Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Spaced Out

ndw3363

By ndw3363
in Coping with Celiac Disease

Recommended Posts

ndw3363 Contributor
ndw3363
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


love2travel Mentor
love2travel
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Me, too! I've been strictly gluten-free about 18 or so days and am not myself. I felt much better on gluten as I did not feel ill at all and now I do. Not bad, just yucky. Plus my short-term memory is atrocious - I struggle frequently to find a word when I am speaking. Sooooo unlike me. Hope this ends soon as it is sort of disconcerting!

IrishHeart Veteran
IrishHeart
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

Boy, I know that spacey feeling and it is very scary and depressing. I had it for 2 years and am happy to say it is disappearing!!. (I used to say to my husband that I felt like my brain was dipped in vaseline :unsure:) I had a really hard time with all that. Thought I was going mad sometimes.

It took me about 3-4 weeks to start to see that sensation diminish and I am greatly relieved and encouraged! I am not as sharp as I once was YET, but I hope that returns in time. Everyone on here says it will and to be patient.

As for the feeling worse after going gluten-free---I did too. It's withdrawal and it passes, too. Drink a lot of water -- hydration is essential. Try to exercise, take walks and clear your head. I couldn't really walk I was so bad before, so I just kept going outside and putting my face up to the sun. Stick to pure, whole foods. Try to relax. Soak in a tub. Be good to yourself. Your body is healing.

... Everyone is different and symptoms go when they go...I know, it stinks.

I never thought I'd be this clear again--I was fumbling for words and my short term memory suffered greatly and I was terrified I would never read and comprehend anything ever again, but I do now!! Hang in there!

pondy Contributor
pondy
Posted

I've been gluten free for about 2 weeks. However, I still have a very spaced out feeling. I've triple checked everything I've eaten today (including supplements), but my head is still all fuzzy. Am I just adjusting to the new diet? I've changed my bathroom products, my hand lotion, got rid of my chewing gum that had gum base in it...not sure what more I can get rid of at this point. By the way, this forum has helped a newbie like me SO much. Thank you all!!

I don't feel like myself either! I also get that "spaced out" feeling - plus zero motivation, memory lapses, extreme fatigue & anxiety.

I saw my GP today - when I told her these symptoms, she said that they are likely due to very poor absorption of essential nutrients. Doc also said that it can take 6 month to 2 years or so to heal.

My blood test confirmed my Celiac just about 1 week ago. I haven't been gluten free for long & they tell me not to expect instant results. I'm trying hard to be patient with my body & do it no further harm.

Just a note on the body lotions, etc... - I should change those too? I had no idea! Can anyone recommend some safe brands?

I know there is hope and that we will heal, and I agree that this forum is a great place to find support! I thank all here as well!

IrishHeart Veteran
IrishHeart
Posted

I don't feel like myself either! I also get that "spaced out" feeling - plus zero motivation, memory lapses, extreme fatigue & anxiety.

I saw my GP today - when I told her these symptoms, she said that they are likely due to very poor absorption of essential nutrients. Doc also said that it can take 6 month to 2 years or so to heal.

My blood test confirmed my Celiac just about 1 week ago. I haven't been gluten free for long & they tell me not to expect instant results. I'm trying hard to be patient with my body & do it no further harm.

Just a note on the body lotions, etc... - I should change those too? I had no idea! Can anyone recommend some safe brands?

I know there is hope and that we will heal, and I agree that this forum is a great place to find support! I thank all here as well!

Hi Pondy--I think I talked with you on another post!!

I use Savonnerie gluten free products. Check the Internet. But that's because I have some problems with soy (often in beauty products) and I cannot seem to figure out what I am reacting to (I have burning, red skin and itching).

AVOID shampoo and hair spray with HYDROLYZED WHEAT PROTEIN.

There are some threads on here that have "safe"beauty products listed. Mostly I find, some people think you have to change all the beauty products, others don't. (I do because I am sensitive to them.)

Hang in there. It really does get better!! :)

healinginprogress Enthusiast
healinginprogress
Posted

Pretty glad to read that others are feeling like this...the foggy-head, memory loss...yeah, just all around not feeling like myself! Really can't wait for things to get better.

With regards to shampoo... I guess I should really change mine. The thing is, I JUST dyed my hair pretty much platinum blonde, so I'm using a purple shampoo so it doesn't get brassy...and I have a pretty strong feeling that nobody makes a gluten-free purple shampoo lol. But maybe if I used gluten-free most of the week and then the purple just once a week and be very careful?

