gluten-free but not be. Same with the one that goes along the lines of being made without gluten ingredients.

conniebky Collaborator

For the most part I avoid it too - been zinged too many times. I used to eat Tostitos with my family when we would have the occassional nachos...but it was hit & miss and I got tired of the misses. Ugh. Now I eat Riceworks plain chips while they eat nachos.

When we were in New York last summer we went to Trader Joes and I got hit a few times. Gotta admit, I wondered what the big deal was with TJ's because before I went it was recommended to buy food there. I did much better at a small natural market that carried a lot more gluten-free food. Is it TJs that has the "gluten free" label and then has the "made in a factory that uses gluten" on it ? Those I avoid totally.

I have noticed some things lately labeled "naturally gluten free" and then have that disclaimer...it's a loophole to sound gluten-free but not be. Same with the one that goes along the lines of being made without gluten ingredients.

Oh, terrific. man I'm having a gluteney day. I'm sitting here eating Tostitos.......

laurelfla Enthusiast

If it is a product that I eat regularly, I don't do shared equipment. However, if it is a one-time thing, or I'm at someone's house and that's all there is to eat, for example, I'll make an exception.

Sometimes I think it's good to call the company and see exactly what the situation is, how they minimize cross-contamination. However, I know some people aren't able to eat anything that's processed on shared equipment. I never have experienced a negative reaction from doing it, but then again, I've never done it on a regular basis.

Skylark Collaborator

Most of the time I tolerate shared equipment food OK but I've had an occasional glutening where that was the only sensible explanation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Oh, terrific. man I'm having a gluteney day. I'm sitting here eating Tostitos.......

Connie, I don't have a problem eating Tostitos, Lay's regular potato chips, Fritos, Cheetos, etc. (I'm talking about the plain ones as I'm sure that not all varieties have gluten free ingredients...I always check the label before buying). So maybe I'm not that sensitive. Hopefully you'll be fine, too!!! biggrin.gif

larry mac Enthusiast

I never worry about it and haven't had any problems. I only worry about gluten ingredients.

best regards, lm

GFinDC Veteran

I avoid foods made on shared equipment. It just isn't worth the risk to me. I used to eat Tostitos but when I stopped soy I cut them out. Wylde brand gluten-free pretzels are soy free. Tiny but tasty.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.