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Anyone Else Have This Happen?

aljf

By aljf
in Coping with Celiac Disease

Recommended Posts

aljf Apprentice
aljf
Posted

before i was diagnosed, i used to have diarrhea sometimes. now that i have been diagnosed, i feel like i get it MORE, and not just in reaction to gluten. i get it randomly, and like RIGHT after eating, and i can see pieces of whatever i've just eaten in it.

i know this is so so so gross, but this is the only place i can ask about it.

is this because my system has been "cleaned out" so much? or is it that my celiac disease was worsening as time went on and my body would react like this whether i had stopped eating gluten or not? and if this is happening whether i eat gluten or not, and literally RIGHT after eating, what else could be going on??

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Canadian Karen Community Regular
Canadian Karen
Posted

Don't worry, I can SO RELATE TO YOU!!!

I avoid as much as possible salads, fruits with skin, tomatoes, corn, mushrooms. All go through my system basically undigested.

The next time you see your doctor, ask him maybe to investigate the possibility of you having collagenous colitis. After a decade of permanent watery diarrhea, the top celiac guy in Canada finally figured out (by colonoscopy) that I also had collagenous colitis. Google it up, it might sound very familiar to you......

Good Luck!

Karen

pixiegirl Enthusiast
pixiegirl
Posted

Add me to this list.... I love salads... bummer. I have been able to achieve some control over the D by using Metamucil or Citracil 2-3 times a day.

Susan

aljf Apprentice
aljf
Posted
  • Author

i eat salads all the time, so i don't think it's due to them... last night (when i had another "episode") i also had a LOT of fat free whipped cream, which is basically skim milk and sugar. could a lactose issue cause this violent reaction?

mommida Enthusiast
mommida
Posted

Yes lactose intolerance could give you the"D".

L

jenvan Collaborator
jenvan
Posted

I don't get extreme D all the time, but my food always comes out with undigested parts. Like "oh, there's what I ate for lunch." !

SueC Explorer
SueC
Posted

Does anyone still have floaters after being gluten-free for awhile?? I always thought this was normal..... and after 11 weeks gluten-free they still don't sink! :blink:

Sue

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Bonnie Explorer
Bonnie
Posted

Sue, so glad you asked that! I have been wondering the same thing. Also been gluten-free 11 weeks. Still chronically constipated and when I do go (with help) - still floaters! Does this ever change?

BamBam Community Regular
BamBam
Posted

Lactose intolerance can definitely be your problem. What happened in my diagnosis was they thought I was lactose intolerant in the beginning cause I had the D all the time - several times a day. So I gave up dairy. It quieted down some but never truly went away. I finally gave up wheat/gluten and my system has quieted down a lot, still have a few problems, but I think everyone gets the D once in awhile. Now that I have given up wheat for good, my lactose intolerance problem may heal, because my intestines are healing and I should be able to digest dairy again at some point. I accidently ate butter a month or two ago, I had some grumblings and gas, but I never had to run to the bathroom like I did in the past.

I would give up all dairy for two weeks and see what happens, also look for dairy ingredients in the foods that you eat, cause it is in a lot of things. I can eat Yoplait and Dannon yogurt with no problem at all.

bambam

cgilsing Enthusiast
cgilsing
Posted

If I have a dietary acceident I'm usually C for several days, but then all of a sudden I'll have D.....It's a welcomed change by that point and usually I sign that I'm getting over it...

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      By cristiana · Posted

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    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
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