Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After So Long...

josh052980

By josh052980
in Coping with Celiac Disease

Recommended Posts

josh052980 Enthusiast
josh052980
Posted

I've been gluten free now for 4-months, with only minor hiccups. Friday evening I got some gluten in me, though I have no idea where from. I'm guessing cross-contamination. I felt bad for about 4 hours yesterday, then rebounded, and like a fool ate some spicy food last night at dinner (previously spice hadn't bothered me, so I didn't think I'd react adversely). Boy was I wrong. Overnight my guts felt like they were on fire, I've been on and off nauseous all day today and I just had my first run-in with the Big D since going gluten free. I feel like all my progress over the past months has been for naught, just off of one meal.

My guess is that I've got an issue with nightshades, or at least I do in the aftermath of being glutened. It's so disheartening though... I was doing so well for so long, and now I feel like I did before I went gluten free... I'm not really looking for advice here, just kind of venting. For as hard as my family tries, I don't think they really understand what I go through when this kind of thing happens.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted

I've been gluten free now for 4-months, with only minor hiccups. Friday evening I got some gluten in me, though I have no idea where from. I'm guessing cross-contamination. I felt bad for about 4 hours yesterday, then rebounded, and like a fool ate some spicy food last night at dinner (previously spice hadn't bothered me, so I didn't think I'd react adversely). Boy was I wrong. Overnight my guts felt like they were on fire, I've been on and off nauseous all day today and I just had my first run-in with the Big D since going gluten free. I feel like all my progress over the past months has been for naught, just off of one meal.

My guess is that I've got an issue with nightshades, or at least I do in the aftermath of being glutened. It's so disheartening though... I was doing so well for so long, and now I feel like I did before I went gluten free... I'm not really looking for advice here, just kind of venting. For as hard as my family tries, I don't think they really understand what I go through when this kind of thing happens.

Don't worry. One episode like this isn't going to set back your progress, although I know it is uncomfortable. After a few days, you should be back on track. And perhaps it's useful for your family to see you going through that so that they understand better.

Usually, after I've been glutened through an accident or cross-contamination, I eat bland things, cause that's what my body craves. White rice, rice noodles, mashed or baked potatoes, chicken/rice soup - that sort of thing. Lots of veggies and spices and meat are on my no-no list after gluten.

Hope you feel better soon.

rosetapper23 Explorer
rosetapper23
Posted

Something that I've learned through experience is that being glutened either by spicy food or food with peppers (sometimes the peppers themselves are canned ones containing gluten) can be calamitous. This has happened three times during the past seven years, and each time I became extremely ill. In my case, a lot of damage was done to my intestinal lining each time....but this may not occur with you. From your photo, I can see that you're much younger than I am; therefore, I have many more years of damage to contend with.

When it comes to eating spicy food or food containing peppers, if there's ANY chance of cross-contamination or not knowing the source of the peppers, simply walk away from the meal. It's better than living a hellish existence for 2-3 days with possible long-term complications. Be especially careful of paprika, which was responsible twice for my suffering (some brands are fine, but others aren't). At potlucks, people bring what appears to be innocuous potato salad, but they oftentimes mix in paprika....and then I'm in big trouble. So....walk away.

ravenwoodglass Mentor
ravenwoodglass
Posted

You said you felt bad for about 4 hrs then a bit better. I could be wrong but I think you would have had D even without the spicey meal. The spicey heat of the meal may have made things worse though.

I hope you feel better soon. If your still having stomach pain some pepto bismal liquid may help a bit.

josh052980 Enthusiast
josh052980
Posted
  • Author

Something that I've learned through experience is that being glutened either by spicy food or food with peppers (sometimes the peppers themselves are canned ones containing gluten) can be calamitous. This has happened three times during the past seven years, and each time I became extremely ill. In my case, a lot of damage was done to my intestinal lining each time....but this may not occur with you. From your photo, I can see that you're much younger than I am; therefore, I have many more years of damage to contend with.

When it comes to eating spicy food or food containing peppers, if there's ANY chance of cross-contamination or not knowing the source of the peppers, simply walk away from the meal. It's better than living a hellish existence for 2-3 days with possible long-term complications. Be especially careful of paprika, which was responsible twice for my suffering (some brands are fine, but others aren't). At potlucks, people bring what appears to be innocuous potato salad, but they oftentimes mix in paprika....and then I'm in big trouble. So....walk away.

I didn't get glutened from the spicy food, I got glutened, felt sick, got better enough to function and then ate spicy food.

rosetapper23 Explorer
rosetapper23
Posted

Yes, I realize that....but when you ADD spicy food on top of being glutened, the response can be much, much worse. I'm sorry if I didn't make that clear. The bad response can be from spicy food with gluten in it or eating gluten and then spicy food that doesn't have gluten in it. It seems to be the combination that makes the outcome so much worse.

Jenniferxgfx Contributor
Jenniferxgfx
Posted

After I get cc'd, I have to eat bland easy food for the next few meals at least because things are SO over sensitive.

I hope you feel better soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PainfulSpaghetti Newbie
PainfulSpaghetti
Posted

I am so sorry. It is difficult on the best days. It's very hard to find foods that aren't laden with sneaky additives, or coated in wheat flour as even nuts are that they give you to sprinkle on your salads. Sneaky, sneaky gluten!

josh052980 Enthusiast
josh052980
Posted
  • Author

This may be totally unrelated to how I felt, but maybe some of you folks have had the same experience. Last week, I was off my multi-vitamins (I kept forgetting to run out and by more after I ran out), so when I got glutened, I was without vitamin supplements for 5 days straight, then I ate the spicy food the next day (Saturday), still with no vitamin supplement. Yesterday, I was still feeling pretty crappy, but well enough to basically function, so I went out and bought my vitamins, and took one. Within 2 hours I was feeling DRAMATICALLY better.

Do vitamins have anything to do with this, that anyone knows of?

cyberprof Enthusiast
cyberprof
Posted

This may be totally unrelated to how I felt, but maybe some of you folks have had the same experience. Last week, I was off my multi-vitamins (I kept forgetting to run out and by more after I ran out), so when I got glutened, I was without vitamin supplements for 5 days straight, then I ate the spicy food the next day (Saturday), still with no vitamin supplement. Yesterday, I was still feeling pretty crappy, but well enough to basically function, so I went out and bought my vitamins, and took one. Within 2 hours I was feeling DRAMATICALLY better.

Do vitamins have anything to do with this, that anyone knows of?

It may just be a coincidence. However, if you're sick and everything is going right through you, you may be low on potassium and magnesium, just to name two. Taking the vitamins might have an immediate effect in that situation. I know that I feel better when I take magnesium supplements regularly, and the B vit sublingual is imperative if I want to have energy.

Glad you're feeling better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,561
    • Most Online (within 30 mins)
      7,748
    Valentino
    Newest Member
    Valentino
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.