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Gluten Free Kitchen Or Not


dws

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dws Contributor

I don't want to beat this gluten free kitchen thing to death, but I was wondering about other people's experiences. My gut has not been terrible lately, but I am still feeling a little off. I have done a lot of the elimnation stuff and am currently avoiding all processed food. I was curious about whether or not any of you have struggled with nagging problems until you took the step of eliminating gluten from your household? Was it definitely the silver bullet that made you feel better after taking other precautions?


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Roda Rising Star

I do alright in a shared kitchen. That said, I am very strict about it. For the first two years post diagnosis I was the only one gluten free in the house. Since I did most of the cooking/baking I made all meals gluten free and refused to allow any baking with regular flour/baking mixes. Hubby and kids had a shelf in the pantry that was for gluten foods. They had a dedicated section of the counter. I got rid of any shared items (or let them finish them up) and bought new. I also got rid of any herbs/spices/baking ingredients that may have been cross contaminated. I also replace or bought an extra of bake ware, wafle iron, pasta strainer, toaster, etc. Now our house is even more gluten free. My youngest son went gluten free last Nov. and my oldest son just went gluten free Aug. 29th. So it's now just hubby that eats gluten and I must say it is a lot less. He is very careful and hasn't cross contaminated us yet.

moose07 Apprentice

I know that when I can get my own place I will definitely have a gluten free kitchen. I can, for the most part, trace all but two of my glutenings in the past year and a half to CC from other people in the kitchen.

eatmeat4good Enthusiast

I have a gluten free kitchen because it is just me and my son and he has to be gluten free too. But I shake and tremble at the thought of a shared kitchen. My sister wants me to come for Thanksgiving but I tremble at the thought of trying to eat gluten free in someone else's kitchen...even though she says she will cook gluten free...I don't think I could eat it, knowing that she bakes when I'm not there...it's like radioactive waste in my mind...I just wish it glowed neon green or something so we could see where it is....

Having said that...there are people on here who have a shared kitchen and do alright with it. I make my sister take her kids outside if they are order pizza when they visit. I just can't risk it.

Takala Enthusiast

We have a gluten free kitchen after my husband volunteered to go gluten free at home, to avoid cross contamination issues, after he saw how 1 reaction could wipe me out and ruin a weekend. Much easier this way. He's still gotten me a few times that we have not figured out how, other times we do figure it out, but it is a lot less.

thleensd Enthusiast

Gluten Free kitchen. It's worth my health and sanity.

beebs Enthusiast

Yes gluten free kitchen, its just not worth the risk.


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glutentheintolerant Rookie

I think I got contaminated yesterday. Not sure how. The person I leave with leaves crumbs everywhere and they get into everything. Sometimes I place something on the counter and then later on realize it hasn't been properly cleaned.

I think having a gluten-free home will cure you of any doubts and let you diagnose real problems.

Oh, if you have a dog: Dog food is often full of wheat as well. Wash your hands after handling it.

Gemini Experienced

I do alright in a shared kitchen. That said, I am very strict about it. For the first two years post diagnosis I was the only one gluten free in the house. Since I did most of the cooking/baking I made all meals gluten free and refused to allow any baking with regular flour/baking mixes. Hubby and kids had a shelf in the pantry that was for gluten foods. They had a dedicated section of the counter. I got rid of any shared items (or let them finish them up) and bought new. I also got rid of any herbs/spices/baking ingredients that may have been cross contaminated. I also replace or bought an extra of bake ware, wafle iron, pasta strainer, toaster, etc. Now our house is even more gluten free. My youngest son went gluten free last Nov. and my oldest son just went gluten free Aug. 29th. So it's now just hubby that eats gluten and I must say it is a lot less. He is very careful and hasn't cross contaminated us yet.

I do the same thing and, as it's just my husband and myself, there have been no problems in 6 years of me being gluten-free. If your husband or wife understands CC issues well, there should be no problem having a shared kitchen. I am an extremely sensitive Celiac also and it still hasn't posed any problems but it all depends on how "on board" the others are willing to be. I don't allow cooking with gluten-free flours in my house and that's the biggest worry you are going to have....air born gluten.

Reba32 Rookie

My own kitchen is gluten free. I share a house with my Mum and we share cooking. She has the occasional gluteny bread in her kitchen, but not very often as she's on a carb restricted diet anyway ;)

My niece and nephew come to visit once per week and if they're eating pizza they eat it downstairs in my Mum's place, rather than upstairs in my place. When they eat McDonald's they sometimes eat at my dining table, but that's easy enough to clean up (and no, I'm not the one feeding them junk, it's their own parents when they drop them off here they bring the junk food with them :P )

My dogs are even on gluten free food as well. They get Blue Wilderness grain free food. It's expensive, but worth it to not get CC'd from either the food or their kisses :D

dws Contributor

I do the same thing and, as it's just my husband and myself, there have been no problems in 6 years of me being gluten-free. If your husband or wife understands CC issues well, there should be no problem having a shared kitchen. I am an extremely sensitive Celiac also and it still hasn't posed any problems but it all depends on how "on board" the others are willing to be. I don't allow cooking with gluten-free flours in my house and that's the biggest worry you are going to have....air born gluten.

