Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nickel Allergy And Celiac Disease


MollyBeth

Recommended Posts

MollyBeth Contributor

Hello All!

It's been a while since I've been on here. Life has been going well and two years in I'm finally feeling like this gluten free stuff is getting almost easy!

Unfortunately, all good things must come to an end. I've been struggling with allergic reactions lately and testing confirms that I am allergic to nickel which is found in a surprising amount of foods. The foods that I've used to replace the glutenous foods I used to love. Potatoes, beans, chocolate... these are just a few of the items on the list. I'm also supposed to avoid hot water from the tap? I don't know if that means I need to start taking cold showers or what? So anyway, I'm just two days into this and am obviously still doing research but I thought I'd drop by here and see if anyone else has this strange combination of Celiac disease and a nickel allergy. Any tips or advice would be greatly appreciated. I hope this message finds all of you in high spirits and good health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Sorry you have this additional challenge.:( Those of us with gluten issues seem to have sensitive immune systems! Don't know about nickel but I have a recent latex allergy dx and in latex allergy forum some have nickel allergy as well. Not familiar with the nature of the connection. I recently had a dx of chocolate allergy too and it's one of the very few indulgences I had left, the only "sweet". In our family, we tend to become allergic to the things that we eat often. Sigh...

snifter Apprentice

Yes I Do!! My sister gave me a watch and it had nickle on the backplate. It made me break out in a rash, I had to stop wearing it :(

Hope this helps, I've just been diagnosed with celiac and still have a lot to learn

sa1937 Community Regular

Yes I Do!! My sister gave me a watch and it had nickle on the backplate. It made me break out in a rash, I had to stop wearing it sad.gif

Hope this helps, I've just been diagnosed with celiac and still have a lot to learn

I have the same nickel allergy problem and have never been able to wear inexpensive dept. store jewelry, especially earrings. In fact, I've had this for my entire life. And I was just diagnosed with celiac in April with positive blood tests as well as endoscopy/biopsy.

There is a company who makes inexpensive nickel-free jewelry and I'm able to wear it without a problem although it's been years since I ordered. Open Original Shared Link

dilettantesteph Collaborator

I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't found a chocolate which doesn't gluten me as I am super sensitive. Beans I can manage too if I sort and wash. Could there be some connection between nickel allergy and celiac disease?

sa1937 Community Regular

I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't found a chocolate which doesn't gluten me as I am super sensitive. Beans I can manage too if I sort and wash. Could there be some connection between nickel allergy and celiac disease?

I'm a yellow gold person as I never liked white gold but wasn't aware that it contained nickel.

My daughter is also gluten free (had a very positive DGP test in late Aug. but skipped the endoscopy/biopsy) and is able to wear inexpensive costume jewelry without a problem. However her daughter (my granddaughter) has a nickel allergy. She's going to be 13 in Dec. and my daughter plans to have her tested when she has her annual check-up even though she has exhibited no celiac symptoms that we're aware of. Interesting thread and I never thought of the possible connection.

MollyBeth Contributor

It's always something. Just found out today I'm also allergic to something in rubber. My B12 and Iron are also too low again. Started dailyB12 shots today and am going in for IV iron next week. It will all be ok but this is all just frustrating.

Thanks for the jewelry site. I will look into it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tea-and-crumpets Explorer

I have a nickel allergy and I can't wear cheap jewelry at all. I once had a belt buckle give me a rash on my bellybutton -- it was awful.

As for white gold, not all of it is made with nickel. My wedding band has never given me a problem. I'm not sure how one would find out what the alloy metal is in a particular piece of jewelry, though.

I wear stainless steel (in my piercings) and sterling silver, mostly.

I wonder if it's related to celiac somehow, or if we are just more prone to these sorts of things?

Looking for answers Contributor

Nickel allergy is usually caused by getting your ears pieced with nickel-containing earrings. They've banned nickel in jewelry in European countries because of the likelihood of developing the allergy, but I believe it is still legal here. I also am alleric, as many people are...this is quite common.

I've never heard of the need to cut out nickel-containing foods. In fact, it seems very difficult, as it's a trace mineral and naturally occurs in all soil, etc. Is this something your doctor recommended? Did he/she say why? Just curious for my own knowledge...

MollyBeth Contributor

Yeah he told me to try a low nickel diet but that it would be hard because I'm gluten free. He didn't say I needed to completely eliminate it though like we do with gluten. He said chocolate and tree nuts were big ones. I'm still doing research. I'm going back in on Monday so I plan to talk to him more about it.

dilettantesteph Collaborator

I had a nickel allergy before I had my ears pierced. I also eat a lot of nuts without any issues. Go figure.

WW340 Rookie

I have had a nickel allergy for as long as I can remember. I can only wear yellow gold. I had to have all the amalgum taken out of my teeth and root canals, because I had such a terrible bone and tissue reaction to it.

Here is some information on nickel.

Open Original Shared Link

shopgirl Contributor

Nickel allergy is usually caused by getting your ears pieced with nickel-containing earrings. They've banned nickel in jewelry in European countries because of the likelihood of developing the allergy, but I believe it is still legal here. I also am alleric, as many people are...this is quite common.

I never knew that. I can't handle nickel in jewelry

missy'smom Collaborator

Do be sure to look into that rubber issue. If it's natural latex rubber allergy, nrla, then there are a number of everday things that need to be looked into and it's especially important to know about and notify others of in a medical setting.

mbrookes Community Regular

I'm surprised so many of you can wear sterling silver with nickle allergies. Most US made sterling is hardened with nickle. I can't wear most sterling.

