Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Symptoms?


SuperMolly

Recommended Posts

SuperMolly Apprentice

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

my symptoms TOTALLY vary with gluten!! years (and even just months ago)- it seemed to just be cumulative intestinal pain and constipation & strange bms, plus random skin issues, and anxiety, and oversleeping, and decreased foot padding, etc, etc, etc, but the last few times ive had tachycardia, nausea, and overheating

and yes- many of us, and maybe u too, have additional intolerances. sometimes dairy gives me intestinal issues and some "D". and too much Fructose and Fructans gives me PAINFUL gas and bloating.

ya, its a learning experience for sure. you'll find a lot of info on here, good luck :)

twe0708 Community Regular

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

I usually know within about 45 minutes to an hour. It's usually to the bathroom within 45 minutes and then I am good or my stomach blows up with a sharp pain on my right side. So far after about a half hour of the stomach bloating I am fine - except for what I am not feeling with what it's doing to my insides, I did make the wrong choice of eating a donut about 4 months ago at work and within 45 minutes I was very sick and dry heaving at work. Had to leave and on my way home I knew I would toss so I had a bag ready just in case and of course had to use it. Tossed again when I got home and was in bed for about the next 3 hours. I will never do that again! Have found that if I was to eat full on wheat like bread, pizza and of course a donut you have a really bad reaction, but if it's just a crumb then it's just the bloating or a quick trip to the bathroom and it's over.

  • 4 weeks later...
revenant Enthusiast

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

I have a few symptoms that are always present after gluten/lactose consumption, and some that vary.

My "always" immediate symptoms: Heavy brain fog, vision distortion (things get very bright and dreamlike, distance distortion, things go slower or things start in one place and end up in the other without me seeing how.), sound distortion, crying/depression, self harm, anxiety, aggression and hatred, ataxia and balance problems, body odour, thrush, very easily distracted and very easily absorbed into things (I could stare at a white wall and be entertained for hours), joint pains, sweating, increased heart rate, feeling of nerve damage in my left knee my lips, neck, stomach, and legs bloat up and my eyes cannot focus>constant eye squinting, and fatigue, diarrhea.

There are odd symptoms that come and go, as you said. I am not sure if this is from other food intolerances. I had one panic attack, and it was from something I ate. I also had a few seizures. My amenorrhea went on and off but that could have been related to the amount I was taking in, or how long I have been without it and the severity of the reaction. I have discovered that my head tightness was from gluten and lactose, but the head-aches and migraines, also my very rare case of vomiting after food, is caused by eggs. I have also discovered that my mouth sores and itchiness in and around my mouth was caused by tomatoes. There was some bloating caused by nightshades.

ElseB Contributor

For me, it actually takes a few days for symptoms to kick in. I actually wish I was one of those people that immediately started vomiting so that I'd know right away! If its just a small dose (e.g. from cross contamination) I have a stomach ache anytime I eat, and that lasts for about a week. If its a bigger dose (i.e. I eat something with gluten as an ingredient - never intentional) its a stomach ache, constant gut gurgling right below my belly button (really weird I know!), and constipation. This all lasts at least a month. And before I got diagnosed, no gastro symptoms. Only low iron and irregular menstruation.

I"m also intolerant to raw apples (but okay if cooked). Precisely 12 hours after eating a raw apple I get bloating and gas.

  • 1 month later...
lsmly9 Newbie

It's funny how my symptoms vary from those with a gluten intolerance. I have a wheat allergy, I have only been free of wheat (and gluten due to the two going hand-in-hand) for a few days now, and after eliminating it from my diet, felt drastically better almost (within two days) immediately. Last night while at work I unknowingly ingested wheat - found out after the fact. As I was eating, my lips began to burn and my tongue began to hurt (weird huh?)45 minutes later during my drive home, I started experiencing sharp shooting pains in my stomach, my muscles began to stiffen up and ache, I started to ITCH LIKE CRAZY, and worst of all, my throat and face began to swell. All of these symptoms I have encountered in moderation before being diagnosed, though nothing like this, not all of them at once and never so intense. By the time I arrived home I was in a fog like state with a major migraine, I literally ran inside and took some benadryl. My allergy-like symptoms dissipated after 20 minutes or so, but the stomach cramps remained. I never ever want to experience such a reaction again, though it's bound to happen. I made sure to stick a few benadryl tablets in my purse & I will definitely be bringing my own meals to work from now on.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,799
    • Most Online (within 30 mins)
      7,748

    Liss Drisk
    Newest Member
    Liss Drisk
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.