Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After Being Glutened Do You Ever Pass This?


GFreeMO

Recommended Posts

GFreeMO Proficient

I have been having a heck of a time lately. I was glutened last Thurs. I had all of the symptoms that I always get. I have been getting a new symptom though. You know how with celiac, you have mucus or oily drops floating. (TMI) I know. Do you ever just have the oily/mucus discharge after a bout of D from being glutened? It's freaking me out a little b/c it's always been in the stool but now sometimes I feel like I have to go and thats all that comes out the oily stuff.

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bella001 Explorer

I have been having a heck of a time lately. I was glutened last Thurs. I had all of the symptoms that I always get. I have been getting a new symptom though. You know how with celiac, you have mucus or oily drops floating. (TMI) I know. Do you ever just have the oily/mucus discharge after a bout of D from being glutened? It's freaking me out a little b/c it's always been in the stool but now sometimes I feel like I have to go and thats all that comes out the oily stuff.

Thanks so much!

Yes, I use to have that before going gluten free. It was really bad after having a pasta dinner...go figure!

eatmeat4good Enthusiast

Yes...I've had lot's of times I was only able to pass mucous and oil water...before I found out what was wrong.

I have a question though. Did this happen just from trace gluten? That happened to me as I was eating gluten every day. I'm just curious if you don't mind sharing. How did you get glutened this time?

It will stop when the gluten is out of your system.

GFreeMO Proficient

Yes...I've had lot's of times I was only able to pass mucous and oil water...before I found out what was wrong.

I have a question though. Did this happen just from trace gluten? That happened to me as I was eating gluten every day. I'm just curious if you don't mind sharing. How did you get glutened this time?

It will stop when the gluten is out of your system.

Well..I unknowingly ate a product that was cross contaminated every sat. For about 2 months. I had recently stupidly went waaaay overboard on dairy products and blames it on that. My dairy and glutened symptoms are very similar. I removed the dairy and still had d etc. Ate the product again and bam..figured it out. It went in the trash. I am super sensitive and react badly.

Thanks for your help. I am going to try not eating anything processed. I keep getting glutened over and over from stuff marked marked gluten free. This disease sure is tricky sometimes.

Flasaltwater Apprentice

I have been having a heck of a time lately. I was glutened last Thurs. I had all of the symptoms that I always get. I have been getting a new symptom though. You know how with celiac, you have mucus or oily drops floating. (TMI) I know. Do you ever just have the oily/mucus discharge after a bout of D from being glutened? It's freaking me out a little b/c it's always been in the stool but now sometimes I feel like I have to go and thats all that comes out the oily stuff.

Thanks so much!

Sorry but what do you mean oily drops floating? Sorry this is all new to me. Discharge? Does it just come out?

GFreeMO Proficient

Sorry but what do you mean oily drops floating? Sorry this is all new to me. Discharge? Does it just come out?

With celiac, one of the hallmark symptoms is oily stools or oily diarrhea. I looks like oil drops floating in the toilet. It comes out after going to the bathroom or sometimes it will feel like you have to go and just pass gas with the mucus/oily stuff.

Flasaltwater Apprentice

With celiac, one of the hallmark symptoms is oily stools or oily diarrhea. I looks like oil drops floating in the toilet. It comes out after going to the bathroom or sometimes it will feel like you have to go and just pass gas with the mucus/oily stuff.

Ahh thanks so much. I have greasy stools ugg. I have an issue with mucus coming out with I pass gas sometimes I have only been gluten free for 2 in a half weeks. I'm in bad shape. So sorry your having troubles Hope you feel better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I've been gluten free for almost 2 years and I am still learning. It's hard to deal with sometimes especially with cross contamination and delayed reactions.

Welcome to the forum.

dws Contributor

Well..I unknowingly ate a product that was cross contaminated every sat. For about 2 months. I had recently stupidly went waaaay overboard on dairy products and blames it on that. My dairy and glutened symptoms are very similar. I removed the dairy and still had d etc. Ate the product again and bam..figured it out. It went in the trash. I am super sensitive and react badly.

Thanks for your help. I am going to try not eating anything processed. I keep getting glutened over and over from stuff marked marked gluten free. This disease sure is tricky sometimes.

Sounds like my pattern. I do ok for a while and then start missing all the foods I have to do without. I feel the best when I avoid all processed gluten free foods. I am having to rededicate myself today. I had been avoiding corn but couldn't pass up some kettle corn marked gluten free. I kinda went crazy after what I thought would just be a few bites. Boy, did I pay for it. The cravings can be incredible and hard to resist. I had also been experimenting with candy bars and some yogurt. Not really sure which set me off. Maybe someday I'll learn to say goodby to those things forever.
livelifelarge24 Enthusiast

As unsettling as it is, yes it happens. It happened to me all the time before I went gluten free and now it happens when I accidentally get glutened. I think it usually comes towar then end when I'm just about done with the stomach problems. I feelfor you! You are fine though, dont let it freak you out. Just let it resolve you to e more vigilant about cross contamination.

  • 4 weeks later...
Flasaltwater Apprentice

With celiac, one of the hallmark symptoms is oily stools or oily diarrhea. I looks like oil drops floating in the toilet. It comes out after going to the bathroom or sometimes it will feel like you have to go and just pass gas with the mucus/oily stuff.

I have this however its not as bad as it was when I was consuming Gluten dairy super bad also All my slimy mucus out the but is almost stopped completely. I am still noticing a oily layer at the top of the water I also have some floating stool some not mostly when I consume food with a high fat content like hamburger cream cheese use to do this to me also but I haven't eaten that in a long time. I posted about this in another thread I had started but deleted it, it fits better here.

Googles Community Regular

I get mucus after getting glutened. It can confirm that the aches and pains I feel without much GI problems are actually from getting CC.

Asharia Rookie

Oh wow, I never noticed the cause and effect before - this might help me a lot in figuring out what the sources of CC in my diet are! Gee, I get to start a mucus diary, awesome.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748

    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.