Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nickel Allergy And Celiac Disease


MollyBeth

Recommended Posts

MollyBeth Contributor

Hello All!

It's been a while since I've been on here. Life has been going well and two years in I'm finally feeling like this gluten free stuff is getting almost easy!

Unfortunately, all good things must come to an end. I've been struggling with allergic reactions lately and testing confirms that I am allergic to nickel which is found in a surprising amount of foods. The foods that I've used to replace the glutenous foods I used to love. Potatoes, beans, chocolate... these are just a few of the items on the list. I'm also supposed to avoid hot water from the tap? I don't know if that means I need to start taking cold showers or what? So anyway, I'm just two days into this and am obviously still doing research but I thought I'd drop by here and see if anyone else has this strange combination of Celiac disease and a nickel allergy. Any tips or advice would be greatly appreciated. I hope this message finds all of you in high spirits and good health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Sorry you have this additional challenge.:( Those of us with gluten issues seem to have sensitive immune systems! Don't know about nickel but I have a recent latex allergy dx and in latex allergy forum some have nickel allergy as well. Not familiar with the nature of the connection. I recently had a dx of chocolate allergy too and it's one of the very few indulgences I had left, the only "sweet". In our family, we tend to become allergic to the things that we eat often. Sigh...

snifter Apprentice

Yes I Do!! My sister gave me a watch and it had nickle on the backplate. It made me break out in a rash, I had to stop wearing it :(

Hope this helps, I've just been diagnosed with celiac and still have a lot to learn

sa1937 Community Regular

Yes I Do!! My sister gave me a watch and it had nickle on the backplate. It made me break out in a rash, I had to stop wearing it sad.gif

Hope this helps, I've just been diagnosed with celiac and still have a lot to learn

I have the same nickel allergy problem and have never been able to wear inexpensive dept. store jewelry, especially earrings. In fact, I've had this for my entire life. And I was just diagnosed with celiac in April with positive blood tests as well as endoscopy/biopsy.

There is a company who makes inexpensive nickel-free jewelry and I'm able to wear it without a problem although it's been years since I ordered. Open Original Shared Link

dilettantesteph Collaborator

I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't found a chocolate which doesn't gluten me as I am super sensitive. Beans I can manage too if I sort and wash. Could there be some connection between nickel allergy and celiac disease?

sa1937 Community Regular

I get a rash from nickel containing jewelry. I can wear only gold, and not even white gold, which contains nickel. I have a titanium watch. The gold ones I could afford kept breaking. I take hot showers, but I do heat up water for coffee, tea etc. and don't use hot water from the tap, but cold to start. I eat potatoes without problems, but I haven't found a chocolate which doesn't gluten me as I am super sensitive. Beans I can manage too if I sort and wash. Could there be some connection between nickel allergy and celiac disease?

I'm a yellow gold person as I never liked white gold but wasn't aware that it contained nickel.

My daughter is also gluten free (had a very positive DGP test in late Aug. but skipped the endoscopy/biopsy) and is able to wear inexpensive costume jewelry without a problem. However her daughter (my granddaughter) has a nickel allergy. She's going to be 13 in Dec. and my daughter plans to have her tested when she has her annual check-up even though she has exhibited no celiac symptoms that we're aware of. Interesting thread and I never thought of the possible connection.

MollyBeth Contributor

It's always something. Just found out today I'm also allergic to something in rubber. My B12 and Iron are also too low again. Started dailyB12 shots today and am going in for IV iron next week. It will all be ok but this is all just frustrating.

Thanks for the jewelry site. I will look into it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tea-and-crumpets Explorer

I have a nickel allergy and I can't wear cheap jewelry at all. I once had a belt buckle give me a rash on my bellybutton -- it was awful.

As for white gold, not all of it is made with nickel. My wedding band has never given me a problem. I'm not sure how one would find out what the alloy metal is in a particular piece of jewelry, though.

I wear stainless steel (in my piercings) and sterling silver, mostly.

I wonder if it's related to celiac somehow, or if we are just more prone to these sorts of things?

