Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official


Poppi

Recommended Posts

Poppi Enthusiast

What the heck? I love coffee. Love is in fact not a strong enough word to describe how I feel about coffee. Sweet brown nectar of the gods.

But I get this weird mini-gluten reaction to it. I'm fine, I drink a cup of coffee and about half way through I feel super sleepy, my stomach just get unsettled and nauseous and my back pain starts to flare up. It only lasts a couple of hours and luckily it passes and I don't deal with 5-10 days of inflammatory symptoms like I do with gluten but it still makes me sad.

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

What the heck? I love coffee. Love is in fact not a strong enough word to describe how I feel about coffee. Sweet brown nectar of the gods.

But I get this weird mini-gluten reaction to it. I'm fine, I drink a cup of coffee and about half way through I feel super sleepy, my stomach just get unsettled and nauseous and my back pain starts to flare up. It only lasts a couple of hours and luckily it passes and I don't deal with 5-10 days of inflammatory symptoms like I do with gluten but it still makes me sad.

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

Sounds like the trial separation is going to end in a divorce. No more coffee for Sara! :(

kiwibird75 Newbie

Oh Poppi! I feel your pain :( I go from a normal tummy to massive D with coffee, especially if it has milk in it (I know, duh, lactose...) but the coffee had to go. My coffee guy is probably noticing the lack of funds!

Tea is better for me, but not nearly as satisfying at the moment, but hopefully with time... right???

Chin up chicky - There are worse things in the world.

xx

K

txplowgirl Enthusiast

Hi poppi, I have never been able to drink coffee because it also made me sleepy and sick to my stomach. I found that it has something called tannins in it as well as in cigarettes too. Anything with tannins in it does that to me.

adab8ca Enthusiast

crap crap crap

that is too bad...but at least you know (small teeny consolation)

Darn210 Enthusiast

Poppi, just wanted to let you know that you are not alone as I have seen this on the board before (I'm not actually a coffee drinker, I prefer tea). I have seen that some people have successfully reintroduced coffee after giving their guts a chance to heal. Also, some have successfully switched to decaf instead as caffiene was the problem. You might want to try a milder roast or even just go with 1/2 a cup . . . but you might want to wait until you've been gluten free a little longer. I don't want to get your hopes up, just wanted to list a couple of possibilites.

Lisa Mentor

\

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

What's the shop across the street? Does home brewed bother you also?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jungle Rookie

Some coffee shops put msg in their coffee.

ElseB Contributor

I've been gluten free for 3 years, very strict adherence to the diet, and now I'm suddenly having problems with coffee. It started last week. I get bad gas before I"m even halfway through the cup. I don't drink a lot of coffee, at most 4 cups a week, but I ENJOY those 4 cups!!! I like tea too, but I WANT MY COFFEE!!! I think I'll try a trial separation...maybe my gut is just cranky at the moment.

Poppi Enthusiast

What's the shop across the street? Does home brewed bother you also?

It's a Tim Horton's. I've also tried a local shop that roasts their own beans and a couple varieties of the Starbucks Via packets. Same reaction every time.

I haven't made any coffee at home since a month before I went gluten free because I was hooked on the Caramel Starbucks Via.

mushroom Proficient

I haven't had any caffeine since 1972 :o but I drink decaf capucchinos all the time :lol: For me, it's the caffeine, so I drink herbal teas also, no coke!!

kareng Grand Master

It's a Tim Horton's. I've also tried a local shop that roasts their own beans and a couple varieties of the Starbucks Via packets. Same reaction every time.

I haven't made any coffee at home since a month before I went gluten free because I was hooked on the Caramel Starbucks Via.

You have a Tim Hortons across the street? Does that greasy donut smell drive you nuts? Not in a " I want donut" way. We loved them when we have been in Canada & not gluten-free, but they smell greasy.

Maybe give it a couple of months and try some plain home made coffee?

kareng Grand Master

Some coffee shops put msg in their coffee.

Who puts msg in coffee? What? Aghhhh!

But really, who does that?

Poppi Enthusiast

You have a Tim Hortons across the street? Does that greasy donut smell drive you nuts? Not in a " I want donut" way. We loved them when we have been in Canada & not gluten-free, but they smell greasy.

Maybe give it a couple of months and try some plain home made coffee?

Well it's not exactly across the street more like kitty corner from our back yard and there is an Earl's in between the Tim's and our house so we mostly smell their wood burning ovens which is quite nice.

  • 4 weeks later...
juj2003 Newbie

Ohh- My first post here, and something I can actually help with (maybe).

If you have access to a Teavanna I would highly recommend their JavaMatte Tea. It is delicious and is reminiscent of coffee (also has the kick).

kareng Grand Master

Ohh- My first post here, and something I can actually help with (maybe).

If you have access to a Teavanna I would highly recommend their JavaMatte Tea. It is delicious and is reminiscent of coffee (also has the kick).

You may have the most significant & important post of the year! :D

Tea that tastes like coffee! :blink:

We will be expecting big things from you now! Welcome!

Adrienne2823 Newbie

After a full year I have just been able to tolerate one type of coffee: Folgers Simply Smooth. Every other type of coffee wrecks my gut so bad...

No Starbucks

No super strong coffee brewed at work either :P

But if you are willing, give the simply smooth a try.

kellynolan82 Explorer

In terms of gluten free, you can never go wrong with long-black! Then you'll know for sure whether it's the impact of gluten :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,992
    • Most Online (within 30 mins)
      7,748

    peza
    Newest Member
    peza
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.