Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iga Confusion

Abalou

Recommended Posts

Abalou Newbie
Abalou
Posted

Hi, new to the forums and looking for some direction before a "routine follow up appt to discuss my results on April 14". I started going to a new doctor that decided to investigate symptoms that I've had most of my life and she ordered a CBC w/ diff, complete GI panel, and IgG food sensitivity test.

Among other odd things, my Total Intestinal SIgA (stool) was <1 mg/dL. I thought this was suggestive of a serum IgA deficiency as well (serum levels have not been tested), but I tested positive for Gliadin AB, SIgA (saliva)16.

I thought that if a person was IgA deficient, then they shouldn't be able to test positive on a gluten intolerance test like that. Maybe I don't understand how the testing works??? I've done a lot of reading on IgA and can't find anything about this.

Other things to note are low WBC, high ammonia, high alkaline phosphatase, vitamin D deficient. Family history of autoimmune disease, 1 kid w/ ADHD, 1 kid diagnosed with "toddler diarrhea".

Never been diagnosed for celiac or gluten intolerance before...what other testing should I ask for? Thank you so much in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Igg postive Rookie
Igg postive
Posted

Hi, new to the forums and looking for some direction before a "routine follow up appt to discuss my results on April 14". I started going to a new doctor that decided to investigate symptoms that I've had most of my life and she ordered a CBC w/ diff, complete GI panel, and IgG food sensitivity test.

Among other odd things, my Total Intestinal SIgA (stool) was <1 mg/dL. I thought this was suggestive of a serum IgA deficiency as well (serum levels have not been tested), but I tested positive for Gliadin AB, SIgA (saliva)16.

I hear your frustration with the results of the test you have had. An Endo tested my blood for a full Celiac Panel. From the results of the Celiac Panel blood tests I have seen on this forum gluten intolerance results can have many different results. Do you have symptoms that would lead you to believe that you might have gluten intolerance?

Abalou Newbie
Abalou
Posted
  • Author

I hear your frustration with the results of the test you have had. An Endo tested my blood for a full Celiac Panel. From the results of the Celiac Panel blood tests I have seen on this forum gluten intolerance results can have many different results. Do you have symptoms that would lead you to believe that you might have gluten intolerance?

I have always had symptoms of IBS. Diarrhea, bloating, etc. When I was 12 I began to get cold urticaria which is autoimmune. It also suggests that I have a leaky gut. After having our first child, I began to get dermagraphism and was told by a dermatologist to avoid foods high in histamine. I have worse cystic acne now at 29 than I did at 16 and it won't clear up. Over the past couple of years I've slowly gotten other odd symptoms. Frequent nausea, mild hairloss, dandruff. Most recently, I've had a hard time focusing and I feel "zoned out" most of the time. Fatigue has increased, but I have a hard time falling asleep at night. A year ago I had low platelets in my CBC, but was told by the lab that the low platelets were cancelled out by the high mpv.

Sorry, not a pretty picture, huh? I am stumped! Thank you so much for your reply! Hopefully those wiser than I will have some good suggestions/ advice.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,428
    • Most Online (within 30 mins)
      7,748
    Nancy lang adler
    Newest Member
    Nancy lang adler
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Major Glutening

      By knitty kitty · Posted

      So sorry to hear you are going through this!   What OTC med did you take?  
    • knitty kitty
      Struggling to get into a good pattern

      By knitty kitty · Posted

      Yep,yep,yep, called it from experience.  I've lived through SIBO and Candida myself.  I get a different sorts of reactions to dairy, high sugar consumption, and gluten.  I react to Casein, the protein in dairy.   Try the AIP diet.  Dr. Sarah Ballantyne designed it and is a Celiac herself.  Her book, the Paleo Approach, has been most helpful.
    • knitty kitty
      Gluten Allergy

      By knitty kitty · Posted

      Yes, I know.   Without sufficient Folate, Cobalamine, and Pyridoxine, the body can't get rid of high homocysteine levels.  High homocysteine levels make one restless, interferes with sleep and resembles ADHD symptoms.  High homocysteine levels occur in Celiac Disease.  Chronic high histamine levels lead to high homocysteine levels. Impact of supplementation with vitamins B6 , B12 , and/or folic acid on the reduction of homocysteine levels in patients with mild cognitive impairment: A systematic review https://pubmed.ncbi.nlm.nih.gov/34058062/ Homocysteine, Pyridoxine, Folate and Vitamin B12 Levels in Children with Attention Deficit Hyperactivity Disorder https://pubmed.ncbi.nlm.nih.gov/30267523/ Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/ Prevalence of hyperhomocysteinemia in adult gluten-sensitive enteropathy at diagnosis: role of B12, folate, and genetics https://pubmed.ncbi.nlm.nih.gov/15952099/ Homocysteine, Vitamins B6 and Folic Acid in Experimental Models of Myocardial Infarction and Heart Failure-How Strong Is That Link? https://pubmed.ncbi.nlm.nih.gov/35454125/
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      You called it @knitty kitty.  I went to another health care provider for another opinion, and based on some tests they did, they suggested I might also be dealing with a fungal issue (candida and/or mold).  I saw that you mentioned before in this chain that some people on this forum also get Candida infections.  So it seems that I am possibly dealing that issue in my gut as well. I think some of the symptoms that I've been not able to understand now make a lot of sense within this context (such as why eating dairy and sugar sometimes causes me to get headaches, joint pain, chills, feel like I have the flu... if these things are making the candida infection worse by feeding the candida, and then my body responds by trying to fight it off, then I basically am fighting off an infection, which is exactly what it feels like).  The flu-like reaction that I get when I eat dairy is a distinct reaction than the one I get from getting glutened (which is also bad, but different: headache, sharp abdominal pains, gas, diarrhea). That's what made me think there was something else at play. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I'm concerned about calcium.  I don't think I'm getting enough especially since I ended up having to get off dairy when I went gluten free.  However, if you have too much calcium, it can deposit in the wrong places and you can get thinks like bone spurs.  I'd like find a decent supplement for that.  Was thinking of looking into the algae based calcium supplements since they're more natural than some of the others available, but seem rather expensive.  When possible, I try supplement with food sources.  One or two Brazil nuts usually have the full RDA for selenium.  One Barbados cherry has the daily RDA for vitamin C.  I also use seaweed to help supplement iodine since I don't use iodized salt.
×
×
  • Create New...