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NateJ

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NateJ Contributor

After a long break, I'm back. gluten-free since April now and feeling better.


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mbrookes Community Regular

Glad to hear you are feeling better. Since April is not very long. You will probably keep getting better for a while. Glad you are back with us.

Poppi Enthusiast

Are things better with your family? I remember reading how unsupportive they were being and felt so bad for you. I hope that has changed.

NateJ Contributor

Are things better with your family? I remember reading how unsupportive they were being and felt so bad for you. I hope that has changed.

Actually no. My wife left on Memorial Day and my divorce was final last week.

I've been busy with the kids since then and haven't had time to post or read here.

But I have managed to stay gluten-free despite everything else going on. I feel pretty good now, better than I did.

Its still a challenge some days. I've lost quite a few friends but I'm ok with that.

I'm doing this to be healthier for my girls. Not to be social.

What reminded me about everyone here was I won a free book on facebook. There is a writer 'The Savvy Celiac' not sure if anyone reads her blog, but I like her page and won a free book!

Jestgar Rising Star

wow. I'm sorry you're going through that. You've always seemed like a very nice and reasonable guy - I hope you're doing ok. We're always here for support and venting, when you need us.

NateJ Contributor

wow. I'm sorry you're going through that. You've always seemed like a very nice and reasonable guy - I hope you're doing ok. We're always here for support and venting, when you need us.

:) i try to be nice.

Here is a vent for you LOL

I traveled for my job for 4.5 years so I could make extra cash.

Told my wife she didnt' need to work. Just stay home with the kids.

So I got sick in Dec last year, got off the road when I had surgery. Got sicker, switch jobs to not travel and be home

then she leaves! There is a lot more to that story but it wasn't all about Celiac.

Then on my b-day my Grandma who raised me had a stroke. 94 years old. It took her 5 days to pass.

The X refused to go see her, I slept in my car or at the hospital because I didn't want her to die alone.

But all that time I stayed on my diet! Not sure how but I did. And I'm glad I did.

Jestgar Rising Star

Well, although the X didn't behave well in the end, at least you know that your kids benefited from having a stay-at-home parent. Maybe it'll be easier if you think of having made sacrifices for your kids, and the X just happen to also benefit from them. :)

The guy I'm dating was married for almost thirty years. A couple years after his divorce, he fell while rock climbing and almost died. Took months for him to be able to walk and talk correctly, and he's still working on memory issues. It shocked him that his X never called, never sent a card, never cared one way or the other if he was going to live or die. 30 years and two kids together, and it was all gone.

Women can be cruel.


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kareng Grand Master

Hi Nate! Welcome back!

Sorry things have been bad. Hopefully, you can get it worked out for the kids. Enjoy your health!

love2travel Mentor

You have done an incredible job keeping up with your gluten-free lifestyle in spite of these enormous stressors. Way to go! Hopefully things turn around for you very soon. :)

mushroom Proficient

Welcome back, Nate. Fortunately, we are not responsible for the poor behavior of others, no matter how hurtful it may be to us. Kudos to you for sticking to your principles (and your diet!) through these trying times. I am sorry for what you have gone through - you deserve better, and I'm sure you will find it if you stay true to yourself. It must have been tough losing your Grandma like that :(

NateJ Contributor

Welcome back, Nate. Fortunately, we are not responsible for the poor behavior of others, no matter how hurtful it may be to us. Kudos to you for sticking to your principles (and your diet!) through these trying times. I am sorry for what you have gone through - you deserve better, and I'm sure you will find it if you stay true to yourself. It must have been tough losing your Grandma like that :(

Yeah, that was the hardest part of all of it. I really miss her. Everyday.

But I still have my kids. They are both going through counseling and support from family has been good.

It stinks that all my family lives out of town, but they have done a lot for us during these past few months.

Looking forward to moving forward.

Thinking about going to a new gluten-free cafe that opening here today!

jerseyangel Proficient

Welcome back Nate--I hope things get better for you real soon! Congrats on staying the gluten-free course throughout this difficult time, you deserve to feel better. Very sorry about your grandmother.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
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