Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Dumb Question


lexusca

Recommended Posts

lexusca Rookie

OK here it is, did anyone else feel worse when the wert gluten free. I was daignosed aweek ago have been gluten free since then. I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Some people feel worse before they start to feel better.

Sometimes it is cross contamination you are not aware of.

Sometimes it is eating too many gluten free products that are processed.

Your stomach needs time to heal.

Eat mostly meat, chicken, fish, vegetables, fruits and nuts and see if you feel better.

Do have a separate toaster? Scratched pans? Gluten eaters in your home? Do you kiss someone who eats gluten? Including the dog? These are potential sources of contamination.

I hope you feel better soon. I had terrible nausea before I went gluten free. It cleared up after.

But many others have noticed that too.

Welcome!

I'm sure others here will have some good information for you.

Oh yeah, and secondary intolerances like dairy, soy, nightshades could be surfacing too.

kareng Grand Master

For me, maybe not you, but you can decide: I would get nauseous when I started worrying about " is the food gluten-free?". " OMG! Did I check the label?"

This was just psychological and went away, mostly. I still have panic moments but I stop & think. I'm thinking of putting " Don't Panic" in large reassuring letters on the front of my recipe book.

(Any Hitchhiking through the galaxy fans?)

psawyer Proficient

(Any Hitchhiking through the galaxy fans?)

42.

kareng Grand Master

42.

I keep a towel with me at all times ( except in the shower).

T.H. Community Regular
I feel nauseous after everytime I eat or drink something. A symptom I never had before, will this eventually go away or am I missing something?

That was me, too. Never had nausea with eating, and then suddenly, I had it after going gluten free, within days.

For me, it turned out to be two things:

1 - I was more sensitive to gluten than average and reacted to many gluten free foods' level of gluten.

2 - Turns out I have food allergies and intolerances. No signs before this, no hives, no nothing. But after going gluten free, I started reacting to some other foods with headaches, or nausea, or a few other things. I had to drop my diet to very unprocessed foods - fruits, veggies, plain meat, etc... - and keep a food journal to get a start on finding these. Finally got allergy tests, but the food journal found the problem foods faster than I got the tests, and the tests actually pretty much confirmed much of what I'd found out with the journal. Some reactions that would include gas or inflammation of the intestines would then flare up every time I consumed something, for a few days following the 'bad' food.

Another problematic issue was that a couple of my allergies were foods that are in much higher concentrations in the processed gluten-free food.

Also...hmmm...have you been eating a lot of dairy or items with xanthan gum? Many celiacs are lactose intolerant until they heal. Also, a number of people are sensitive to xanthan gum and react with gut symptoms. That could be a problem. Again, sometimes those reactions pretty much wax and wane from the time the food goes in your belly until it comes out the other end (to be a bit too graphic).

mushroom Proficient

Yes, many of us get symptoms we never had before after going gluten free. Many of these symptoms are intolerances to other foods that were masked previously by the body being overwhelmed by the gluten. Once the gluten load is relieved we are able to hear the other voices piping up, "What about me?" :)

These foods for me were mainly soy and nightshades, but everyone is different and every reaction is different. My other foods made me itch like crazy with red rashes itching and hives; you may have whatever kind of response your body uses to deal with such problems. (I have always been a skin reaction type person; that is why I have psoriasis :lol: )


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lexusca Rookie

tks for all the feedback makes me feel not so narotic. Dumb question 2 what the heckis nightshades I have never heard of it.

psawyer Proficient

Nightshades are a plant family that includes potato, tomato, eggplant, tobacco, sweet pepper, and other plants.

MsCurious Enthusiast

Speaking of nightshades, if you're allergic to one or two for sure...are you allergic to the rest? Or is that a random thing too?

mushroom Proficient

I don't risk it, except for a little cayenne pepper. and paprika Tomatoes and potatoes were definite positives for me, and I had always kinda avoided green peppers, I guess for a reason.. Lurved eggplant, but I cut them all out until I hope my leaky gut is healed and then I will try them again, starting with eggplant. Since I have RA it is just not worth it to me right now.

lexusca Rookie

tks for all the info. It is a steep learning curve which I am sure I am getting slowly but surely. You guys are a great resource and I am glad your out here for all of us newbies. I am sure before long I will be 1 of you all(being able to give good knowledgeable advice that is)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...