Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting 3Rd Week Of Gluten Free Lifestyle


UpbeatPete

Recommended Posts

UpbeatPete Explorer

I can certainly tell a difference in my overall health since going gluten free; however, I notice somedays are just a lot better than others.

I know when a lot of people first start their gluten free diet, they must also go lactose free. As I posted on here before, I don't have stomach problems, but more neurological; headaches, light sensitivity, muscle fatigue and weakness, tiredness, etc. For a few days I was making major strides to normality; however, since Sunday I seem to have taken a couple steps back. My sister and brother-in-law made a birthday lunch for me on Sunday;

grilled chicken with only salt and olive oil (on foil)

grilled corn on the cob (on foil)

peppers in an iron skillet (which I kindly declined as I have saw that eating something prepared in an iron skillet may not be the best idea)

Gluten Free Cake (which made me pretty nervous to try)

And Homemade Ice Cream

Could lactose also cause neurological problems as well? Or could it be CC from something else?

I am very pleased with the progress I have made so far, but was just curious as to whether this was normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Poppi Enthusiast

It sounds like your symptoms are similar to mine. I have to ingest a fairly large amount of gluten to get digestive symptoms but the slightest contamination brings back the muscle aches and the neurological symptoms. Everyone is different but I have actually been digesting dairy and corn better than ever before since I went gluten free.

If the meal was prepared at their house then it could be a contamination issue - my guess would be the homemade ice cream or the gluten free cake. Was the cake baked in a non-stick pan previously used for gluten cakes? Was the ice cream made from a cooked custard base that was cooked in a non stick gluten-contaminated pot? Was it made in an ice cream maker that has previously made cookies and cream ice cream? Were either of them stirred with a contaminated wooden spoon? That would be enough to bring on several days of fatigue, brain fog and soreness for me.

UpbeatPete Explorer

Thanks for the reply Poppi.

It is interesting that you mention corn. I was eating corn chips, supposedly gluten free for a few days. I did notice that I started feeling even better when I stopped eating them. Then on both Saturday and Sunday, I had corn on the cob. My mom made a slight mistake boiling the corn in the pot she usually makes pasta in. I am guessing I might have gotten some CC from that. Is there a chance that I need to take a litte time away from corn as well?

Since they did prepare it at their place, there is a small chance of CC. I just asked her what type of cake pan she used and she said one with a teflon coating, could that be a problem? Can plastic spatulas and cooking utensils hold on to gluten residue?

Poppi Enthusiast

Yes, yes and yes.

You might need a break from corn. Try avoiding it for a couple weeks and then trying it again.

The teflon pot is the most likely culprit. I had to get rid of all my pots and baking pans and replace with with stainless steel and glass as I was getting glutened from the residue that just can't be washed out of the pots.

Plastic and wood utensils can hold on to gluten as well.

UpbeatPete Explorer

Thanks Poppi

I will definitely give up corn for a little while, along with lactose as well. I hadn't thought of plastic untensils until yesterday, so I will be making that change as well.

Thanks for your help Poppi! I am learning more and more each day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.