Thanks to everyone for all of the advice. I was considering making a small area gluten free, but I think the other way around would work better. We'll try a dedicated gluten cabinet and counter and have the rest of the kitchen gluten free. I have been known to send family members outside to pour and mix flours. I'll continue that practice. Thanks again.

Katrala Contributor

I have a shared kitchen (both my husband and kids eat gluten.)

95% of the time our (shared) dinners are gluten-free. In the event they aren't, we take precautions to make sure there aren't problems.

I can say that we've had "roller coaster" problems. Things will be great for awhile and then we'll become slightly more relaxed (for example, not washing down handle doors, etc. as well just before cooking) and BAM - I'll get it.

While my kids and husband do have a dedicated area of the kitchen for gluten, we have banned all gluten flour from the house. I followed the advice from others here when they said it gets on EVERYTHING (it really does!)

cap6 Enthusiast

Our kitchen is 98% gluten free. One refrig drawer and on bottom shelf of the pantry can have gluten stuff. One small counter for eating anything gluten. I am the only one out of three of us but I cook so it works. The other two are very good and careful. Also, do look for a gluten free (or grain free) dog food. There are several brands that are out there. Just makes life easier - and healthier for the dogs.

cait Apprentice

Our kids are still pretty young (3 and 5), and while they are definitely learning about being careful, it was just too hard to have a shared kitchen. We're gluten-free with small, very careful exceptions in our house now. The rest of the family eats gluten when they're out, but we try not to bring it into the house. I really didn't want to impose it on everyone else, but I just kept getting hit by CC, and the paranoia about it (not to mention having me flattened by it) wasn't good for anyone.

Poppi Enthusiast

We are lucky enough to have 2 kitchens as our house was converted into an up/down duplex by the previous owners but we converted it back and kept the second kitchen. We are a family of 7. Myself, DH and the 2 younger kids (6 & 2) live upstairs and eat gluten free, the three big kids (21, 18 & 16) live downstairs and are allowed to prepare and eat gluten in their kitchen.

There are some very strict rules about gluten in the house though. Gluten is absolutely forbidden upstairs in our house.

1. Their kitchen is off limits to me. I won't clean it, I won't cook in it and they are expected to take care of it. If it needs adult attention then DH deals with it.

2. The upstairs of the house is 100% gluten free. No gluten food comes up here. They can't make a sandwich downstairs and bring it up to the dining room.

3. If we are having something like pizza or burgers that requires the 3 big kids to have gluten buns or crusts we eat outside and hose off the table afterwards. If the weather is bad and we can't change our dinner plans then unfortunately we have to eat separately.

If we only had one kitchen then the whole house would have to be gluten free. We tried to have gluten in the upstairs kitchen but I wasn't getting all the way better. Once we made my kitchen gluten free I got much better.

  • 5 months later...
Darissa Contributor

My own kitchen is gluten free. I share a house with my Mum and we share cooking. She has the occasional gluteny bread in her kitchen, but not very often as she's on a carb restricted diet anyway ;)

My niece and nephew come to visit once per week and if they're eating pizza they eat it downstairs in my Mum's place, rather than upstairs in my place. When they eat McDonald's they sometimes eat at my dining table, but that's easy enough to clean up (and no, I'm not the one feeding them junk, it's their own parents when they drop them off here they bring the junk food with them :P )

My dogs are even on gluten free food as well. They get Blue Wilderness grain free food. It's expensive, but worth it to not get CC'd from either the food or their kisses :D

Question for you. We just went up to PetCo and bought the Blue Wilderness Grain Free Chicken Dog Food (dry) and it has barley grass in it. We are trying to find a good quality dog food that is 100% gluten free. I am contacting the company. We bought the food, than I was looking it up online, and found a post from a Vet that said it had Barley. Sure enough, about half way down the list, it has Barley. Frustrating. Just wondering which Blue Wilderness Grain Free Dog Food you use and if it has Barley. Our house is gluten free. We have no gluten in our house, and I want our new dog to be gluten free either to prevent cc from licks, etc.

0

Googles Community Regular

I spent two years after diagnosis living by myself. So my apartment was gluten free. This year I had to have a roommate because of financial issues and so I live in a shared kitchen (a very small one). She is not here most nights (she spends the nights w/ her boyfriend) so it isn't as bad. But I have been glutened more this year than I was in the previous two years combined. I can't wait until I am able to live on my own again and have a gluten free house.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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