Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Rums Are Ok?


dws

Recommended Posts

dws Contributor

I do ok with the clear Bacardi Rum. However, I am missing some of the more rich flavors of the dark rums like Pusser's and Captain Morgan's Spiced Rum. Anyone know if contamination from barrels or additives for color are a problem with those? Any other suggestions would be welcome. Another one I like is Cock's Spur (I think that's the name. I know it had something to do with a chicken's foot).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I think Sailor Jerry's is okay. If you're still healing, alcohol can be hard on your gut, or the mixer can be. Many standard mixes have corn fructose syuup or high fructose period. My dr. warned me that I'm really likely to have diabetes, which pretty much eliminates alcoholic beverages, darn it! :unsure:

psawyer Proficient

I don't know of a rum that isn't gluten-free. Caramel color is a celiac myth that just keeps going like the Energizer bunny. The barrel myth also circulates, but no credible organization lists wine or spirits as being a concern on that basis. As I type this, I am sipping Bacardi Gold on the rocks. If that were a problem, I would know for sure. :ph34r:

T.H. Community Regular

I've heard that Cruzan coconut rum may be okay for folks who can tolerate <10 ppm or less products all right. Don't know if that's a dark one or not, however.

The barrel issue really depends on how sensitive you are. The issue hasn't been studied with sensitive celiacs in mind, so anecdotal evidence that some celiacs have trouble with this is the best we've got. I don't think that's unusual, sadly. It's only recently that celiacs with neurological problems had anything other than anecdotal evidence of their issues, either. I takes testing and research a while to catch up with all celiacs' experience.

However, if you're concerned...if you can eat most gluten free regular processed food, then barrels are likely not an issue. Most people I know of who can have these foods, like Peter, don't have trouble with it.

If you get sick from most gluten free products, however, then you might have a problem with the barrels. If that's a concern, I would call up an individual company and ask them about their barrels and potential gluten contact.

Re: coloring additives, they could be potential issues if the alcohol is imported from a country where wheat is more commonly used for coloring than corn. So alcohol from Australia and many countries in the UK and Europe could be an issue. Here in the States, it's typically a corn based coloring. Another issue for the imports is that alcohol does not have to adhere to the allergen law of the FDA, when it comes to allergens added. So a wheat-based coloring does not have to be declared.

psawyer Proficient

Foods sold in the US must conform to US labeling rules, no matter where they are made. If you know of a case where this is not true, please post it here and notify the FDA to initiate the recall process.

T.H. Community Regular

Foods sold in the US must conform to US labeling rules, no matter where they are made. If you know of a case where this is not true, please post it here and notify the FDA to initiate the recall process.

Except beverages containing more than 7% alcohol are regulated by the ATTB, not the FDA. Gluten free beer is currently regulated by the FDA. However, rum is not, so rum labels don't have to explicitly state that they contain wheat derived ingredients.

From the food allergy and Anaphylaxis network:

15. Will FALCPA apply to meat or alcoholic beverages?

No. FALCPA does not apply to the labeling of products regulated by the U.S. Department of Agriculture (USDA), such as meat and poultry products, or to the labeling of products regulated by the Alcohol Tobacco Tax and Trade Bureau (ATTB), such as distilled spirits, wine, and beer. Both the USDA and the ATTB have indicated an interest in amending their regulations to harmonize their labeling requirements with FALCPA. For now, meat and poultry products and alcoholic beverages will not be subject to allergen labeling requirements on January 1, 2006. (Open Original Shared Link)

dws Contributor

I don't know of a rum that isn't gluten-free. Caramel color is a celiac myth that just keeps going like the Energizer bunny. The barrel myth also circulates, but no credible organization lists wine or spirits as being a concern on that basis. As I type this, I am sipping Bacardi Gold on the rocks. If that were a problem, I would know for sure. :ph34r:

