Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Tests Without Reasurance


rainbow

Recommended Posts

rainbow Newbie

help!!

my stomac has been upset (have to use restroom all the time an have latly been practicly attached to the restroom) for about a year and now im being seen by a gastrologist.

he has signed me up for like all the tests posable in a 3 week period without really discussing why their done an im very nervous and VERY enbarrassed by having to get a colonoscopy and endooscopy (mostly the colon..).

this seems like a very serious thing to do and he just wouldnt tell me really how its done and kept refering to the worst cases he's seen (for no reason)

i would just like to know why its done and if it is scary or not

thanks a bunch


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

You know....You've got to be comfortable with what's being done to your body. You really need to tell your doctor how you feel about what's going on and what he's planning for you. You don't have to submit to every test suggested by a dr. You need to make the decision to accept the tests, not feel forced to undergo them without any real understanding of why. You decide to accept the tests offered when you fully understand why their being offered and not before then. Tell him you feel uninformed and unable to make the DECISION to submit to the testing. This is not his decision, it's your's. Good luck- be strong!

mytummyhurts Contributor

I've never had a colonoscopy, but I have had the endoscopy and I can tell you that it's really not bad. I was very nervous too, because the idea of somebody sticking a tube down your throat and into your intestines is scary. But I don't remember anything of the procedure except being brought into the room and being hooked up to some machines (finger pulse sensor, nostril oxygen tubes) and then I woke up and my mom took me home and then I slept. Really, I recall it as positive because the drug they give made me feel nice and relaxed and it made me sleep deeply. Some people recall the bad tasting spray they give you to numb your throat, but either they didn't do this to me or I don't remember it. The drug can make you forget things that happened right before you fell asleep.

julie5914 Contributor

Colonoscopy is harder than endoscopy IMO (I have never had endoscopy though) because you aren't given anything to sedate you that strongly. Sometimes they give you a sedative - you may want to ask for that. The worst part is cleaning out - you basically stay up all night cleaning everything out for the procedure and it is no fun.

Colonscopy is a little embarassing and uncomfortable, but just keep telling yourself that the doctors do it all the time. They are not embarassed, and there is no reason you should be. There is very little chance you will be in real pain; it is more like discomfort. I think it is worth doing when you have so many digestive problems - it gives peace of mind to see with your own eyes that your colon is healthy (if it is, and if it isn't I imagine it gives motivation to start treatment and confirmation of a diagnosis). Search the internet for how it is done and what to expect - that is what I did and it made it much easier. If you indicate that you are in too much discomfort or any pain, they will stop - they are not in the business of torture. :)

judy05 Apprentice
help!!

    my stomac has been upset (have to use restroom all the time an have latly been practicly attached to the restroom) for about a year and now im being seen by a gastrologist.

he has signed me up for like all the tests posable in a 3 week period without really discussing why their done an im very nervous and VERY enbarrassed by having to get a colonoscopy and endooscopy (mostly the colon..).

  this seems like a very serious thing to do and he just wouldnt tell me really how its done and kept refering to the worst cases he's seen (for no reason)

        i would just like to know why its done and if it is scary or not

            thanks a bunch

<{POST_SNAPBACK}>

You didn't say how old you are. Most doctors believe that everyone should have a "scope" of both areas at least once in their life, especially if you are over 50. These are diagnosing tools and have prevented a lot of diseases like colo-rectal cancer, lymphoma, etc. Anyone presenting with intestinal problems needs to have these done to rule out serious problems. Try to think of it as a screening such as mammograms and pap tests. No one likes these procedures but they need to be done. Neither of these, colonoscopy or endoscopy, are life-threatening procedures,

the nurses try to make it it as stressfree as possible. The prep for the colonoscopy

is a pain, but it is necessary for the doctor to look at your colon when it is free of fecal matter. The endoscopy only takes about 20 min, they start an IV, spray your throat to numb it, turn you on your side. I can't even remember the tube going down. You are not deeply sedated like in regular surgery and you are usually awake before you leave the room. You can leave as soon as you are able to swallow and your vital signs are OK.

Don't be afraid to have these done, if you don't you might imagine all kinds of things wrong with you. When I got sick i really thought I had cancer,(I always think the worst). After the scopes I had a picture of my problem and I was so relieved.

The doctor has to be honest with you about the procedure and the risks involved. Afterwards they give you a list of things to watch for after you go home. Nothing is risk-free and they have to explain it to you. If you aren't comfortable ask him to call you to explain the procedure. That's what they are being paid for!

rainbow Newbie

hey thanks mrs. judy

yeah i just got my 2nd round of blood work done so the procedures will be postponed untill the results .

i talked with the doctor longer an he said it will be alright if we wait till we see the blood work results. but i just looked on some websites an i think ill be pretty ok with it

but yeah i realize it will be better to get all the stuff done than to be sick forever.

oh and im 16 years old

and i was wondering also if along with going to the bathroom very fequently is bad nausia also a symptom alot of people get with gluten problems?

judy05 Apprentice
hey thanks mrs. judy

yeah i just got my 2nd round of blood work done so the procedures will be postponed untill the results .

  i talked with the doctor longer an he said it will be alright if we wait till we see the blood work results. but i just looked on some websites an i think ill be pretty ok with it

but yeah i realize it will be better to get all the stuff done than to be sick forever.

oh and im 16 years old

    and i was wondering also if along with going to the bathroom very fequently is bad nausia also a symptom alot of people get with gluten problems?

<{POST_SNAPBACK}>

Hi Rainbow,

Glad to hear that things are moving along. Don't be afraid of these procedures, most of us have had one or both done. Yes, nausea is another symptom of gluten intolerance. Actually there are over 200 symptoms, I'm sure someone on here can direct you to them. I myself had a lot of nausea, dizziness, diarrhea and stomach pain. I found out that I have severe acid reflux (from having the Endoscopy) and this very often occurs in Celiacs and can be the cause of the nausea. I never had a lot of heartburn but the damage was severe and I wasn't aware of it. I also had a lot of anxiety, never knowing when or where the attacks would occur. I knew where every restroom was in the stores. Hope everything works out for you. Just remember you have to keep eating gluten until the tests are done.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jknnej Collaborator

Don't worry-I had both of these tests within the past year and it is so easy!

There is no pain involved. I don't know what doctor the other poster here had, but my doctors had me OUT for my colonoscopy. Just liike the endocscopy. I remember absolutely nothing about either procedure, or even the car ride home.

Other than them putting in an IV which is just like getting blood drawn, there was no pain whatsoever during either of these procedures.

You do have to cleanse the night before the test for the colonoscopy but that's more inconvenient. You get hungry and have to go to the bathroom all night. But it's not painful. So please don't worry!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

    2. - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    3. - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

    5. - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748

    LG2
    Newest Member
    LG2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.