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Celiac And Anxiety?


S<3

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S<3 Rookie

Can Celiac disease cause anxiety? I've been trying to figure out if they trigger each other, But i'm still not sure. Any advice would be extremly helpful!! Thanks (:


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YoloGx Rookie

Can Celiac disease cause anxiety? I've been trying to figure out if they trigger each other, But i'm still not sure. Any advice would be extremly helpful!! Thanks (:

Absolutely! Besides speaking from personal experience (its one of my number one difficulties with gluten, as well as migraines etc.), it has been shown by various studies to be a very common complaint for those who have celiac or severe gluten intolerance--this and a whole bunch of other neurological disorders that often create psychological as well as nervous system problems. Lactose and Casein can also be contributing factors. Theoretically a very high percentage of those with autism, schizophrenia and ADD have severe gluten intolerance. For myself it also contributed to a racing heart.

Bea

Skylark Collaborator

I get anxious too when I'm glutened. Also a lot of celiacs are vitamin B12 deficient, which causes depression and anxiety.

TaniaR Newbie

Celiac disease runs in my family, as I also have it and it definitely can trigger anxiety. I overly sensitive to gluten but when i ingest it i get HORRIBLE anxiety. It can also affect your mood and many other symptoms besides just the regular gi ones. So i know how you feel the anxiety factor but the only way to keep it under control is being gluten-free unfortunately. However, I go to freeda.com to get my vitamins and they have a glycine powder that helps with anxiety and I have found that to help somewhat.

rdunbar Explorer

gluten actually reduces the blood flow to the brain, so it's like your engine isn't firing on all cylinders. brain fog, anxiety, 'depression', ect... all make sense when you consider this.

conniebky Collaborator

I freak out like a banchee in a hurricane when I eat gluten.

Skylark Collaborator

gluten actually reduces the blood flow to the brain, so it's like your engine isn't firing on all cylinders. brain fog, anxiety, 'depression', ect... all make sense when you consider this.

Do you have a reference for that one? Kind of curious as I haven't seen anything like that in the literature I've been reading.


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sandsurfgirl Collaborator

Anxiety became one of my worst symptoms in the year before diagnosis. I had anxiety attacks all day long for no reason. After only 2 days gluten free they went away after suffering for a year! Now if I get glutened anxiety is my first symptom.

I could care less what the literature says. The lit is wrong so much of the time. Many of us on here have anxiety due to celiac.

jerseyangel Proficient

I suffered greatly with anxiety before going gluten-free. I dealt with it for years--panic attacks, too. I have been on the diet for over 5 years, and still get anxious when glutened. It's one of the first symptoms--and the last to go.

Skylark Collaborator

I could care less what the literature says. The lit is wrong so much of the time. Many of us on here have anxiety due to celiac.

So where do you go for accurate information? The National Enquirer? :lol: The lit is not wrong much of the time. It does tend to be over-interpreted and/or mis-interpreted by non-scientists. Small or poorly designed studies can get an awful lot of press. The bigger problem is that areas of inquiry are too limited by funding issues that arise from the realities of working within a capitalist framework.

I was just curious about the "reduced blood flow" bit. Sounds interesting.

Oh - and I totally have both anxiety and depression due to celiac. I'm not questioning that at all!

pbsml Newbie

I was getting some intense anxiety, especially when I was experiencing any pains associated with my intolerance. My GP gave me xanax... well, actually, the cheap imitation version of it, which unluckily for me, contained GLUTEN. Awesome. Needless to say, he's no longer my GP.

Fey Rookie

My anxiety has decreased about 80% since going gluten-free. Two and a half years ago, I'd quit my job, couldn't drive due to blacking out from anxiety in my car, had problems going to public places like grocery stores, and I was pretty much agoraphobic and depressed.

Took a few months (last year) of trying different medications to get me to the point where I could function in society again.

I have all but done away with my anti-depressants as well. Before if I skipped a dose, it was noticeable, now I got 2-3 days before realizing I've forgotten. Next appointment with my GP, I'll be discussing getting off them altogether :)

Marz Enthusiast

Oh don't get me started on celiac + anxiety :P

Started having panic attacks out of the blue at the beginning of the year. The trigger was bad food poisoning, but I've been there before and never have I had *panic attacks* over feeling sick! Not a single attack since I went gluten-free, and it's definately a sign I've been accidently glutened when I start getting anxious again for no reason - usually I hunt through all my food for the past few days and find the source. <_<

S<3 Rookie

Thanks so much for your help! I was diagnosed with severe anxiety that caused my life to completely change, but since I was diagnosed with Celiac and have been gluten free I haven't had one episode. I'm so glad to know the anxiety can be controlled!

  • 1 year later...
Albion Rookie

gluten actually reduces the blood flow to the brain, so it's like your engine isn't firing on all cylinders. brain fog, anxiety, 'depression', ect... all make sense when you consider this.