Birch Hills is another company that makes nickle free jewelry. I buy it at Stein Mart.

shopgirl Contributor

I'm surprised so many of you can wear sterling silver with nickle allergies. Most US made sterling is hardened with nickle. I can't wear most sterling.

Birch Hills is another company that makes nickle free jewelry. I buy it at Stein Mart.

I wear a ring twenty-four hours a day that was guaranteed by the company to be pure sterling silver. It's the only jewelry I wear and have never had a problem with it. I'm not picking up cheap "sterling silver" from a department store. :)

If it itches, I take it off. But I wouldn't trust anything in my ears ever, even if it was guaranteed. A ring or a necklace is very different to me.

cyberprof Enthusiast

Yeah he told me to try a low nickel diet but that it would be hard because I'm gluten free. He didn't say I needed to completely eliminate it though like we do with gluten. He said chocolate and tree nuts were big ones. I'm still doing research. I'm going back in on Monday so I plan to talk to him more about it.

I too have a nickel allergy. It could be related to celiac or to having my ears pierced with nickel/white gold posts: They both happened around the same time.

See this other thread:

MollyBeth, you might want to avoid mineral make-up, which has metals in it. (BareMinerals is the most common but some mainstream makeup has minerals too.)

cyberprof Enthusiast

I wear a ring twenty-four hours a day that was guaranteed by the company to be pure sterling silver. It's the only jewelry I wear and have never had a problem with it. I'm not picking up cheap "sterling silver" from a department store. :)

If it itches, I take it off. But I wouldn't trust anything in my ears ever, even if it was guaranteed. A ring or a necklace is very different to me.

I can wear good quality sterling in my ears - have had some bad pieces. I can even wear white gold rings. Watches, necklaces though give me a problem almost 100% of the time...I can't wear sterling or nickel or white gold - only stainless.

MollyBeth Contributor

My allergy testing is 100% complete now. My reaction to rubber is mild, as is the nickel. I had a plus four reaction to thiomersal though. That is found in vaccines, soap free cleansers, cosmetics, and some first aid products.

Thank you all so much for the information! I've continued to eat many foods for the last week that have nickel in them and I haven't had any problems. I'm going to continue to monitor myself and see what happens!

  • 2 years later...
powerofpositivethinking Community Regular

*I posted this info in another thread, but also thought I'd add it here.

 

"came across this article.   p. 10 and 11 beginning in section 5 especially table 5 shows that patients with allergic reactions to nickel just happen to have an increase of carrying the DQ2 and DQ8 genes   :o

 

Open Original Shared Link"

 

mamat78 Apprentice

I am not diagnosed...yet, but I have had a nickel rash from my belt consistently for about 8 years. It is there most of the time but with regular cortisone cream, it stays under control. awful, awful place for a rash! I also get severe DH (if thats what it turns out to be!). I go to doc on Tuesday to review my results. 

LauraB0927 Apprentice

I also have a nickel allergy and used to get a terrible itching, oozing rash on my stomach where my belt came in contact with my skin - I went to an allergist several months back and he explained to me that many people have a topical nickel allergy and cant wear items (jewelry, belts, etc) that contain nickel, however out of those people, there is a very small percentage of people that cannot ingest nickel in foods or water.  So based on the way he explained it (and he was VERY thorough), just because someone reacts to nickel on the skin, it does not necessarily mean that they have to avoid nickel-containing foods.     MollyBeth - if you're not reacting to nickel foods, you may be in the topical group.  Hope this helps!!

  • 10 months later...
Amelia1878 Newbie

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Does anyone have a list of Nickle free foods that are ok to eat? Not alloud to use silverware or use stainless steal pots and pans.

 

What is really sad on my part is I had a stroke 5 years ago I can no longer work, So I recieve SSDI and help from the state. which includeds Foodstamps and Medcaid I get medicare. But they just reduced my foodstamps to 60.00 a month Right now I just buy Chicken Boneless skinless Chicken, I drink Coffee with non dairy creamer and sugar. I should weight my goal weight but I am over that by 46 pounds.

 

They say I have High Cholestrol and I do not know why I do not eat anything but chicken.

 

I can not have onions, Chocolate, No Seeds, Nuts, Garlic, Potato's, Spinach,No canned goods, No Soy, No seafood, No beans, No peas, No Dairy, I have filters on all of my water faucts Tub shower and kitchen, Because my water has a high count of Nickle in it. I know there is more to my list but what I am seeking is a list of GOOD FOOD that contains NO Gluten or NICKLE  can you help me????

GottaSki Mentor

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Welcome Amelia!

 

Just to let you know, most of the folks on this thread have not been on in a while.  Hopefully someone will be along that can help.

kareng Grand Master

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Does anyone have a list of Nickle free foods that are ok to eat? Not alloud to use silverware or use stainless steal pots and pans.

 

What is really sad on my part is I had a stroke 5 years ago I can no longer work, So I recieve SSDI and help from the state. which includeds Foodstamps and Medcaid I get medicare. But they just reduced my foodstamps to 60.00 a month Right now I just buy Chicken Boneless skinless Chicken, I drink Coffee with non dairy creamer and sugar. I should weight my goal weight but I am over that by 46 pounds.

 

They say I have High Cholestrol and I do not know why I do not eat anything but chicken.

 

I can not have onions, Chocolate, No Seeds, Nuts, Garlic, Potato's, Spinach,No canned goods, No Soy, No seafood, No beans, No peas, No Dairy, I have filters on all of my water faucts Tub shower and kitchen, Because my water has a high count of Nickle in it. I know there is more to my list but what I am seeking is a list of GOOD FOOD that contains NO Gluten or NICKLE  can you help me????

This looks like a good explanation. There are some foods to avoid on about page 5.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.