Peter, are you a super sensitive celiac? When I was 1st diagnosed as gluten intolerant, I drank bourbon and all kinds of liquer and did fine. I also ate plenty of processed gluten free food. The fun did not last, though. I now have to avoid all processed foods and am gradually trying to figure out what vices I can go back to. Some of your posts seem to follow some of the mainstream knowledge about cc. The mainstream pool of knowledge just does not work for me anymore. 20ppm causes problems for me. I, like medical professionals used to scoff at some of the posts on this site, but karma has caught up with me and the advice I've gotten from super celiacs has helped me alot. I may just go ahead and experiment with some darker rums. It's hard to get more than generic answers from produt info sites. Maybe I'll give Bacardi Gold a try again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weluvgators Explorer

I have drunk Mount Gay rum, and I like it. I have been too timid to try any other ones, and just haven't been drinking rum lately. But it is the one my husband keeps in the house, and all the times that I have drunk it have been fine.

I appreciate hearing which ones you can drink, as I have had trouble finding the Mount Gay sometimes when we travel.

Marilyn R Community Regular

Sailor Jerry's is a dark rum made in the USA btw. ;)

lovegrov Collaborator

Captain Morgan's is gluten-free. I've yet to find a liquor where the coloring contained gluten no matter what country it came from.

dilettantesteph Collaborator

I think that some of the answers you are getting are from conventional celiacs and not super sensitive celiacs. Often one clicks on new content and then doesn't pay attention to the subsection of the forum.

It is a good idea to mention again in the post that you are super sensitive. I don't know of a good rum for a super sensitive. I'd like to though.

psawyer Proficient

Peter, are you a super sensitive celiac?

No, I would call my sensitivity typical. I am symptomatic, and do react to small levels of gluten. Just what "small" is presents a topic for eternal debate. Bacardi rum is made in North America (including Puerto Rico, a US territory). No grains are used in the production of the liquor. The color in those versions that have color is derived from corn.

Lisa Mentor

I think that some of the answers you are getting are from conventional celiacs and not super sensitive celiacs. Often one clicks on new content and then doesn't pay attention to the subsection of the forum.

It is a good idea to mention again in the post that you are super sensitive. I don't know of a good rum for a super sensitive. I'd like to though.

And what rums have you found that DO contain gluten....? Curious to know and any substantiation would be helpful.

T.H. Community Regular
And what rums have you found that DO contain gluten....? Curious to know and any substantiation would be helpful.

Open Original Shared Link

This one tested positive with a home gluten test kit, but it was below 20 ppm, so anyone who eats regular gluten free products should be fine with it.

Lisa Mentor

Open Original Shared Link

This one tested positive with a home gluten test kit, but it was below 20 ppm, so anyone who eats regular gluten free products should be fine with it.

I'm talking about substantiated facts.

Was the company contacted? What was their response?

Oscar Apprentice

Home tests are fun. But how reliable are they? Proper testing involves carefully controlled circumstances, control testing of known negatives, and so forth. For all I know, a home test could falsely react to an apple. Rum is not made from grain. How it could contain gluten is beyond my comprehension.

kareng Grand Master

Open Original Shared Link

This one tested positive with a home gluten test kit, but it was below 20 ppm, so anyone who eats regular gluten free products should be fine with it.

I thought these tests "lit up" if its 20 ppm or above? The 20 ppm test can only test as low as 20. If it was less than 20 ppm, it could be 0 or 12 or 19. Not really familiar with them, but that's what I had heard from others who have used them. Seems the water from the inside of a glacier would test at less than 20 ppm.

I guess I would wonder with a home test, about the quality/consistancy of the test. Also, could contamination have occured in some other way - the glass, the air,etc Its in a home, so supposedly not the most sterile and controlled enviroment.

dws Contributor

I'm talking about substantiated facts.

Was the company contacted? What was their response?

Well, these posts sure show that there are different levels of sensitivity. For me, it has been 2 different phases (or maybe more). I've lived in both worlds so I certainly understand the variety of responses. Some are so sensitive that no level of testing or testimonials from manufacturers can assure a product will be ok. They just know when they react to something. Their bodies are the best test. For others, a gluten free label is all they need. I think I am existing in sort of a middle ground right now. Just hope it does not progress much further. But, if it does, I'll just have to cope. Sometimes I wonder about moving to Tonga or some other society where wheat is not a staple.

dilettantesteph Collaborator

And what rums have you found that DO contain gluten....? Curious to know and any substantiation would be helpful.

