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What Are Your Symptoms When You Get Glutened?

livelifelarge24

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livelifelarge24 Enthusiast
livelifelarge24
Posted

I got glutened yesterday & I'm having a really rough time today. I'm curious what symptoms you all have when you get glutened. I'm still having a hard time believing what's going on with me.

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ravenwoodglass Mentor
ravenwoodglass
Posted

I don't get as many neuro symptoms as I used to so now my symptoms are mostly GI related. Even after 9 years at this I sometimes make a mistake. Like earlier this week. :( I will bloat for a day or two and have severe stomach pain. Then the D hits, usually at night and that will last for anywhere from 3 to 24 hours and that is then followed by bleeding for a few hours. Once the GI stuff is over I usually will have a couple weeks of joint pain and a bit of brain fog.

It can take some time to get over a good glutening but hopefully you will be feeling better soon.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

That sounds awful. Bleeding? I have the diarrhea, a migraine, emotional down in the dumps feeling, muscle weakness, back pain, and feeling like my insides are bei g squeezed.

adab8ca Enthusiast
adab8ca
Posted

Once i got glutened i had D for 6 weeks, insomnia, anxiety, nerve pain, joint pain...

last week i did something stupid and had nerve/joint/muscle pain and anxiety but it only lasted about a week...No D this time.

zus888 Contributor
zus888
Posted

I've only been glutened once, and I started the diet in March. I had no GI effects whatsoever, but had fatigue and some serious depression. Enough of a depression to contact a therapist (before I realized it was gluten that caused it). It was pretty bad. I have a bad attitude about the whole gluten-free diet, so the depression just made that a million times worse.

shadowicewolf Proficient
shadowicewolf
Posted

Neurological stuff (burning and tingling)

Indigestion

C

Knee pain

anxiety

lack of energy

AVR1962 Collaborator
AVR1962
Posted

24 hours after having gluten I will have a gassy stomach, sometimes diarrhea, odd headache, very tired, I am off balance, brain fog, and sometimes my blurred vision comes back.

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ENF Enthusiast
ENF
Posted

I got glutened earlier this month, about 10 times over the course of about two weeks, as detailed in my thread yesterday in the Gluten-Free Ingredients & Food Labeling Issues section here:

It wasn't nearly as bad as thought it would be, I had some D, emotional and neurological issues, but these problems were not nearly as severe they were for a few years before diagnosis and going gluten-free. During this recent setback I was able to go bicycle riding, and even traveled a fair distance by subway to attend a music concert despite the issues I was having. I didn't suspect glutening, I thought it was my nerves and/or something I ate other than gluten that didn't totally agree with me. This was probably the worst, or possibly the only, incident of glutening I've had in the past six years, so maybe my system was able to handle it better, for a brief time, at least.

Poppi Enthusiast
Poppi
Posted

About 2-3 hours after a glutening I get this sudden emotional dive, I feel hopeless and weepy

Tummy gurgling starts shorty after

fatigue hits around the same time, is pretty intense for the first few days and then slowly lifts over the next 10 days

The next morning I usually have a few bouts of D, followed by a week or so of C

The nausea, joint pain, headaches and depression usually hit full force about 12-24 hours after the glutening and last a week or two

The back pain is by far my worst symptom and can last 2-4 weeks. The first 10 days is really awful and then it slowly gets better. I am starting physio on my back tomorrow morning with the hopes that a stronger back might help alleviate some of the pain, it can't hurt.

livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

Wow I'm sorry for everything you all go through but I appreciate you sharing because it does help me to not feel crazy. Three times this has happened & it always starts first with an extreme emotional dive then onto the physical stuff later. The last two times I was struggling to figure out how I got contaminated- this time I knew the second I grabbed my boyfriends beer instead of my gluten free & took a huge swig. It's much much worse this time but I'm not sure if it's because I took such a large amount of gluten inner because I knew to wait for it so maybe psychosomatically ive made it worse? I did ok today despite feeling awful but I'm laid up in bed now with a heating pad on my belly praying that I'll feel better.

PainfulSpaghetti Newbie
PainfulSpaghetti
Posted

For me, I suffer from depression, cramping, gas, bloating, bad taste in my mouth, bleeding, headaches, brain fog, muscle weakness, joint pain, limb tingles, dizziness, some D, some C it varies, and alot of mucus in the stools. Even the teeniest bit will cause problems, and now my mouth will swell, and burn, and I get a rash.

