Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cannot Lose Weight!


Kathleen Smith

Recommended Posts

Kathleen Smith Contributor

Hi Everyone,

I have been gluten-free for two years. The last 6 months have been the most healing. That is mostly due to eating whole foods. I cannot digest alot of processed gluten-free foods, I just feel nausous and feel like I am glutened when I am not. Eating plain whole foods (mostly fruits, veggies, some chicken and some nuts with the occassional sweet potatoe) helped me start to feel better. I will from time to time re-introduce things like pork or beans and maybe a potatoe but not very often.

Anyway, although I know it is most important I am not feeling sick every day and for that I am SO thankful (it really does make a difference not feeling sick every time you eat). But I cannot lose weight. I am trying to be patient. I have always worked out, probably always 3-4 times week but I really try for 5. I started did weight watchers last winter and lost 20 pounds but it hasnt moved one pound since then! And it was after WW that I started eating the above way (no gluten-free processed foods).

My TSH was around 6.0 and I have started (just a month ago) meds for that.

I am also on lexapro and have been for years (10mg, but am in process of weaning so currently at 5).

My primary care doc thinks the weight issue is probably the lexapro.

Do you all think it is just celiac damange, my thyroid or could it be the lexapro??

Thanks for your advice! Again, mostly greatful I am feeling better regarding celiac so I dont mean to complain, just frustrated b/c I work so hard at the gym and with eating.....you'd think I could lose!?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I feel your pain. At diagnosis, I was at 93 pounds (normal for me is about 165). Within 6 months, I gained 110 pounds. And that is not a typo. This was while eating low cal (1300), exercising 6 days per week, very few grains and nothing processed.

My doctor thinks I have lingering effects of malnutrition or post starvation syndrome, and that my body is storing up for the next famine. He also said that my body learned how to survive on far fewer calories and that it will take quite some time (read years) to straighten out. I tried eating more, because some people say if you eat too little, you will gain. Well, that didn't work.

The day after Christmas, I started Slimfast twice a day, with some protein and veggies for dinner. This finally made a dent. I've lost 21 pounds since December 26, but I've been really hungry. I do Zumba three times a week, do a Curves circuit 3 times per week and ride my bike on the weekends. I don't eat grains or legumes, just veggies, fruit and protein. Low dairy. It's the most frustrating thing in the world because I was thin without trying before all this celiac stuff started. I will be very happy to get back to normal size. Talk about extremes! No one recognizes me anymore!

Keeping a food diary was really helpful to figure out actual calories consumed. Livestrong has a good one. Hope that helps.

kitgordon Explorer

Is Slimfast safe?

Wolicki Enthusiast

Is Slimfast safe?

Yes, as long as the dairy doesn't bother you. The slimfast bars are mostly not, though. They either contain gluten or "may contain" gluten. I have been eating the peanut butter chocolate on a rare occassion without any issues, and I am pretty sensitive. I buy the premade individual shakes in a can.

eatmeat4good Enthusiast

Excellent information on post starvation syndrome.

I would second that you need to be sure to get enough protein.

I notice if I don't I get swelling and inflammation.

Must be that my body thinks there is a famine and

stores everything as fat.

I am having trouble with weight gain...after I lost like 35 pounds the first 4 months gluten free.

Now seems like everything I eat goes to my middle.

Gonna do protein, veg, fruit and nuts only I guess.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,048
    • Most Online (within 30 mins)
      7,748

    Leah Gallagher
    Newest Member
    Leah Gallagher
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • milana
      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
    • Scott Adams
      It’s scary how hidden gluten can be—even in non-food products like hair care! Your experience is a great reminder that topical products with gluten can cause systemic reactions in some people with celiac disease, especially if they’re accidentally ingested (like when shampoo runs down your face). While not everyone reacts to external exposure, your symptoms—joint pain, brain fog, and GI issues—clearly show your sensitivity. It’s frustrating that companies aren’t required to label “gluten-free” on cosmetics, so ingredient checks are a must. Don’t feel stupid; many of us learn this the hard way! Thanks for sharing your story—it’s a wake-up call for others to scrutinize everything, from lotions to makeup. Hope you’re feeling better now that you’ve ditched the culprit!
    • Scott Adams
      It’s possible—though not extremely common—to develop a wheat allergy in addition to celiac disease. While celiac is an autoimmune reaction to gluten, a wheat allergy is an IgE-mediated response to wheat proteins, which can cause allergic symptoms like hives, swelling, or even anaphylaxis. Your recent anaphylactic reaction strongly suggests a true wheat allergy has developed alongside your celiac disease. Research on this overlap is limited, but some people with celiac do develop other immune-related conditions, including allergies. Repeated gluten exposures may have sensitized your immune system over time, leading to this new allergic response. Since wheat allergy involves different proteins than celiac, you could now be reacting to both. An allergist can confirm this with skin prick or IgE blood tests. Moving forward, you’ll need to avoid all wheat (not just gluten) and keep your Epi-Pen handy. Many in the celiac community report similar experiences, so you’re not alone. Glad you’re okay after that scary reaction—thanks for sharing your story, as it’s an important reminder of how complex these conditions can be.
×
×
  • Create New...