IrishHeart Veteran
IrishHeart
Posted

Pretty glad to read that others are feeling like this...the foggy-head, memory loss...yeah, just all around not feeling like myself! Really can't wait for things to get better.

With regards to shampoo... I guess I should really change mine. The thing is, I JUST dyed my hair pretty much platinum blonde, so I'm using a purple shampoo so it doesn't get brassy...and I have a pretty strong feeling that nobody makes a gluten-free purple shampoo lol. But maybe if I used gluten-free most of the week and then the purple just once a week and be very careful?

um...I'm not sure. I know some people use the Garnier line?

I had to stop coloring my hair because my hair fell out and my scalp was peeling and had sores on it...this nasty disease! anyway, I am happy you have good hair!!

I pray mine returns and I can look pretty once more... :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


healinginprogress Enthusiast
healinginprogress
Posted

um...I'm not sure. I know some people use the Garnier line?

I had to stop coloring my hair because my hair fell out and my scalp was peeling and had sores on it...this nasty disease! anyway, I am happy you have good hair!!

I pray mine returns and I can look pretty once more... :)

Wow, that's terrible, I hope it does, too! I had only been gluten-free for about 4 days when I got it dyed and it was blindingly painful, my scalp was soooooo sensitive and I ended up with scabs and dry scalp...I hear that can happen with bleach sometimes...but I can put up with a lot of pain and it was pretty much unbearable. If I don't start feeling better on the very limitied diet that I'm on now then I imagine I won't be dying again and will be changing shampoos and scrubbing my house from top to bottom I guess :P

Not only is this disease nasty, painful, and a lot of time just plain gross...it is also a LOT of work!!! :blink:

IrishHeart Veteran
IrishHeart
Posted

Wow, that's terrible, I hope it does, too! I had only been gluten-free for about 4 days when I got it dyed and it was blindingly painful, my scalp was soooooo sensitive and I ended up with scabs and dry scalp...I hear that can happen with bleach sometimes...but I can put up with a lot of pain and it was pretty much unbearable. If I don't start feeling better on the very limitied diet that I'm on now then I imagine I won't be dying again and will be changing shampoos and scrubbing my house from top to bottom I guess :P

Not only is this disease nasty, painful, and a lot of time just plain gross...it is also a LOT of work!!! :blink:

That's what happened to me. I have been coloring my hair for years, no problems, but during the last year, my scalp went crazy. Sores, beet red, itchy, peeling...gosh, I hope yours "behaves" for you. the real bummer is...it grew in gray/white :blink: YUCK and it's so thin right now from malabsorption...I'm not happy about it at all.

I hear you. I just had to eliminate MORE foods. Pretty soon, I'll be down to lettuce and water. :angry:

This disease sucks.

I try to focus on how much better I'm going to feel in the coming months after years in agony... :unsure:

Anything will be better than the way I was! :)

Fire Fairy Enthusiast
Fire Fairy
Posted

I had that spaced out feeling for years. Thankfully mine is gone now that I've been gluten free. I hope yours passes soon.

That's what happened to me. I have been coloring my hair for years, no problems, but during the last year, my scalp went crazy. Sores, beet red, itchy, peeling...gosh, I hope yours "behaves" for you. the real bummer is...it grew in gray/white :blink: YUCK and it's so thin right now from malabsorption...I'm not happy about it at all.

I hear you. I just had to eliminate MORE foods. Pretty soon, I'll be down to lettuce and water. :angry:

This disease sucks.

I try to focus on how much better I'm going to feel in the coming months after years in agony... :unsure:

Anything will be better than the way I was! :)

One of my friends thought a picture of me with my new natural hair color was a photo of my mom (she's in her 70's I'm in my 30's). Another friend said, "When are you going to dye your hair again, you look old?" Oh well at least now I don't feel old! :)

IrishHeart Veteran
IrishHeart
Posted

I had that spaced out feeling for years. Thankfully mine is gone now that I've been gluten free. I hope yours passes soon.

One of my friends thought a picture of me with my new natural hair color was a photo of my mom (she's in her 70's I'm in my 30's). Another friend said, "When are you going to dye your hair again, you look old?" Oh well at least now I don't feel old! :)

The spacey thing is gradually subsiding for me...thanks for telling me it has gone away you-- :) it's encouraging! As for the hair, I can learn to accept the grey/white thing IF it would just grow in some more!!...sigh...

and yes, I am all for not feeling like I'm older than my very active Mom (she's 84 and still goes to the gym 3X a week, cardio kick boxes, uses a stair master & lifts weights!!.. ):blink: ..I'm so weak I can't lift a bag of potatoes and climbing stairs is exhausting....oh well, time will heal me!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,106
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.