Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting 3Rd Week Of Gluten Free Lifestyle


UpbeatPete

Recommended Posts

UpbeatPete Explorer

I can certainly tell a difference in my overall health since going gluten free; however, I notice somedays are just a lot better than others.

I know when a lot of people first start their gluten free diet, they must also go lactose free. As I posted on here before, I don't have stomach problems, but more neurological; headaches, light sensitivity, muscle fatigue and weakness, tiredness, etc. For a few days I was making major strides to normality; however, since Sunday I seem to have taken a couple steps back. My sister and brother-in-law made a birthday lunch for me on Sunday;

grilled chicken with only salt and olive oil (on foil)

grilled corn on the cob (on foil)

peppers in an iron skillet (which I kindly declined as I have saw that eating something prepared in an iron skillet may not be the best idea)

Gluten Free Cake (which made me pretty nervous to try)

And Homemade Ice Cream

Could lactose also cause neurological problems as well? Or could it be CC from something else?

I am very pleased with the progress I have made so far, but was just curious as to whether this was normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Poppi Enthusiast

It sounds like your symptoms are similar to mine. I have to ingest a fairly large amount of gluten to get digestive symptoms but the slightest contamination brings back the muscle aches and the neurological symptoms. Everyone is different but I have actually been digesting dairy and corn better than ever before since I went gluten free.

If the meal was prepared at their house then it could be a contamination issue - my guess would be the homemade ice cream or the gluten free cake. Was the cake baked in a non-stick pan previously used for gluten cakes? Was the ice cream made from a cooked custard base that was cooked in a non stick gluten-contaminated pot? Was it made in an ice cream maker that has previously made cookies and cream ice cream? Were either of them stirred with a contaminated wooden spoon? That would be enough to bring on several days of fatigue, brain fog and soreness for me.

UpbeatPete Explorer

Thanks for the reply Poppi.

It is interesting that you mention corn. I was eating corn chips, supposedly gluten free for a few days. I did notice that I started feeling even better when I stopped eating them. Then on both Saturday and Sunday, I had corn on the cob. My mom made a slight mistake boiling the corn in the pot she usually makes pasta in. I am guessing I might have gotten some CC from that. Is there a chance that I need to take a litte time away from corn as well?

Since they did prepare it at their place, there is a small chance of CC. I just asked her what type of cake pan she used and she said one with a teflon coating, could that be a problem? Can plastic spatulas and cooking utensils hold on to gluten residue?

Poppi Enthusiast

Yes, yes and yes.

You might need a break from corn. Try avoiding it for a couple weeks and then trying it again.

The teflon pot is the most likely culprit. I had to get rid of all my pots and baking pans and replace with with stainless steel and glass as I was getting glutened from the residue that just can't be washed out of the pots.

Plastic and wood utensils can hold on to gluten as well.

UpbeatPete Explorer

Thanks Poppi

I will definitely give up corn for a little while, along with lactose as well. I hadn't thought of plastic untensils until yesterday, so I will be making that change as well.

Thanks for your help Poppi! I am learning more and more each day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,660
    • Most Online (within 30 mins)
      7,748

    Dr. Gunn
    Newest Member
    Dr. Gunn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.