Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Coffee The Problem


Wp1234

Recommended Posts

Wp1234 Newbie

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



motif Contributor

I

looking4help Apprentice

I agree. 10 cups is the problem. (Unless you have an allergy to coffee and that's a whole different discussion.)

What do you use to sweeten your coffee? I found that milk was my issue. I have cut out the milk in everything until I heal and then I will attempt it again. Your intestines may be so damaged it can't handle the milk.

Also, going gluten free doesn't heal you instantly. It took a long time to damage your insides and it can take a while to heal them as well. Be prepared for the ups and downs of healing. I am only a few months into my gluten free and still have what you are calling relapses.

You are in the right place though for advice and just plain ole support. This board is full of caring people!

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

AlysounRI Contributor

Hi WP:

That is a lot of coffee!!

Even though the coffee is decaf, it tends to be very acidic and it can irritate your stomach.

I had to give up any kind of coffee. It does awful thing to my stomach and digestive system.

I drink decaf indian spice tea now and never have a problem.

Do you drink decaf tea, and if you do does it bother you as well??

lucia Enthusiast

Yeah, that's a lot of coffee. The acidity in coffee can cause acid reflux which I've heard is very painful.

An alternative - if you're not ready to give up caffeine entirely - is green tea. It has a quarter of the caffeine of coffee, it's not acid, and it's got a lot of antioxidants. Even so, though, 10 cups a day of green tea would still be a lot.

Maybe adopting a water habit would be a good idea. Are you getting 6-8 cups of water a day?

K8ling Enthusiast

I drank coffee like a madwoman after my son was born and...well...it was causing a lot of problems I didn't even connect. I suggest switching to tea (I drink Earl Gray in the morning, green the rest of the day) and at least seeing if it helps.

T.H. Community Regular

Question on how you make your coffee/tea.

Do you use tea bags or those coffee equivalent ones, where they are in sealed pouches? Some of those can be sealed with gluten and could be glutening you.

Have you double checked your coffee brand for gluten? I know some brands have gluten in them, like Teeccino brand has barley in it, if I remember right.

Same question with the tea - we just zapped ourselves the other day because a chamomile tea had 'oatstraw,' and that seemed to have some gluten contamination issue.

I have no idea about coffee filters, but I wonder if it's possible that coffee paper filters might have the same issue as some tea bags and some may be sealed with gluten? I've never heard of this being an issue, but it might be worth a little research.

Also, I know you are on a gluten free diet, but I didn't know how much research you've been able to do yet on non-food sources of gluten? Chapstick and lipstick is a big gluten source, whether on your lips or on someone whom you kiss. Or if your shampoo has gluten and you get any in your mouth when you rinse it from your hair, stuff like that.

All that said - when I went gluten free, I suddenly started reacting to other foods that I had never noticed a reaction to, and one of them WAS coffee, so that could definitely be an issue. :)

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TSC1 Newbie

My advice as a recently diagnosed person is that you were using coffee even decaf to a certain degree for energy and to rehydrate. It is now no longer needed and you simply are having too much for a healthy person who is digesting and feeling a lot more energy and health. Unless the coffe is sharing the same euiopment to be processed as wheat or another gltuen product (yes, even many designer mushrooms are grown in soil that has wood chip and wheat bran), there is no reason coffee that is not usually cross-contaminated to be a problem.

I have one or two cups in the morning and then drink water or ice tea, etc.

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I

TSC1 Newbie

Be careful, sweetners especially in large amounts like mannitol, sorbitol, etc. give me lots of intestinal problems and I steer clear of them even in small amounts.

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

Looking for answers Contributor

One more thought about coffee, especially decaf. Unless it decaffienated using the swiss water process, decaf coffee contains a load of chemicals and pesticides. Since you have an autoimmune disease and are in the process of healing, I too recommend switching over to tea. Good quality green tea is not bitter and doesn't give you the ups and downs of coffee. It's also an amazing source of antioxidants and vitamins, and will lower your body's overall inflamation. I use the premium green tea from Teavana. It's pricey, but each batch of loose tea can be used up to three times, so it lasts a long time...and it's so pure that I don't need to add anything to it. Good tea is not bitter if you don't over steep it!!! For a more affordable tea, Costco sells bagged green tea that is manufactured in Japan from a quality distributor who uses high grade leaves. I know this because my best friend is from Japan and her family validated the maker for me.

For anyone reading this who drinks green tea, if your "green" tea looks more yellow than green it means it's oxidated - switch to a better quality brand. Both teas I recommend are the color of grass in the cup.

SGWhiskers Collaborator

Congrats on going gluten free and figuring out how to become healthy again. I'm all for the coffee theory, but I would like to add that as a newbie to the gluten-free world, it is also likely that you are inadvertently getting some CC somewhere. For me it was the BBQ grill, the vegetable steamer, and pineapple juice. Think about every kitchen item that touches your food. Unless you are better at itching, sweating, and showering than me, check every product that touches your body, makeup, fancy soaps, hair products. While you are at it, cut that coffee down to 2 in the morning and switch to tea. Make sure you are also eliminating or going very light on dairy in the begining of a gluten-free diet. Almost as a rule, dairy is really rough on celiac intestines until they heal.

Best wishes on a quick recovery.

  • 1 year later...
EPrasn Newbie

I'm new to the group and I was so impressed with all of the information, I decided to join. It all started with me around 3/17, I just didn't feel good, and I had this bad taste in my mouth and it was making me sick. I went to my primary doctor and she took 6 vials of blood, it all came back normal (thank God), I even had an app't with my digestive Health specialist and he suggested that I eat parsley 3x's a day to get rid of the taste in my mouth. I really had to think about the whole situration, and it seemed like I was getting sick in the morning and especially in the afternoon, after I had a cup of coffee. So I just started drinking Soy Milk and you know what, it wasn't too bad. I do feel better but not 100%, now I'm wondering if it is the coffee????? I know one thing, I don't ever want to feel this way again. I look forward to contine to read your post and thank you for all of your valuable information.

Skylark Collaborator

I'm not sure you noticed, but this is a two-year old thread. Most of the people who answered are not on the board any longer.

If you suspect you are reacting to something, eliminate it and see how you feel. :)

By the way, I would not feel well having soymilk in my coffee. A lot of people react to soy. I'd suggest just cutting out the coffee entirely and have some black tea.

MikeOhio Rookie

Some people are sensitive to coffee. I get diarrhea 8-24 hours after drinking coffee. I used to drink it in very small amounts if I was constipated. I still was a little more un-constipated than I wanted to be.

woodnewt Rookie

There could be some sort of cross-contamination in your diet that you're not aware of, so you might want to go through all of your food items and double check. But otherwise, like others here have said, 10 cups of decaf coffee is a lot! If your gut's unwell, that is definitely going to be an agitant, especially if you're adding cream and sugar. Coffee was one of the many, many foods I had to totally stop while I was recovering. Just couldn't tolerate it or a lot of other things that are even slightly harsh to the gut. Now I drink 2-4 cups a day, instant, with nothing added (no cream or sugar) with absolutely no problems.

tuxedocat Apprentice

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

Jestgar Rising Star

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

I have read about this, but never tried it. Thanks for the reminder, I may try it this summer.

deb445 Rookie

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

kareng Grand Master

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

That's an odd ingredient for coffee. But it's gluten free.

lovegrov Collaborator

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

If you're worried about gluten in tha,t don't be.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

    4. - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.