Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Nerve Damage In My Hand ?


Dellers

Recommended Posts

Dellers Apprentice

I have read that being celiac can give you nerve damage. My left hand starts shaking and its getting worse by the day. Started off the just the thumb doing an odd twitch now its the entire hand. Does anyone here have similar ? I noticed it more when texting on the phone ( being a lefty )I have not said this to my doctor as he does not listen and I have chosen to ignore it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgirl Contributor

I have read that being celiac can give you nerve damage. My left hand starts shaking and its getting worse by the day. Started off the just the thumb doing an odd twitch now its the entire hand. Does anyone here have similar ? I notice it more when texting on the phone ( being a lefty )I have not said this to my doctor as he does not listen and I have chosen to ignore it.

Good morning, Dellers.

Interested in your post because I have twitching and muscle atrophy in my left hand. Do you have any muscle wasting or weakness? Are you able to touch the tips of your fingers to your thumb?

Dellers Apprentice

Good morning, Dellers.

Interested in your post because I have twitching and muscle atrophy in my left hand. Do you have any muscle wasting or weakness? Are you able to touch the tips of your fingers to your thumb?

Good morning. It 19.22 here and pitch black outside. I am able to move it but it feels very stiff. My thumb is the most trouble some. I dont know about the muscle wasting however I assume I dont have that. I have no injury to my and or arm that could logically explain why this is going on. I think it could be gluten related as my hip is also giving me trouble.I have always had the hip trouble but doing the challenge it has returned.

cassP Contributor

Good morning. It 19.22 here and pitch black outside. I am able to move it but it feels very stiff. My thumb is the most trouble some. I dont know about the muscle wasting however I assume I dont have that. I have no injury to my and or arm that could logically explain why this is going on. I think it could be gluten related as my hip is also giving me trouble.I have always had the hip trouble but doing the challenge it has returned.

im a massage therapist (at the moment)-> and i KNOW that hand and wrist issues can definitely be caused by repetive movement and injury.

but i ALSO know that gluten can cause nerve damage & pain in the joints.

saw this post recently:

Open Original Shared Link

it could be that or both. also wheat germ agglutin can cause pain in the joints and inflammation.

did u say you're on a gluten challenge??? i feel for you- hope it goes fast, and you can test, and get back on a gluten free diet. :)

Dellers Apprentice

im a massage therapist (at the moment)-> and i KNOW that hand and wrist issues can definitely be caused by repetive movement and injury.

but i ALSO know that gluten can cause nerve damage & pain in the joints.

saw this post recently:

Open Original Shared Link

it could be that or both. also wheat germ agglutin can cause pain in the joints and inflammation.

did u say you're on a gluten challenge??? i feel for you- hope it goes fast, and you can test, and get back on a gluten free diet. :)

Thank you for the link. I always text with my left hand. I am a text person not a talker . I am just off the challenge now and still feel bad. Since I had two chocolates two days ago that I didn't realise had gluten in them .Pains have stopped but belly is growling and huge !

MelindaLee Contributor

Thank you for the link. I always text with my left hand. I am a text person not a talker . I am just off the challenge now and still feel bad. Since I had two chocolates two days ago that I didn't realise had gluten in them .Pains have stopped but belly is growling and huge !

It took over a week for my joint pain and neurological issues to clear up after having gluten. (and 3 weeks when I went gluten free) Hopefully everything will clear up for you soon!

GlutenFreeManna Rising Star

My hands shake when I get gluten accidentally. It was one of my symptoms for a long time prior to going gluten free. I saw a couple of neurologists and had a whole battery of tests and they never turned up the cause. It went away only after I went gluten free. So I do believe it is from the gluten. If you just started the gluten free diet give it a few months. The neurological symptoms take longer to completely disappear, especially if you get accidental or trace gluten. Be very strict about avoiding CC, eat lots of whole foods and very few processed foods and get some good gluten free vitamins to help your body heal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf-soph Apprentice

While it is definietly possible that it is gluten related, i thougth I would let you know the other things that have caused hand problems for me in case they are relevant.

I had an RSI injury, mostly in the left hand, from a lot of repetitive typing. Chiropractic and massage helped, but I also had to adjust the way I was typing, and luckily it was just before christmas so I had several weeks off work to rest. It would be worth a go to force youself to minimise texting, and text with your right hand for a while, and see if it helps. If it is RSI you want to know now and stop the damage to give it the best chance of healing.

I have also had shaking and clumsiness from problems with the vertebra in my neck, and from poor alignment in my shoulder that was trapping the nerve. This was also helped by chiropractic.

Finally, I also had mild clumsiness from B12 deficiency. This was worst in my feet, where I had a tremor, but also felt in my hands. B12 injections fixed that up pretty quickly.

Even if it is the gluten, hopefully you've got the answers you need from the gluten challenge and can focus on healing up now!

  • 1 month later...
RestorationFarm Newbie

You can detect nerve damage in an MRI, see this forum:

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.