I believe that I react to levels of gluten below 5 ppm. That is because I reacted to a very small amount of a product which, according to the company, had been tested at just above 5 ppm. It follows, that I would react to a larger amount of something that would test just under 5 ppm.

This puts super sensitives into a difficult situation. We seem to react to levels of gluten which cannot be substantiated with current testing methods. We are in a position that we can't substantiate. We can, however, share results with each other. That has been very helpful to me to achieve better health. Thank you to everyone who will talk about unsubstantiated reactions.

Lisa Mentor

Please keep in mind that the topic of this thread is Rum. Rum is alcohol, a solvent, which can be tough on a compromised immune system. Even with the absence of gluten, a gluten type reaction could occur.

Jestgar Rising Star

Please keep in mind that the topic of this thread is Rum. Rum is alcohol, a solvent, which can be tough on a compromised immune system. Even with the absence of gluten, a gluten type reaction could occur.

hmmm. It would also dissolve any gluten in the glass into which it was poured, the spoon, the blender, etc. You'd have to be pretty meticulous, especially if in a shared household, or just starting out, to keep the rum from liberating old gluten from surfaces.

Lisa Mentor

hmmm. It would also dissolve any gluten in the glass into which it was poured, the spoon, the blender, etc. You'd have to be pretty meticulous, especially if in a shared household, or just starting out, to keep the rum from liberating old gluten from surfaces.

OK, any liquid that dissolves a solid is a solvent - it's the est. 35% alcohol in the rum that could be harsh on your system, or any other type of liquor...that's what I meant B) .

T.H. Community Regular

Well, dang it - I responded yesterday and screwed it up somehow, 'cause it's not here. Sigh - super computer genius, that's me, LOL.

Okay, moment of honesty. :) I don't know of any rum companies that test for gluten (substantiation, as it were). If they did, down to 5 ppm is likely the lowest they'd test for, and that would work for many people here. I don't think it would be a bad idea to list some distilled alcohol brands that have been tested, if we ever found any.

Me, though? I'm pretty much like Steph. Current testing wouldn't do me any good, because from the best calculations I can make, I react to much less than that. Nowadays, I research most of the products I do for my kids and my family, since we're all a bunch of celiacs. But I can't have any of the stuff I'm testing, typically.

And reacting to super-low levels of gluten means I'm up a creek in terms of proving to anyone that what I react to IS gluten. The day someone invents a test that can test for 1 ppm of gluten or less, and makes a testing lab available to us for testing, I will be an extremely happy person and sending food to them all the time. And if I find out that I'm wrong about my entire world view at that point? So be it.

But for right now, this is what we've got. It's true that home tests are, essentially, pretty much anecdotal evidence. Others don't know about the methodology used, the test results aren't certified by outside sources, etc....

Most of the super-sensitive reports on their reactions are anecdotal too, obviously. But super-sensitives don't really have much else, yet. Like any other condition that hasn't really been studied by the medical community, we don't HAVE any proof except our anecdotal experiences and our attempts to make sense of this.

Our doctors flounder because we do what we're supposed to, and we're still sick. We eliminate allergies, and we're still sick. We eliminate foods we're intolerant too, and we're still sick. They don't have any research or treatment plans to draw on for us. Our fellow celiacs look at us and think we're over the top or crazy, because they don't have the same problems that we do. But trying to eat like other celiacs and allergic folks hasn't worked for us any more than eating like an average person works for celiacs.

The closest we have right now to validation that our condition exists are small points of data in studies of gluten and the celiac population at large. Reviewing that, even the FDA concluded that 1 ppm of gluten would be needed as a gluten free standard to protect the most sensitive celiacs.

