Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Happy To Be Me!


jackay

Recommended Posts

jackay Enthusiast

Today is my 57th birthday. It is the first birthday I am able to enjoy in five years. The past previous years I prayed for healing and if that wasn't possible death.

If any of you remember, when I first joined this forum back in November of last year, I was pretty negative. First of all, I was completely miserable physically and mentally. Secondly, I didn't think I could ever handle the cross contamination part of this diet. The eating part was quite easy as I have a lot of self disciple (most of the time). I had been on a four day rotation diet for over a year and had also eliminated a lot of foods during that period.

After getting the cc issue taken care of and being obsessive-compulsive about cleanliness and eating, my anxiety and depression went away pretty fast. I still struggled with headaches, insomnia, burning muscles and lower back pain. I later went on an elimination diet and started a candida cleanse. My sleep returned and the headaches went away. The muscles pain is better some days than others and the lower back pain is quite a bit better, even without going to the chiropractor.

I can now say I am happy! I got my life back. It is not perfect by any means. Candida is still an issue and may always be. Both my husband and I are unemployed. Me, because of my health, and him because of the economy. His unemployment will run out in a few months and he will be 10 months away from drawing social security. Our central air may need to be replaced, car is 14 years old and continually needing repairs and the deer are eating way too much in our garden(not to mention my flowers). The bad list could go on an on. A year ago, all this things would have added to my discomfort. Now, I am able to go with the flow of things.

Hopefully, as my health improves, I will be able to find at least a part time job. Also hoping hubby will find one, too. I do think that fact that I have been unemployed for about five years because of my health, I am going to have a hard time finding a job. Hubby hasn't been hired. He has excellent qualifications and recommendations but feels his age is the obstacle. However, if neither of us find a job, I know we will make it. He has a small pension, we can live even cheaper if we have to, we have a big garden, we can keep the house warmer in summer and cooler in winter, etc. We will make it. I am a survivor!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

A very Happy Birthday to You!!! You sound like you've really triumphed over your challenges. Thanks for being an inspiration to us all.

Ahorsesoul Enthusiast

Wishing you a very Happy Gluten Free Birthday that makes many happy memories!

RoseTapper Newbie

As they say, "When you have your health...."

Glad to hear that you're feeling better even though the economic outlook appears poor. If you have a computer, you might consider starting an Internet business, which is easier to do than one might think. I can recommend the book "Internet Riches" by Scott Fox. After I read it, I had more ideas than I knew what to do with....and am planning to start an Internet-based business soon. I could do it faster if I weren't working, so this may be something that might work for you while you both continue to look for work. Many businesses cost under $50 to start up on the Internet. Good luck to you both...and I'm so glad that you're feeling better!

sandsurfgirl Collaborator

Happy birthday and happy gluten free healing to you!

chasbari Apprentice

Happy Birthday to you! Strength for the journey friend. So much of your journey sounds so familiar and your determination to survive is inspiring. You gave us all a gift by sharing today. Thanks!

Wolicki Enthusiast

Happy Happy Happy Birthday Jackay! I am so glad for you. We all know what a blessing it is when someone says, "Well, you have your health!" I am so proud of you. You have come a long way!

Janie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.