Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Symptoms

Rosey321

Recommended Posts

Rosey321 Newbie
Rosey321
Posted

What are the actual symptoms? I don't have problems other than heartburn, GERD and brusing. Anyone with the same symptoms? The blood test was negitive, but having been on Atkins I know how I feel with and without gluten in my diet. At one time after eating foods containing gluten my stomach burned so bad it hurt to just drink water.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fairy Dancer Contributor
Fairy Dancer
Posted

What are the actual symptoms? I don't have problems other than heartburn, GERD and brusing. Anyone with the same symptoms? The blood test was negitive, but having been on Atkins I know how I feel with and without gluten in my diet. At one time after eating foods containing gluten my stomach burned so bad it hurt to just drink water.

I asked my dr for a test for celiac disease today but obviously I need to have the blood tests done before I get the results back. One of my symptoms is terrible acid reflux and I know that certain foods seem to trigger it more than others such as weetabix, toast etc.

I tried the paleo diet briefly, the lower carb version, and found that my acid reflux vanished. I was also less hungry than when I ate a mostly carb/wheat/bread/pasta/cereals etc based diet (that would be a good thing for me as I tend to over eat and am obese at the present time). Oddly I was also much less grumpy. I noticed after putting wheat back in that I get very irritable after eating it lol.

stellinpa Newbie
stellinpa
Posted

What are the actual symptoms? I don't have problems other than heartburn, GERD and brusing. Anyone with the same symptoms? The blood test was negitive, but having been on Atkins I know how I feel with and without gluten in my diet. At one time after eating foods containing gluten my stomach burned so bad it hurt to just drink water.

Here's a list of symtoms

Open Original Shared Link

Good luck :rolleyes:

lilu Rookie
lilu
Posted

And remember, current estimates indicate for every 1 celiac, there are an additional 5-8 (depending on which research and/or opinion you read) non-celiac gluten intolerants! Just because bloodwork comes back negative, doesn't mean this protein isn't a problem for your system. Trust your gut! Literally and figuratively! ;)

mommida Enthusiast
mommida
Posted

Please work with a doctor. There are other diseases that also fall into these symptoms. The symptoms for Eosinophilic Esophagitus were the same as when my daughter was glutened and GERD. These symptoms suggest you should have an endoscope with biopsy.

Rosey321 Newbie
Rosey321
Posted
  • Author

And remember, current estimates indicate for every 1 celiac, there are an additional 5-8 (depending on which research and/or opinion you read) non-celiac gluten intolerants! Just because bloodwork comes back negative, doesn't mean this protein isn't a problem for your system. Trust your gut! Literally and figuratively! ;)

Thank you so much. I have been eating gluten free and feel so much better. It seems as if gluten free products are now more readily avaiable now. I noticed that 3 of the grocery stores in my area now carry the products. Harris Teeter actually has labels on the shelf noting the gluten free product although they are so much more expensive. After I have dinner I keep waiting for that pain to occur but it dosn't. Life is good.

Rosey321 Newbie
Rosey321
Posted
  • Author

I asked my dr for a test for celiac disease today but obviously I need to have the blood tests done before I get the results back. One of my symptoms is terrible acid reflux and I know that certain foods seem to trigger it more than others such as weetabix, toast etc.

I tried the paleo diet briefly, the lower carb version, and found that my acid reflux vanished. I was also less hungry than when I ate a mostly carb/wheat/bread/pasta/cereals etc based diet (that would be a good thing for me as I tend to over eat and am obese at the present time). Oddly I was also much less grumpy. I noticed after putting wheat back in that I get very irritable after eating it lol.

I have not seen the paleo diet, but I will look it up. Thank you!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rosey321 Newbie
Rosey321
Posted
  • Author

That is quite an extensive list. Thank you so much.

Here's a list of symtoms

Open Original Shared Link

Good luck :rolleyes:

notanothername Newbie
notanothername
Posted

I asked my dr for a test for celiac disease today but obviously I need to have the blood tests done before I get the results back. One of my symptoms is terrible acid reflux and I know that certain foods seem to trigger it more than others such as weetabix, toast etc.

I tried the paleo diet briefly, the lower carb version, and found that my acid reflux vanished. I was also less hungry than when I ate a mostly carb/wheat/bread/pasta/cereals etc based diet (that would be a good thing for me as I tend to over eat and am obese at the present time). Oddly I was also much less grumpy. I noticed after putting wheat back in that I get very irritable after eating it lol.

Oh, I must try a gluten free diet myself then and see if it gets rid of my grumpiness, LOL! My son is on it at the moment. I didn't think I had a problem with it, but maybe I do as I get bad heartburn after wheatabix and heartburn in general a lot of the time - and am quite grumpy;).

Fairy Dancer Contributor
Fairy Dancer
Posted

I have not seen the paleo diet, but I will look it up. Thank you!!!

Basically the full blown Paleo diet consists of no grains, no dairy and no legumes. The theory behind it is that the human body has not evolved to eat these 'neolithic foods' and so has problems digesting them. However, many do a modified version (ie they may take out all grains but still consume some dairy..which I do). Legumes I have never liked much anyway (other than garden peas) so never did eat a lot of those. In short it's a whole food diet...so meat, fish, nuts (except peanuts which are a legume), vegetables, fruits and if you are doing the higher carb version things like parsnips and starchy tubers are included.

Grains were not a regular part of the human diet until agriculture came into practice some 10 thousand years ago. For around 200'000 years before that humans would have consumed mostly meats, vegetables and fruits etc, but not many grains (and certainly not on a daily basis). Starchy tubers would have also been limited (very seasonal) and so the diet tended to be relatively lower in carbs then the diets we eat today. We certainly had no processed foods or a local McDonalds. However, its not the Atkin's diet. Due to the lower carb consumption people can confuse them. The diet includes more carbs etc than Atkin's does.

For practical reasons I do the modified Paleo. I also have a free day where I consume a small amount of processed food as a treat but still avoid anything wheat based since I get horrible stomach pain and gut acid as well as diarrhoea when I consume anything with wheat in. Considering how unwell I feel when I eat them the wheat based foods are not really all that nice to me now and I don't really miss them lol.

Actually I am glad to see the back of wheat in my diet! I never was all that fond of things like pasta and bread, I mostly ate them because the diet industry said they were healthy. And because I was raised on a whole food diet and with a brother who had celiac disease, going gluten and wheat free is like a trip back in time for me. A blast from the past so to speak lol. Whilst I ate small amounts of gluten and wheat as a child most family meals were gluten free so that my brother could eat them. I only started eating more processed, wheat and gluten when I left home. So I have merely gone back to many of the foods I loved as a child. Now I just need to see if I can remember any of my mums old recipes lol.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living...
    2. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sl...
    3. Scott Adams
      - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly c...
    4. Scott Adams
      - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained...
    5. Scott Adams
      - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,363
    • Most Online (within 30 mins)
      7,748
    NAC
    Newest Member
    NAC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Natural remedies

      By Scott Adams · Posted

      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      Gluten and short-term memory.

      By Scott Adams · Posted

      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Reintroduction of Gluten

      By Scott Adams · Posted

      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      High Cost of Gluten-Free Foods

      By Scott Adams · Posted

      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...