I do my very best to be a food nazi, and stay away from anything suspect but it IS difficult.

Good luck to all!

Jenniferxgfx Contributor
Jenniferxgfx
Posted

Oh man, I feel like everything goes wrong when I get glutened and the world is ending! First my right hand tingles (so weird), then my stomach hurts and I get nauseous. In a few hours, my stomach still turns, I'm anxious and weepy, and my asthma acts up. In the next days, I'm irritable, get D or C, and have lots of fibromyalgia pain, headaches or migraines, my skin flares up (DH), and nothing sits real well in my stomach. My pain medicine for my back is also less effective.

It's miserable. I'm sorry you've been glutened! I hope you feel better soon.

Cattknap Rookie
Cattknap
Posted

I will develop throbbing pain in my left lower abdomen within a few hours after being glutoned, I won't sleep well that night and I will be extra tired the next day. I have never noticed any emotional symptoms.

Goof Rookie
Goof
Posted

Sudden mood swing - angry

Stomach and intestinal pain

Fatigue

Then, over the course of a week...

Insomnia, Constipation, Brain Fog

mbrookes Community Regular
mbrookes
Posted

My symptoms are mostly intestinal... D and nausea. I never had emotional or depression problems at my sickest. OK, I AM Pollyanna, but I always have been. Dull headache sometimes. Arthritic knee a little worse. Usually lasts a couple of days. Bad enough to follow diet as closely as possible, but not a bad as many of you.

dws Contributor
dws
Posted

Wow I'm sorry for everything you all go through but I appreciate you sharing because it does help me to not feel crazy. Three times this has happened & it always starts first with an extreme emotional dive then onto the physical stuff later. The last two times I was struggling to figure out how I got contaminated- this time I knew the second I grabbed my boyfriends beer instead of my gluten free & took a huge swig. It's much much worse this time but I'm not sure if it's because I took such a large amount of gluten inner because I knew to wait for it so maybe psychosomatically ive made it worse? I did ok today despite feeling awful but I'm laid up in bed now with a heating pad on my belly praying that I'll feel better.

Hope you will be feeling better soon. On the positive side, the more gluten reactions you have, the better you get to know your symptoms. You can find courage and faith in knowing what to expect and knowing that though you have to go through it, it will end eventually. Doesn't hurt to chat with the man upstairs. Been there, done that! Once you get through the worst of the symptoms, I think it helps to stay as busy as you can. If I am involved in something like work or an activity, I can ignore the residual gut pain better than if I am doing nothing.
livelifelarge24 Enthusiast
livelifelarge24
Posted
  • Author

You are right about that. Sometimes I think I "can't" get out and do anything but if I force myself to it usually helps. I just feel like it sets me back light years emotionally to go through this :/

lcarter Contributor
lcarter
Posted

For me it means a delayed reaction. I believe that this is more common with celiac disease than not. It lasts anywhere from 3-10 days depending on how much I accidently ingest.....

1. Nausea, usually within 30-60 min. or so of ingestion of gluten or dairy

2. Followed by bloating for a day or more

3. Then, either loose stools and/or diarrhea for a day or longer

4. Frequently accompanied by headache, muscle ache, brain fog, and general malaise

The only thing that seems to help me, when it gets really bad, is to.....

1. Stop eating solids and drink liquids for about 24 hrs

2. Followed by a day of liquids, rice, and applesauce

3. Then, gingerly start back on regular gluten-free + DF foods

dws Contributor
dws
Posted

You are right about that. Sometimes I think I "can't" get out and do anything but if I force myself to it usually helps. I just feel like it sets me back light years emotionally to go through this :/

I know what you mean. It is a lot easier to be optomistic when you are not feeling badly. The true test comes when you feel sick. I tend to get pessimistic and have irrational thoughts like "this might last forever". I am working on overcoming that tendency. I often wonder though, if depression is really a true symptom or just a natural side effect. Who wouldn't tend to be depressed about feeling so bad? I feel dissapointment and frustration as much or more than depression. Each time I feel good, I hope I will never feel glutened again. It's hard to take when it happens. You feel like you have had more than your fair share and don't deserve anymore problems.

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