Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About The Capsule Endoscopy.


Simona19

Recommended Posts

Simona19 Collaborator

Hi!

I would like to ask you, if there is any difference between the regular upper endoscopy and capsule endoscopy?

I talked to my son today about the gluten free diet. He is willing to go gluten free with one condition: He wants to be vegetarian too. I'm very happy. Today my physician called and told me that he needs to have the endoscopy to be diagnose. As you know, he is afraid to go and have it. I had one idea. Can he have the capsule endoscopy instead? It would be valid to diagnose him?

He is also waiting for the genetic test for celiac disease-DQ2, DQ8 (one more week).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

The biopsy may be the gold standard for diagnosis but more doctors are accepting the positive results of the blood work and resolution of symptoms on the diet. If your son doesn't want the endo his doctor can't force him to have one and if he will be compliant with the diet without one then the choice is his to make.

Do make sure he understands what he need to do on a veg diet. There are food combos he need to eat to make sure he is getting enough complete protein.

I sure do hope he has the 'usual' celiac associated genes or that the doctor is checking for more than the two most common. The gene tests are not diagnostic so do go off the positive blood tests and don't let him get 'talked out of' the diet if the gene tests are negative for DQ2 or DQ8.

Glad to hear things are going better. We do have a section for young folks and there are many more of the under 25 crowd than when I first found the board. I am so glad people are starting to get diagnosed sooner. It will save them so many years of pain.

Simona19 Collaborator

The biopsy may be the gold standard for diagnosis but more doctors are accepting the positive results of the blood work and resolution of symptoms on the diet. If your son doesn't want the endo his doctor can't force him to have one and if he will be compliant with the diet without one then the choice is his to make.

Do make sure he understands what he need to do on a veg diet. There are food combos he need to eat to make sure he is getting enough complete protein.

I sure do hope he has the 'usual' celiac associated genes or that the doctor is checking for more than the two most common. The gene tests are not diagnostic so do go off the positive blood tests and don't let him get 'talked out of' the diet if the gene tests are negative for DQ2 or DQ8.

Glad to hear things are going better. We do have a section for young folks and there are many more of the under 25 crowd than when I first found the board. I am so glad people are starting to get diagnosed sooner. It will save them so many years of pain.

Hi! Thank you for the replies.

Can you tell me what are the food combos that my son need to eat? Right know he is eating mostly meat substitutes from Morning star and Bocca(they have wheat). He started with Amy's food which was gluten free, and he felt very good. I think that is the main reason why he don't want to eat any meat any more.

I'm overwelmed with my family dietary needs: Son- gluten free and vegetarian, me- gluten, casein and fat free diet plus food allergies, my husband and mother no salt and now fat free (high cholesterol and high blood pressure). I would some how manage all this, but on top everybody is having food they refuse to eat. It is mess. I told them that I refuse to cook three dinners every day. They should eat what I give them to eat.

ravenwoodglass Mentor

Hi! Thank you for the replies.

Can you tell me what are the food combos that my son need to eat? Right know he is eating mostly meat substitutes from Morning star and Bocca(they have wheat). He started with Amy's food which was gluten free, and he felt very good. I think that is the main reason why he don't want to eat any meat any more.

I'm overwelmed with my family dietary needs: Son- gluten free and vegetarian, me- gluten, casein and fat free diet plus food allergies, my husband and mother no salt and now fat free (high cholesterol and high blood pressure). I would some how manage all this, but on top everybody is having food they refuse to eat. It is mess. I told them that I refuse to cook three dinners every day. They should eat what I give them to eat.

In general he needs to combine rice and beans to form a complete protein. If he does wish to do the veg along with gluten-free you may want to have a visit with a dietian or nutritionist. Being a vegetarian can be complicated plus he shouldn't overload on soy as that may set him up for soy protein intolerance. Not a for sure but that is what happened with me within a year or so gluten free. We have had some veggie folks who have had to go back to eating meat for nutritions sake. If he will still consume fish and eggs that may help to insure he is getting the protein he needs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,248
    • Most Online (within 30 mins)
      7,748

    Tc clark
    Newest Member
    Tc clark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.