Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"normal" Endoscopy?

Kimbalou

By Kimbalou
in Coping with Celiac Disease

Recommended Posts

Kimbalou Enthusiast
Kimbalou
Posted

Dr. said it was normal today from what he could see. But I guess we don't know for sure until the biopsy results, right? Only a biopsy can detect the disease, you can't see it with the naked eye, right? I should know this, I'm a nurse...lol...but just wondering if I'm correct. 2-3 weeks to wait, ugh. But pretty sure it's positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Dr. said it was normal today from what he could see. But I guess we don't know for sure until the biopsy results, right? Only a biopsy can detect the disease, you can't see it with the naked eye, right? I should know this, I'm a nurse...lol...but just wondering if I'm correct. 2-3 weeks to wait, ugh. But pretty sure it's positive.

Yeah--every once in a while the doctor can see changes such as scalloping or folds or inflammation but the damage to the villi is microscopic and you'll need to wait for the biopsy report for that.

jenngolightly Contributor
jenngolightly
Posted

Dr. said it was normal today from what he could see. But I guess we don't know for sure until the biopsy results, right? Only a biopsy can detect the disease, you can't see it with the naked eye, right? I should know this, I'm a nurse...lol...but just wondering if I'm correct. 2-3 weeks to wait, ugh. But pretty sure it's positive.

Or not... sometimes biopsies come back negative and you still have Celiac. It depends upon where the doctor takes the biopsy from. Your intestines are HUGE, and the doctor grabs bits from only a few locations. If he doesn't grab from the parts that are damaged, then the biopsy is negative. Biopsies are supposed to be the "gold standard" by which to diagnose Celiac, but they can generate false negatives as I just noted. My endoscopy was normal and biopsies were negative, but my diagnosis is positive based on multiple other factors. Look at your symptoms as a whole, not a single test. What else leads you to believe you have Celiac?

ravenwoodglass Mentor
ravenwoodglass
Posted

Your done with testing so now is when you start the diet strictly. Your body may give you the answer before the biopsy results. False negatives on biopsies are not all that unusual but your body knows the answer about whether you need to be gluten free or not.

Kimbalou Enthusiast
Kimbalou
Posted
  • Author

To Jenn: I've already had a positive blood test. I've had the symptoms for a long time too...mostly irritable bowel symptoms, etc. I know I need to be gluten free.

Emilushka Contributor
Emilushka
Posted

As has already been said, the endoscopy can come back totally normal (I got both ends scoped and was normal but the antibody panel and diet response proved the Celiac diagnosis).

I hope your endoscopy doesn't show too much damage and your symptoms clear up quickly on the diet!

rockectman Rookie
rockectman
Posted

Over 90 percent of Celiac cases are mis-diagnosed per Dr OZ, meaning 9 out of 10 people who think they have it and

are told they dont, actually do........what a shame!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748
    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.