Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Symptoms

Rosey321

Recommended Posts

Rosey321 Newbie
Rosey321
Posted

What are the actual symptoms? I don't have problems other than heartburn, GERD and brusing. Anyone with the same symptoms? The blood test was negitive, but having been on Atkins I know how I feel with and without gluten in my diet. At one time after eating foods containing gluten my stomach burned so bad it hurt to just drink water.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fairy Dancer Contributor
Fairy Dancer
Posted

What are the actual symptoms? I don't have problems other than heartburn, GERD and brusing. Anyone with the same symptoms? The blood test was negitive, but having been on Atkins I know how I feel with and without gluten in my diet. At one time after eating foods containing gluten my stomach burned so bad it hurt to just drink water.

I asked my dr for a test for celiac disease today but obviously I need to have the blood tests done before I get the results back. One of my symptoms is terrible acid reflux and I know that certain foods seem to trigger it more than others such as weetabix, toast etc.

I tried the paleo diet briefly, the lower carb version, and found that my acid reflux vanished. I was also less hungry than when I ate a mostly carb/wheat/bread/pasta/cereals etc based diet (that would be a good thing for me as I tend to over eat and am obese at the present time). Oddly I was also much less grumpy. I noticed after putting wheat back in that I get very irritable after eating it lol.

stellinpa Newbie
stellinpa
Posted

What are the actual symptoms? I don't have problems other than heartburn, GERD and brusing. Anyone with the same symptoms? The blood test was negitive, but having been on Atkins I know how I feel with and without gluten in my diet. At one time after eating foods containing gluten my stomach burned so bad it hurt to just drink water.

Here's a list of symtoms

Open Original Shared Link

Good luck :rolleyes:

lilu Rookie
lilu
Posted

And remember, current estimates indicate for every 1 celiac, there are an additional 5-8 (depending on which research and/or opinion you read) non-celiac gluten intolerants! Just because bloodwork comes back negative, doesn't mean this protein isn't a problem for your system. Trust your gut! Literally and figuratively! ;)

mommida Enthusiast
mommida
Posted

Please work with a doctor. There are other diseases that also fall into these symptoms. The symptoms for Eosinophilic Esophagitus were the same as when my daughter was glutened and GERD. These symptoms suggest you should have an endoscope with biopsy.

Rosey321 Newbie
Rosey321
Posted
  • Author

And remember, current estimates indicate for every 1 celiac, there are an additional 5-8 (depending on which research and/or opinion you read) non-celiac gluten intolerants! Just because bloodwork comes back negative, doesn't mean this protein isn't a problem for your system. Trust your gut! Literally and figuratively! ;)

Thank you so much. I have been eating gluten free and feel so much better. It seems as if gluten free products are now more readily avaiable now. I noticed that 3 of the grocery stores in my area now carry the products. Harris Teeter actually has labels on the shelf noting the gluten free product although they are so much more expensive. After I have dinner I keep waiting for that pain to occur but it dosn't. Life is good.

Rosey321 Newbie
Rosey321
Posted
  • Author

I asked my dr for a test for celiac disease today but obviously I need to have the blood tests done before I get the results back. One of my symptoms is terrible acid reflux and I know that certain foods seem to trigger it more than others such as weetabix, toast etc.

I tried the paleo diet briefly, the lower carb version, and found that my acid reflux vanished. I was also less hungry than when I ate a mostly carb/wheat/bread/pasta/cereals etc based diet (that would be a good thing for me as I tend to over eat and am obese at the present time). Oddly I was also much less grumpy. I noticed after putting wheat back in that I get very irritable after eating it lol.

I have not seen the paleo diet, but I will look it up. Thank you!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rosey321 Newbie
Rosey321
Posted
  • Author

That is quite an extensive list. Thank you so much.

Here's a list of symtoms

Open Original Shared Link

Good luck :rolleyes:

notanothername Newbie
notanothername
Posted

I asked my dr for a test for celiac disease today but obviously I need to have the blood tests done before I get the results back. One of my symptoms is terrible acid reflux and I know that certain foods seem to trigger it more than others such as weetabix, toast etc.

I tried the paleo diet briefly, the lower carb version, and found that my acid reflux vanished. I was also less hungry than when I ate a mostly carb/wheat/bread/pasta/cereals etc based diet (that would be a good thing for me as I tend to over eat and am obese at the present time). Oddly I was also much less grumpy. I noticed after putting wheat back in that I get very irritable after eating it lol.

Oh, I must try a gluten free diet myself then and see if it gets rid of my grumpiness, LOL! My son is on it at the moment. I didn't think I had a problem with it, but maybe I do as I get bad heartburn after wheatabix and heartburn in general a lot of the time - and am quite grumpy;).

Fairy Dancer Contributor
Fairy Dancer
Posted

I have not seen the paleo diet, but I will look it up. Thank you!!!

Basically the full blown Paleo diet consists of no grains, no dairy and no legumes. The theory behind it is that the human body has not evolved to eat these 'neolithic foods' and so has problems digesting them. However, many do a modified version (ie they may take out all grains but still consume some dairy..which I do). Legumes I have never liked much anyway (other than garden peas) so never did eat a lot of those. In short it's a whole food diet...so meat, fish, nuts (except peanuts which are a legume), vegetables, fruits and if you are doing the higher carb version things like parsnips and starchy tubers are included.

Grains were not a regular part of the human diet until agriculture came into practice some 10 thousand years ago. For around 200'000 years before that humans would have consumed mostly meats, vegetables and fruits etc, but not many grains (and certainly not on a daily basis). Starchy tubers would have also been limited (very seasonal) and so the diet tended to be relatively lower in carbs then the diets we eat today. We certainly had no processed foods or a local McDonalds. However, its not the Atkin's diet. Due to the lower carb consumption people can confuse them. The diet includes more carbs etc than Atkin's does.

For practical reasons I do the modified Paleo. I also have a free day where I consume a small amount of processed food as a treat but still avoid anything wheat based since I get horrible stomach pain and gut acid as well as diarrhoea when I consume anything with wheat in. Considering how unwell I feel when I eat them the wheat based foods are not really all that nice to me now and I don't really miss them lol.

Actually I am glad to see the back of wheat in my diet! I never was all that fond of things like pasta and bread, I mostly ate them because the diet industry said they were healthy. And because I was raised on a whole food diet and with a brother who had celiac disease, going gluten and wheat free is like a trip back in time for me. A blast from the past so to speak lol. Whilst I ate small amounts of gluten and wheat as a child most family meals were gluten free so that my brother could eat them. I only started eating more processed, wheat and gluten when I left home. So I have merely gone back to many of the foods I loved as a child. Now I just need to see if I can remember any of my mums old recipes lol.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,919
    • Most Online (within 30 mins)
      7,748
    globello
    Newest Member
    globello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.