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Can Celiacs Use A Heat Bag Made Of Wheat?

MissBonnie

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MissBonnie Apprentice
MissBonnie
Posted

it sounds like a strange question, but can we use hot wheat bags? when i get pain i want to use one ut its made with wheat so im apprehensive... :huh:

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mushroom Proficient
mushroom
Posted

I use one often. Haven't noticed any adverse effects. It's not an allergy we have - it's an autoimmune disease from ingesting it.

kareng Grand Master
kareng
Posted

We have made them at our house but we fill them with rice.

MissBonnie Apprentice
MissBonnie
Posted
  • Author

thanks very much! i will continue to use it :)

  • 8 months later...
johnbeau Newbie
johnbeau
Posted

Hi,

My mother is 90 and for the past few years has developed Eczema like rash (on top of being Celiac, nearly blind, almost deaf and fragile this seems like the last straw!) I was wondering if her continued use of a wheat bag could be aggravating / causing this. Having read the above it seems unlikely but maybe the rice bags would be a safer bet (hot water bottles are too dangerous in terms of filling up)...any thoughts on if this is misguided or where I could buy wheat bags? John

kareng Grand Master
kareng
Posted

Hi,

My mother is 90 and for the past few years has developed Eczema like rash (on top of being Celiac, nearly blind, almost deaf and fragile this seems like the last straw!) I was wondering if her continued use of a wheat bag could be aggravating / causing this. Having read the above it seems unlikely but maybe the rice bags would be a safer bet (hot water bottles are too dangerous in terms of filling up)...any thoughts on if this is misguided or where I could buy wheat bags? John

We make our own rice bags out of flannel fabric. The main problem with them is that they are very heavy. I think there are now packs like an ice pack but that you microwave.

Here's one kind

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Cathey Apprentice
Cathey
Posted

I use to use the wheat kind but the smell in the microwave bothered me and it just got old. Last year I brought the Carex Bed Buddy around $8-10 it's filled with oat and rice and you don't have to put water in the microwave. You can also freeze it or microwave.

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UKGail Rookie
UKGail
Posted

I couldn't use these as hot gluten burns my sinuses, (I had chronic sinusitis which is only very slowly subsiding now I am gluten-free). If I don't get away from the smell sharpish I start to get "glutening" symptoms. I guess this might be a wheat allergy reaction, but I haven't been able to have any tests for this yet.

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      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
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