This also makes sense of the terrible anxiety that comes with detox!

glutout Rookie

I dealt with severe anxiety and panic attacks for 8 years. Lost my job, ability to drive, very bad dizziness, etc., I had all types of symptoms doctors could not explain with just "anxiety disorder" or any other condition. I was finally diagnosed a year and a half ago with Celiac Disease. Now that my body is healing,my mind is healing too. I am not 100%, yet, but getting there. Before no matter how much I tried, no matter what techniques I tried I couldn't shake the anxiety. I woke up everyday with it. Everyone was telling me it's "in your head", and I know some of it was--but I always felt something was physically wrong. It has been slow coming, but it is getting better. I believe after dealing with it for so long I now have to get over what the anxiety has done to my mind!!! Stick with it-it took me well over a year to notice I was feeling better--don't give up! :)

pondy Contributor

I was getting some intense anxiety, especially when I was experiencing any pains associated with my intolerance. My GP gave me xanax... well, actually, the cheap imitation version of it, which unluckily for me, contained GLUTEN. Awesome. Needless to say, he's no longer my GP.

May I ask what the "cheap imitation version" of Xanax was?

I'm on Alprazolam - generic form of Xanax.

Please tell me this doesn't contain gluten!!! How do I find out?

Reba32 Rookie

your pharmacist should be able to look it up to find out what the ingredients are. I ALWAYS ask them to look up stuff. It bugs them, and makes them grumble, but it's their job and that's what they're there for.

(howzat for an awesome representation of their they're and there! :D )

I used to have daily anxiety attacks before going gluten-free, now it's a very rare occurrence.

jerseyangel Proficient

May I ask what the "cheap imitation version" of Xanax was?

I'm on Alprazolam - generic form of Xanax.

Please tell me this doesn't contain gluten!!! How do I find out?

If it's the one by Sandoz, it's definitely gluten-free.

I always call the manufacturer myself--the name is either on the bottle, or the pharmacist can tell you who it is.

  • 3 months later...
RoseRed Newbie

This also makes sense of the terrible anxiety that comes with detox!

Thank you for posting this!! I have been going 'round the bend trying to figure out why coming off gluten is making me more anxious than the White Rabbit. You have made me feel better, because I felt a bit like a freak. Do you know of any skin issues that can appear during detox other than the celiac rash?

coeliacrecipes Newbie

As a patient with celiac, I too have suffered with anxiety. I find that the capsule form of the herbal remedy Lemon Balm greatly relieves my anxiety, muscle aches, neck stiffness and headaches. I take 2 capsules in the morning, 2 in the afternoon. I tried one each time and that doesn't quite do it. These capsules have 400 mg of the herb each. A doctor tried to put me on an antidepressant and that was hit or miss in terms of its effectiveness (most times miss) toward alleviating my headaches, the main symptom at the time. I still had to take a great deal of Excedrin to just be able to cope. I find that when I miss my dose, I pay for it in muscle and headaches plus neck stiffness. Going to the chiropractor (a good one) about once a month helps plus doing neck stretches on both sides relieves the tension. Staying away from caffeine (esp. coffee for me) is vital too. Oh, and don't forget exercise, a good balanced diet, fiber and plenty of water to flush out toxins. Enjoy your road to health, coeliacrecipes.

mommyto2kids Collaborator

My experience is the same as Fey. For me what set off anxiety this week was having a margarita, just one. The next day I didn't eat breakfast and almost passed out driving. Not sure about that, but am making sure to eat something and am going to stay away from the margaritas. Nothing is worth the price of anxiety. It is worse than the bowel issues. <_<

RoseRed Newbie

Thank You, Fey and Mommy. You're giving me hope. I haven't driven in years, and needless to say, it makes me terribly embarrassed and makes life much more difficult. I look back and can't believe that was me zooming down the freeways. For me, the anxiety started a few months postpartum, I'm not sure why, or how it ties in. In fact, postpartum is a whole different world in terms of levels of problems. I have been very ill since my incredible daughters birth 6 years ago. I guess the reason I'm mentioning it in this thread is because it started a lot of mental issues that weren't there, or probably were dormant before.

rustycat Rookie

Rose, you may find that personality you vaguely remember from pre-celiac days.

In my case, my gluten free personality is much happier, sociable and optimistic. I had forgotten she existed. :(

Avalon451 Apprentice

I'm really happy to see all these personal examples. My 3 daughters and I are getting ready to go gluten-free this weekend, after my oldest's endoscopy. We have all had positive bloodwork for celiac. My middle daughter, 13, has had anxiety disorder for 2 years. It was to the point where she couldn't stay in school without a family member nearby. She has gotten much better at managing it, but she's getting ready to move from a tiny private Christian school to a large public high school, and that has her completely spooked. While she rarely has a full-on (curled into fetal position, shaking and crying) panic attack any more, she is making herself sick worrying about panicking in a big school with multiple classrooms. I'm really hoping that going gluten-free will alleviate the anxiety, and help her realize that she is a strong, smart, wonderful girl who can do anything she puts her mind to!

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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