Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting 3Rd Week Of Gluten Free Lifestyle


UpbeatPete

Recommended Posts

UpbeatPete Explorer

I can certainly tell a difference in my overall health since going gluten free; however, I notice somedays are just a lot better than others.

I know when a lot of people first start their gluten free diet, they must also go lactose free. As I posted on here before, I don't have stomach problems, but more neurological; headaches, light sensitivity, muscle fatigue and weakness, tiredness, etc. For a few days I was making major strides to normality; however, since Sunday I seem to have taken a couple steps back. My sister and brother-in-law made a birthday lunch for me on Sunday;

grilled chicken with only salt and olive oil (on foil)

grilled corn on the cob (on foil)

peppers in an iron skillet (which I kindly declined as I have saw that eating something prepared in an iron skillet may not be the best idea)

Gluten Free Cake (which made me pretty nervous to try)

And Homemade Ice Cream

Could lactose also cause neurological problems as well? Or could it be CC from something else?

I am very pleased with the progress I have made so far, but was just curious as to whether this was normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Poppi Enthusiast

It sounds like your symptoms are similar to mine. I have to ingest a fairly large amount of gluten to get digestive symptoms but the slightest contamination brings back the muscle aches and the neurological symptoms. Everyone is different but I have actually been digesting dairy and corn better than ever before since I went gluten free.

If the meal was prepared at their house then it could be a contamination issue - my guess would be the homemade ice cream or the gluten free cake. Was the cake baked in a non-stick pan previously used for gluten cakes? Was the ice cream made from a cooked custard base that was cooked in a non stick gluten-contaminated pot? Was it made in an ice cream maker that has previously made cookies and cream ice cream? Were either of them stirred with a contaminated wooden spoon? That would be enough to bring on several days of fatigue, brain fog and soreness for me.

UpbeatPete Explorer

Thanks for the reply Poppi.

It is interesting that you mention corn. I was eating corn chips, supposedly gluten free for a few days. I did notice that I started feeling even better when I stopped eating them. Then on both Saturday and Sunday, I had corn on the cob. My mom made a slight mistake boiling the corn in the pot she usually makes pasta in. I am guessing I might have gotten some CC from that. Is there a chance that I need to take a litte time away from corn as well?

Since they did prepare it at their place, there is a small chance of CC. I just asked her what type of cake pan she used and she said one with a teflon coating, could that be a problem? Can plastic spatulas and cooking utensils hold on to gluten residue?

Poppi Enthusiast

Yes, yes and yes.

You might need a break from corn. Try avoiding it for a couple weeks and then trying it again.

The teflon pot is the most likely culprit. I had to get rid of all my pots and baking pans and replace with with stainless steel and glass as I was getting glutened from the residue that just can't be washed out of the pots.

Plastic and wood utensils can hold on to gluten as well.

UpbeatPete Explorer

Thanks Poppi

I will definitely give up corn for a little while, along with lactose as well. I hadn't thought of plastic untensils until yesterday, so I will be making that change as well.

Thanks for your help Poppi! I am learning more and more each day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    3. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      38

      Blood results

    4. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    5. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,466
    • Most Online (within 30 mins)
      7,748

    Bigbear
    Newest Member
    Bigbear
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Remember that damage to the small intestine can be microscopic and patchy. Deficiency in Thiamine can result in Gastrointestinal Beriberi.  The symptoms are the same as a glutening!    Clinical profile of patients presenting with thiamine-responsive upper-gastrointestinal upset: A pointer toward gastric beriberi https://pubmed.ncbi.nlm.nih.gov/35810577/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dental problems can result in vitamin and mineral deficiencies due to Malabsorption in Celiac Disease. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/
    • trents
      Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
    • knitty kitty
      Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape.   This "meat glue" is produced by bacteria and called microbial transglutaminase.  It's the same structually as tissue transglutaminase that our bodies produce in response to gluten.  Microbial transglutaminase provokes the same autoimmune reaction in our bodies as if we had eaten gluten.   Microbial transglutaminase is also used in dairy products like yogurt.   Bacon is high in histamine.  Eating high histamine foods can cause continuing gastrointestinal symptoms.  A low histamine diet helps. Processed gluten free processed foods are not enriched with vitamins and minerals like gluten containing products are.   Deficiencies in Thiamine B1, Niacin B3, and  Vitamin C can also result in gastrointestinal symptoms.   Blood tests for B vitamins are not accurate because they don't measure the amount of a vitamin stored inside cells.  The blood is a transportation system delivering vitamins from the digestive tract around the body.  What's on a truck doesn't tell you that the warehouse is almost empty.   Supplementing with B vitamins is important! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/
    • knitty kitty
      How clean is her gluten free diet?  Is dairy included? Does she eat out?  SIBO?  Thiamine deficiency presenting as Gastrointestinal Beriberi?
    • knitty kitty
      There's more essential vitamins than B12 and Vitamin D!   Thiamine is B1.  Thiamine deficiency causes insomnia. Thiamine deficiency causes changes in brain function resulting in anxiety, insomnia, depression and dementia.  The brain uses more thiamine when stressed emotionally or physically.   Interesting Reading: Subclinical Thiamine deficiency causes anxiety, insomnia and depression... https://www.psychiatryredefined.org/running-on-empty-subclinical-thiamine-deficiency-is-common-and-causes-depression/#:~:text=Early signs of low thiamine,low appetite%2C and sleep disruption. Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Sleep and indolamine alterations induced by thiamine deficiency https://pubmed.ncbi.nlm.nih.gov/6182942/ Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.