Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Intolerance, Does This Sound Like Celiac?


kait-o

Recommended Posts

kait-o Newbie

This past semester of school I have been struggling with illness on and off again. I've been to the university doctor who is at this point boggled. It doesn't help that I have to eat dorm food.

When I first started feeling bad, I went to the doctor with sharp abdominal pain, fatigue and headache. I felt like I'd been hit by a bus. Doc thought it was a hernia or a issue with my gallbladder I had to get an ultrasound. I had neither a hernia or gallbladder issue.

I went back to the doctor when the pain didn't cease to exist. He thought that maybe I had something wrong with my ribs or a possible gluten allergy.

I decided to cut gluten out of my diet and found that it had worked. For about four weeks my pain was relieved until i suspect I had eaten something with a bit of gluten and was writhing in pain just below my ribs and in my upper back. This has happened one other time, just a couple days ago.

Other symptoms:

headache

bloatedness

tired

nausea

joint pain

poor blood circulation

itchy scalp

dry skin

bad, chipping flaky nails

and undulating weight gain and loss

irritable

gassy

not able to focus in class or to others

sensitivity to bright light

my mother is scheduling me an appointment with my own doctor when i go home for spring break. do i really need to be eating gluten for more than a month for it to be detected in an actual test?

please help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



etta694 Explorer

Others who have been the testing route will fill in here but from what I understand, yes, you need to be eating gluten for the antibodies to show up.

Some of your symptoms are very much like mine. I have had a lot of discomfort or pain in under my ribs and under my shoulder blade in the back. Also bloating, constipation, exhaustion, feeling unwell (I don't even know how to describe it), foggy thinking, dry skin, and I also had a cough that wouldn't go away. The clue here is that cutting out gluten worked. That's how I figured it out too.

So you really need to have a diagnosis? You may be the best 'diagnoser'. :)

Now that I am gluten free I feel so much better and Zantac takes care of the pain in the back and under the ribs.. it only bothers me intermittently now.

You'll have more good input so for now, wish you the best.

kait-o Newbie

Others who have been the testing route will fill in here but from what I understand, yes, you need to be eating gluten for the antibodies to show up.

Some of your symptoms are very much like mine. I have had a lot of discomfort or pain in under my ribs and under my shoulder blade in the back. Also bloating, constipation, exhaustion, feeling unwell (I don't even know how to describe it), foggy thinking, dry skin, and I also had a cough that wouldn't go away. The clue here is that cutting out gluten worked. That's how I figured it out too.

So you really need to have a diagnosis? You may be the best 'diagnoser'. :)

Now that I am gluten free I feel so much better and Zantac takes care of the pain in the back and under the ribs.. it only bothers me intermittently now.

You'll have more good input so for now, wish you the best.

thanks for your input etta! i really appreciate it and it's good to hear that i'm not the only one with these symptoms.

etta694 Explorer

If you explore the forum you will see that at the bottom of the posts some members have posted their history with symptoms and medical steps taken. It makes for very 'cathartic' reading.. your symptoms are bound to be on others bios. They sound so familiar. If you don't get enough info - repost. See Ya :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.