Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Problem

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

I have a hiatal hernia and I experience similar symptoms, sporadically. Hope you are not taking Tums Smoothies, they are not gluten free (as my last check). Regular Tums are gluten-free to my current knowledge.

You could also have developed an ulcer, or an inflamed esophagus. Maybe time to see a doctor. Acid can do some damage too.

jerseyangel Proficient
jerseyangel
Posted

I have a hiatal hernia and I experience similar symptoms, sporadically.

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Lisa Mentor
Lisa
Posted

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Patti, I have noticed also that antacids don't seem to help much. Tums don't help much but I was told it's good calcium.

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

jerseyangel Proficient
jerseyangel
Posted

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

Interesting--I'll try that. Thanks :)

cassP Contributor
cassP
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

cahill Collaborator
cahill
Posted

Dont tums/most over the counter antacids have soy in them??? Do you have issues with soy?

Do you have issues with your gallbladder ??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Googles Community Regular
Googles
Posted
  • Author

I have a doctor's appointment with student health services for tomorrow. I hate going to the doctor. I'm worried they are going to tell me they don't know what is wrong and to just go away. Ugh.

GFinDC Veteran
GFinDC
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

Garlic is supposed to be a good anti-bacterial too. I have been wondering what the GSE was for. Thanks for that.

Salax Contributor
Salax
Posted

I have the same. I higly recommend George's Aloe Vera juice twice a day. Once in the AM and once before bed. About 1/2 of a shot glass full. More than that can give you D. I have the herna as well, my doc started me on this for 3 weeks, symptoms gone, it heals the herna and the throat, etc.. When or if they start again, go back on the aloe. You should be able to find this in most health food stores or online. I hope you feel better. B)

Googles Community Regular
Googles
Posted
  • Author

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

GFinDC Veteran
GFinDC
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Maybe you can switch to decaf in the afternoons. And later decaf in the mornings.

Wolicki Enthusiast
Wolicki
Posted

I have had similar problems in the past, and it turned out to be hyporchlorydia- low stomach acid. The effects are similar to GERD. Problem is I was prescibed acid blockers for over 20 years, so now I have no stomach acid or enzymes. So I take Betaine HCL and enzymes and the problems were resolved.

dilettantesteph Collaborator
dilettantesteph
Posted

I get GERD as a sign of glutening. It helped me to cut down on processed foods.

Juliebove Rising Star
Juliebove
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Everyone is different. I know people with GERD who also can not have onions and peppers. None of those things bother me. What does bother me is dark chocolate. The pain! Oh mama!

You should also invest in a GERD wedge pillow to sleep on. Or failing that, put some blocks under the head of your bed to raise it up a couple of inches.

Googles Community Regular
Googles
Posted
  • Author

Contrary to most people with GERD, for me it is not at all problematic when I lie down. It is actually better then. My doctor thinks it might be stress related, and so when I lie down, I usually am able to relax. So hopefully I wont have to adjust my sleeping position (I love sleeping on my stomach). I started the meds today. I hope that after being on them a couple of weeks it will all go away and then I can stop taking them. (wishful thinking probably, but I can hope.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    2. McKinleyWY
      - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those...
    3. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in ...
    4. Scott Adams
      - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also ...
    5. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748
    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Healthy Gluten Free Foods low sugar that you found?

      By xxnonamexx · Posted

      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Scott Adams · Posted

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      Low iron and vitamin d

      By Scott Adams · Posted

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.