Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions From Me, Imagine That!


conniebky

Recommended Posts

conniebky Collaborator

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar!

Tootsie Roll Midgies--no gluten in the facility! ;)

One more question, how long did most of you all go with symptoms before you finally figured it out?

20 freakin' years :angry: Seriously.

Lisa Mentor

BUT HERE'S THE LOW DOWN:

Don't depend on lists for your information, many can be out of date.

Learn to read labels - it will be your ultimate safe guard and control in your hands. (ie. you have

no one to blame but yourself :blink: )

Call companies to verify ingredient status if in doubt.

Don't rely on internet information to keep you safe, use multiple sources. If someone said, a product made them sick, does not mean it was gluten - i.e,not all sick feeling lead to a gluten exposure.

If something made you sick, don't eat it again...or at least not for a while, when you can precisely test a potential issue.

If you have a question about a product - Google the product name and - gluten free... you would be amazed what you can find.

Learn your system, listen to your body.

AND most of all, a mistake won't kill you!!!

....The End :D

Open Original Shared Link

Here is last years Candy List - they put this out every year just prior to Holloween.

pues Rookie

jelly bellies are gluten free and delicious

2 years with symptoms

WheatChef Apprentice

Cut carrots, now gluten free!

concernedmamma Explorer

I believe Mike and Ike's say gluten free right on the box (my son is only 2 months gluten free, but we have had birthday parties and goody bags to figure out! ) :unsure:

RoseTapper Newbie

There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list:

Open Original Shared Link

You'll find that many candies are gluten free--I have no problem finding sweets.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kpryan Apprentice

SKITTLES!!! My fave and so yummy!! Only the fruit and cinammon Mike and Ike's are gluten-free...not the licorice ones....

I've always had gastro symptoms my whole life (34 years) but they really intensified after I had my first daughter at 30....been gluten-free for 2 years now...and dairy free for 6 months.

luvs2eat Collaborator

Wheat in Twizzlers cracks me up! What's the purpose??

I only had symptoms for several months before finding out it was celiac... I was lucky, I guess. I could have used a little of that "unexplained weight loss" tho... :blink:

sa1937 Community Regular

Wheat in Twizzlers cracks me up! What's the purpose??

Lots of licorice contains wheat. Lots of ingredients in a lot of products make no sense (like wheat in chicken and beef broth, for example). That's why we have to major in "Label Reading 101" ph34r.gif

sa1937 Community Regular

There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list:

Open Original Shared Link

You'll find that many candies are gluten free--I have no problem finding sweets.

This list is much more up-to-date: Open Original Shared Link

The Glutenator Contributor

I miss licorice all sorts! But sweet tarts and most of the maynards candies (Cherry Blasters, Sour Patch Kids, Sour Patch Keys, Gummie Worms, Gummie Bears, Fuzzy Peach, Swedish Berries, Swedish Fish, Wild Strawberries, Wine Gums, Jujubes, Gum Drops) are examples of some good gluten free candy options.

SwimmingUpstream Newbie

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

Unfortunately, there is no shortage of sweets that are gluten free. I eat Snickers, 3 Muskateers, Reeses PB Cups, Starburst, Skittles, M&M's, Smarties, Tootsie Rolls. I also gained 50 pounds in one year after being diagnosed. I've lost 10 of those now, 40 more to go. My advice is to stay away from the sweets because your body is in starvation mode and they will turn directly to fat. Also, the sugar is so addictive, it's hard to stop once you get going. I found that the sick to my stomach feeling I used to get after eating anything kept me from eating too much. It was actually the Celiacs and now I feel much better, I also never get that feeling that keeps me from continuing to eat. I wish someone would have warned me at the beginning how easy it would be to gain weight.

I went for four weeks with diarhea till I went to the doctor. I thoght I had a 'bug' that just wouldn't go away. I had already been diagnosed with type 2 diabetes and they were telling me I needed to gain weight. That is when they found the Celiacs. Well I guess they're not telling me to gain weight anymore.

Cinderella10 Newbie

I have an undying passion for Hot Tamales. :) Yum.

Korwyn Explorer

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

M&M are gluten-free. And it was about 20 years for me too.

  • 5 months later...
Jonathon's dad Newbie

This is my first post, I just want to say thank you to everyone here!

You are all helping each other and me. I feel much better about being able to trust the labeling on some of the Halloween candy my son was so excited to get.

Also hearing how many of you were not diagnosed quickly, I am happy my son was diagnosed so quickly (at 3 years old)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,221
    • Most Online (within 30 mins)
      7,748

    Jeniffer
    Newest Member
    Jeniffer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.