Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Teff Intolerance?


Salem

Recommended Posts

Salem Rookie

I have been struggling for the past several months with celiac-like symptoms. I could not figure out what my problem was. I *know* I am not eating gluten. I was having awful gas and incredibly painful, mucousy D BM's. Most people would go to the Dr, but experience has taught me that Dr's really don't know what to do with stomach problems. I knew it was diet related, and no endoscope or stool sample was going to help me. I had just started drinking protein shakes, and attributed my problems to the shakes. I changed brands 3 times, but no real improvement. I kept changing things in my diet, no rice, no salad, less fiber, no chocolate, more chocolate. No luck.

Finally it dawned on me. Udi's bread. Since it came to Canada, I have been binge eating the stuff. I was so happy to be able to eat bread that was actually like bread. I decided to try cutting it out, and what do you know, I feel fine. I looked at the ingredients tonight to try and see what ingredient could be causing me problems, the only thing listed that I don't usually eat.... teff. Wondering if others have struggles with teff. I did a google search and didn't see much. I'm so sad that I have to say goodbye to Udi.

I am worried that this may be the start of more intolerances. I wonder is there a way to prevent developing more?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

i have "gluten light" symptoms from many of those gluten free breads... dont know if it's potato starch, tapioca starch, or all of the other substitutes in there- i also have gluten symptoms from corn.

i really have to keep my grains/starches to a MINIMUM... rice & quinoa dont seem to bother me ..

the reactions are TOTALLY similar- however- they dont take long to recover from, whereas i got glutened a month ago, and im just now getting back to normal.

Jenniferxgfx Contributor

I think Udi's is a problem for a lot of folks and it's usually because of cross contamination of gluten rather than a problem with the ingredients. (that's not to say it's impossible, just that there's cc.)

Skylark Collaborator

There are a lot of people who say they have trouble with Udi's. I'm lucky - I can eat it. I don't think it's gluten because they are sourcing as carefully as any other gluten-free brand. Of course if you can't tolerate 5ppm, any "gluten-free" bread will be a problem.

My guess with Udi's is that they're using a lot of xanthan gum to get the great texture. It's a pretty good laxative and I bet Udi's uses a little too much for some folks.

bigbird16 Apprentice

I'm allergic to teff. My airways start closing up. Same thing happens with millet. Wish I could eat Udi's whole grain bread. Their white bread I eat with no issues whatsoever. I agree with Skylark, xanthan gum may be more the issue.

sreese68 Enthusiast

The best way to know for sure if it's teff is to buy a bag and eat it by itself. If you don't react to it after a couple of days, then try eating another product that has very few ingredients but include whatever gum Udi's uses. I finally found a muffin mix from Gluten Free pantry that only white rice as the flour. (Brown rice makes me sick.) And I'm using it to test whether xanthum gum bothers my system.

Good luck!

Salem Rookie

I'm allergic to teff. My airways start closing up. Same thing happens with millet. Wish I could eat Udi's whole grain bread. Their white bread I eat with no issues whatsoever. I agree with Skylark, xanthan gum may be more the issue.

Yes, Gluten Free Girl has been writing lately about Xanthan gum and others. I may try the white bread, but I always feel guilty for eating white bread. I didn't grow up on it, and to me, it's like Wonderbread - yuck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

I like how CassP said she has "gluten light" symptoms from gluten free grains. I feel the same way. I went all the way grain free and some nagging symptoms cleared all the way, like minor joint pain, some allergy symptoms and I had increased energy. Since my daughter's been home from school this summer I've been baking a lot more for her meals, and I've started getting into her food. Sure enough the symptoms are back. Right now my eyes are almost swollen shut (but honestly I think that's from eating some cheese last night).

Anyhow, I have noticed that my daughter's (age 8) big D has returned this summer and this morning she's complaining of a sore throat. So, I am questioning teff for sure, but also suspect tapioca starch. We can up the Udi's awhile ago because of the Xantham gum and we don't do corn anyway. I think there are just too many ingredients in that really processed bread to keep track of.

I hope you get your reaction figured out. As for me, I will be returning to my grain free diet. This is no way to live.

modiddly16 Enthusiast

I can't eat Udi's or Teff. My finacee and I (my fiancee is a gluten eating fiend) both had bathroom emergencies while eating Udi's, so I think the laxative effect definitely took toll on our household. I also tried the Teff Flour wraps and had a similar reaction...so I sadly avoid them all!

cvll Apprentice

I made a gluten-free deep dish pizza crust using gluten-free bisquick and almost 2 teaspoons of xanthan gum. Sure enough, the next day or three felt terrible. Bad cramps and diarrhea (not watery, but very slow and soft and many times- sorry tmi!). I am really thinking it's the xanthan gum for me. I can eat one piece of gluten-free bread with xanthan gum in it, but if I eat anymore than that it definitely affects me the same.

sa1937 Community Regular

I made a gluten-free deep dish pizza crust using gluten-free bisquick and almost 2 teaspoons of xanthan gum. Sure enough, the next day or three felt terrible. Bad cramps and diarrhea (not watery, but very slow and soft and many times- sorry tmi!). I am really thinking it's the xanthan gum for me. I can eat one piece of gluten-free bread with xanthan gum in it, but if I eat anymore than that it definitely affects me the same.

Gluten-Free Bisquick already has xanthan gum in it so am curious why you would have to add more. Did you have a recipe that called for an additional amount?

  • 2 years later...
Lynchburg Newbie

Last night I cooked Bobsredmill teff using the stew recipe on the package.  Delicious, but the big D and more this morning.  So, I am wondering if it is this brand or teff itself?  Please let me know if you have experience with either.

Juliebove Rising Star

Some people have reported problems with Bob's Red Mill. 

  • 2 years later...
Jen deNutrients Newbie

Udi's brand also uses sodium carboxymethyl cellulose in many products, a food additive emulsifier that may cause intestinal symptoms. Emulsifiers help stabilize the bread and give it a great texture but the additive may also possibly be emulsifing the intestinal lining. Our intestinal cell walls are lined with electrically active proteins that are shaped somewhat like bottle brushes with a stiff backbone protein handle topped by electrically active bristles that act like magnets that repel each other and help keep the tube shape of the intestine open. So food additive emulsifiers may be disrupting the ability of the intestinal walls to stay open. Xanthum gum is also an emulsifier.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748

    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.