Looking for answers Contributor

Nickel allergy is usually caused by getting your ears pieced with nickel-containing earrings. They've banned nickel in jewelry in European countries because of the likelihood of developing the allergy, but I believe it is still legal here. I also am alleric, as many people are...this is quite common.

I've never heard of the need to cut out nickel-containing foods. In fact, it seems very difficult, as it's a trace mineral and naturally occurs in all soil, etc. Is this something your doctor recommended? Did he/she say why? Just curious for my own knowledge...

MollyBeth Contributor

Yeah he told me to try a low nickel diet but that it would be hard because I'm gluten free. He didn't say I needed to completely eliminate it though like we do with gluten. He said chocolate and tree nuts were big ones. I'm still doing research. I'm going back in on Monday so I plan to talk to him more about it.

dilettantesteph Collaborator

I had a nickel allergy before I had my ears pierced. I also eat a lot of nuts without any issues. Go figure.

WW340 Rookie

I have had a nickel allergy for as long as I can remember. I can only wear yellow gold. I had to have all the amalgum taken out of my teeth and root canals, because I had such a terrible bone and tissue reaction to it.

Here is some information on nickel.

Open Original Shared Link

shopgirl Contributor

Nickel allergy is usually caused by getting your ears pieced with nickel-containing earrings. They've banned nickel in jewelry in European countries because of the likelihood of developing the allergy, but I believe it is still legal here. I also am alleric, as many people are...this is quite common.

I never knew that. I can't handle nickel in jewelry

missy'smom Collaborator

Do be sure to look into that rubber issue. If it's natural latex rubber allergy, nrla, then there are a number of everday things that need to be looked into and it's especially important to know about and notify others of in a medical setting.

mbrookes Community Regular

I'm surprised so many of you can wear sterling silver with nickle allergies. Most US made sterling is hardened with nickle. I can't wear most sterling.

Birch Hills is another company that makes nickle free jewelry. I buy it at Stein Mart.

shopgirl Contributor

I'm surprised so many of you can wear sterling silver with nickle allergies. Most US made sterling is hardened with nickle. I can't wear most sterling.

Birch Hills is another company that makes nickle free jewelry. I buy it at Stein Mart.

I wear a ring twenty-four hours a day that was guaranteed by the company to be pure sterling silver. It's the only jewelry I wear and have never had a problem with it. I'm not picking up cheap "sterling silver" from a department store. :)

If it itches, I take it off. But I wouldn't trust anything in my ears ever, even if it was guaranteed. A ring or a necklace is very different to me.

cyberprof Enthusiast

Yeah he told me to try a low nickel diet but that it would be hard because I'm gluten free. He didn't say I needed to completely eliminate it though like we do with gluten. He said chocolate and tree nuts were big ones. I'm still doing research. I'm going back in on Monday so I plan to talk to him more about it.

I too have a nickel allergy. It could be related to celiac or to having my ears pierced with nickel/white gold posts: They both happened around the same time.

See this other thread:

MollyBeth, you might want to avoid mineral make-up, which has metals in it. (BareMinerals is the most common but some mainstream makeup has minerals too.)

cyberprof Enthusiast

I wear a ring twenty-four hours a day that was guaranteed by the company to be pure sterling silver. It's the only jewelry I wear and have never had a problem with it. I'm not picking up cheap "sterling silver" from a department store. :)

If it itches, I take it off. But I wouldn't trust anything in my ears ever, even if it was guaranteed. A ring or a necklace is very different to me.

I can wear good quality sterling in my ears - have had some bad pieces. I can even wear white gold rings. Watches, necklaces though give me a problem almost 100% of the time...I can't wear sterling or nickel or white gold - only stainless.

MollyBeth Contributor

My allergy testing is 100% complete now. My reaction to rubber is mild, as is the nickel. I had a plus four reaction to thiomersal though. That is found in vaccines, soap free cleansers, cosmetics, and some first aid products.

