Questions For Parents Of Celiac Babies/children

[beebs]

I've posted a few times recently on this site -trying to get my head around everything.

I just have a couple of quesitons regarding my 17month old.

He has come back negative on his bloods for celiac. But he had low iron and low vitamin D, which is the same as my eldest child (who is 4)who also consistantly comes back neg on bloods.

He has been a very difficult baby since birth, cried all the time and seemed in agony almost. possetted after every feed, colicky. Started projectile vomitting at 6 months and was told to take him of lactose - seemed to help slightly but still had foul stools every day.

Lately his stools are far worse than usual and he was found to be have pancreatic enzyme defieincy which is usually found in cystic fibrosis. Needless to say we had a very scary week last week as we were given a 90% chance of CF. Luckily he was negative. His stools basically - he eats and it comes out the way it went in, he digests very little - its also greasy and very bad smelling and you can see exactly what he ate the day before. He still vomits most days - but not projectile -just a little spew.

His appetite has been steadily decreasing. But in the last few days he literally has eaten nothing - well - he had a bite of a sandwhich yesterday and he had a bite of a cookie the day before. Today he ate grapes and blueberries with gusto and I realised that that was the first non gluten thing I had given him. Over the last few days he wouldn't eat cereal, sandwiches or toast, not even cookies or granola bars.

Is he somehow avoiding gluten? Is that possible at all? And if he is - how the heck am I supposed to get him to eat it so that it doens't mess with the Endo he is supposed to have soon.