Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many Have Gi Symptoms With Dh


Flasaltwater

Recommended Posts

Flasaltwater Apprentice

How many have both? I have both. I have all the symptoms Anemia, Diarhhea, Gas, Bloating, Lactose intolerance, look at my signature. I also have the terrible rash. I was reading that its rare to have GI symptoms and DH am I just weird? or is this more common now or maybe I have something different. How many of you have both?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I have the exact same as you. I have both.

Flasaltwater Apprentice

I have the exact same as you. I have both.

Did you get a positive diagnosis? I'm scared, I go to the derm Monday to get Biopsy. I'm worried im going to hit another brick wall and not get a proper diagnosis with what ever it is I have. I've pretty much ruled out most other auto imune diseases for now as this is the one that I carry most of the symptoms for.

Thanks for posting

Bubba's Mom Enthusiast

Over the years I've had a long list of symptoms. It seems like they move around from time to time? Most recently my symptoms were GI, but at the same time I've had what I thought were bug bites or something on my back, arms, and legs. They're just several in each area and itch like mad! They don't heal because I scratch them until they open. They don't look like the pics blisters I've seen that are labeled DH.

I hope you get the answers you're looking for. Not knowing is maddening.

GFreeMO Proficient

Did you get a positive diagnosis? I'm scared, I go to the derm Monday to get Biopsy. I'm worried im going to hit another brick wall and not get a proper diagnosis with what ever it is I have. I've pretty much ruled out most other auto imune diseases for now as this is the one that I carry most of the symptoms for.

Thanks for posting

I had DH on my knees and chest for several years before my GI issues. Now I have both when glutened. The DH is very minor compared to what it use to be though.

eatmeat4good Enthusiast

I have gastrointestinal problems and DH in addition to neurological problems when glutened. The neurological is brain fog, anxiety, depression in the form of despair, and sometimes uncoordination and balance issues. DH breaks out first then my stomach and guts go rolling and then I feel like a zombie stoned on gluten...just from trace gluten. god...don't know how I ever ate it every day.

ravenwoodglass Mentor

I had DH for literally years before my GI issues were anything that wouldn't be considered normal for a kid. I did however have severe joint and muscle pain but doctors attributed it to congenital leg and foot defects. I had surgery but it didn't relieve the pain but did allow me to walk more normally, at least until ataxia set in. I did have C a lot as a child from a young age but it wasn't until after I had my children that the more typical D set in.

Celiac can effect many organs and presentation can differ for people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I had stomach issues 15+ years ago. Didn't get DH until 2 years ago. now I don't have stomach issues - but do have vitamin/mineral deficiencies so I know it's affected. I get neurological/depression/anxiety symptoms in addition to DH and flu-like symptoms.

Lately I've been having some major gas - which is odd because it wasn't that bad before going gluten-free. I'm wondering if it's all the vitamins... Because it happens before I eat

anything in the morning.

If it's dairy that's just too bad. I'm not giving up the tiny bit I'm eating. Can't pinpoint the gas otherwise.

ravenwoodglass Mentor

Lately I've been having some major gas - which is odd because it wasn't that bad before going gluten-free. I'm wondering if it's all the vitamins... Because it happens before I eat

anything in the morning.

Have you tried taking your vitamins with a meal? That might help and some of them are better absorbed when you take them with food.

pricklypear1971 Community Regular

I do take them with a meal - except the B12 that is chewable. I take it a little later.

Maybe it's just a stage. I don't know..,sometimes it isn't worth worrying about....

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.