Thank you all so much for the information! I've continued to eat many foods for the last week that have nickel in them and I haven't had any problems. I'm going to continue to monitor myself and see what happens!

  • 2 years later...
powerofpositivethinking Community Regular

*I posted this info in another thread, but also thought I'd add it here.

 

"came across this article.   p. 10 and 11 beginning in section 5 especially table 5 shows that patients with allergic reactions to nickel just happen to have an increase of carrying the DQ2 and DQ8 genes   :o

 

Open Original Shared Link"

 

mamat78 Apprentice

I am not diagnosed...yet, but I have had a nickel rash from my belt consistently for about 8 years. It is there most of the time but with regular cortisone cream, it stays under control. awful, awful place for a rash! I also get severe DH (if thats what it turns out to be!). I go to doc on Tuesday to review my results. 

LauraB0927 Apprentice

I also have a nickel allergy and used to get a terrible itching, oozing rash on my stomach where my belt came in contact with my skin - I went to an allergist several months back and he explained to me that many people have a topical nickel allergy and cant wear items (jewelry, belts, etc) that contain nickel, however out of those people, there is a very small percentage of people that cannot ingest nickel in foods or water.  So based on the way he explained it (and he was VERY thorough), just because someone reacts to nickel on the skin, it does not necessarily mean that they have to avoid nickel-containing foods.     MollyBeth - if you're not reacting to nickel foods, you may be in the topical group.  Hope this helps!!

  • 10 months later...
Amelia1878 Newbie

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Does anyone have a list of Nickle free foods that are ok to eat? Not alloud to use silverware or use stainless steal pots and pans.

 

What is really sad on my part is I had a stroke 5 years ago I can no longer work, So I recieve SSDI and help from the state. which includeds Foodstamps and Medcaid I get medicare. But they just reduced my foodstamps to 60.00 a month Right now I just buy Chicken Boneless skinless Chicken, I drink Coffee with non dairy creamer and sugar. I should weight my goal weight but I am over that by 46 pounds.

 

They say I have High Cholestrol and I do not know why I do not eat anything but chicken.

 

I can not have onions, Chocolate, No Seeds, Nuts, Garlic, Potato's, Spinach,No canned goods, No Soy, No seafood, No beans, No peas, No Dairy, I have filters on all of my water faucts Tub shower and kitchen, Because my water has a high count of Nickle in it. I know there is more to my list but what I am seeking is a list of GOOD FOOD that contains NO Gluten or NICKLE  can you help me????

GottaSki Mentor

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Welcome Amelia!

 

Just to let you know, most of the folks on this thread have not been on in a while.  Hopefully someone will be along that can help.

kareng Grand Master

Hi there, I suffer from diatary nickle allergy and anything with nickle in it, and I have Celiac Disease. For the past 15 years I have been stuggling with sores on my arms face and neck. Had a Chemical test done on my back that took a week to do and found out the reason for all the sores was a Nickle allergy. I am stumped because all the comfort foods that I enjoy to eat I can not eat anymore.

 

Does anyone have a list of Nickle free foods that are ok to eat? Not alloud to use silverware or use stainless steal pots and pans.

 

What is really sad on my part is I had a stroke 5 years ago I can no longer work, So I recieve SSDI and help from the state. which includeds Foodstamps and Medcaid I get medicare. But they just reduced my foodstamps to 60.00 a month Right now I just buy Chicken Boneless skinless Chicken, I drink Coffee with non dairy creamer and sugar. I should weight my goal weight but I am over that by 46 pounds.

 

They say I have High Cholestrol and I do not know why I do not eat anything but chicken.

 

I can not have onions, Chocolate, No Seeds, Nuts, Garlic, Potato's, Spinach,No canned goods, No Soy, No seafood, No beans, No peas, No Dairy, I have filters on all of my water faucts Tub shower and kitchen, Because my water has a high count of Nickle in it. I know there is more to my list but what I am seeking is a list of GOOD FOOD that contains NO Gluten or NICKLE  can you help me????

This looks like a good explanation. There are some foods to avoid on about page 5.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.