I know of not one product currently, including rum, that can test down to that level. So to stay healthy, many of us need what we can't prove. Maybe someday we'll figure out that there's a variety of celiacs that react to more grains with a gluten reaction, or that some react more strongly to certain of the proteins than average celiacs do. At this point, research into celiac disease is not to a level that it can tell us.

So, we've gotta do what we can to help each other, IMO.

Rum is alcohol, a solvent, which can be tough on a compromised immune system. Even with the absence of gluten, a gluten type reaction could occur.

Just wanted to mention that this does depend on what type of gluten reaction one has. This might apply to a gut reaction, but not a DH reaction, for example. I know of a couple super-sensitive whose reactions include DH. The stomach issue plus DH, consistently and with the same product, becomes difficult to attribute to other causes.

Now, honestly, my own neuro reaction feels a bit like getting drunk if it's mild, so rum + reaction for me might feel almost the same, LOL. And I've had gut issues from alcohol for years. Except the next day, for me, if it's a gluten reaction I don't get a hangover, I get nerve problems, aches and pains in all my joints, insomnia, and so on.

Not trying to say that there can't be other reasons that one might become ill from rum other than gluten. But many of us who attribute our reaction to rum AS a gluten reaction don't tend to feel crummy and simply attribute it to gluten automatically.

We've looked for other reasons first, because seriously, who WANTS to think that rum could cause trouble like this? It seems ridiculous, at first. Most of us try the product a few times, in different situations, with different foods, or having consumed the same food for a few days in a row, so the rum, or other 'test' food, is the only change.

And when there is a consistent reaction to the same product, multiple times, and we can't find any other connection, then we may finally conclude that it does seem to be gluten. I figure it's rather like allergists when they first came into being, before the discovery of IgE, when they had to look at physical symptoms and food journals and talking with companies and patients to try and figure it all out. New information that came along got added to the whole picture, and it added to the orignal idea or gave some new areas to explore. That's pretty much what we have to do, and we're trying our best to work with what we have.

I'd prefer to find tested products if I could get them, but sometimes, investigating company practice does more good for a person in super-sensitive situation.

weluvgators Explorer

OK, went back to do a bit more research for the rum that I mentioned above, Mount Gay. Um, not looking so good, especially in light of the solvent thoughts . . .

From their website:

"Moka

This subtle note graces all Mount Gay rums due to very special ageing in Kentucky white oak barrels that previously contained bourbon. The result is a perfect harmony of coffee and chocolate aromas."

Well, I have drunk it in the past without issues, but I don't think that I will be drinking it again . . . I guess. It seems a bit risky, right? Of course, bourbon is considered a corn whiskey . . . so maybe the risk isn't so bad? OK, apparently the grain mix just needs to be 51% corn according to wiki.

SIGH - why is everything such a research project?! :blink:

Lisa Mentor

SIGH - why is everything such a research project?! :blink:

Beats Me <throwing arms up>! B)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,410
    • Most Online (within 30 mins)
      7,748

    Nicola mcculloch
    Newest Member
    Nicola mcculloch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pablohoyasaxa
      I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
    • ElisaL
      IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat. 
    • Wends
      Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as long as you’re aware of cc and try to avoid it for the most part, don’t sweat the small stuff! See the gluten free diet as a process. Own the process, Do Not let the process own you! “2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage.” NO - this is OCD brain at its best! Hijacking your thoughts and justifying it because of the very real fear of gluten contamination. That’s OCD all over. Like a devil in the driving seat. Fears that are based on some kind of reality are hard to argue with. Boss it back! Recognise this for what it is. OCD using fear of gluten as its excuse to keep you entrapped. Own the OCD in this scenario, don’t let it own you. Normal cleanliness rules apply. Washing your hands before you handle food you’re putting in your mouth is fine. Washing after the gym is normal. Once daily cleansing wipe of your phone etc. Even if you did go rubbing your hands all over surfaces and licking them there might be a trace exposure to gluten possible. But I’m guessing you don’t usually do that sort of thing. Even if you inadvertently were to ingest trace gluten - it won’t be enough to do damage, no. It takes weeks to months of at least a few hundred milligrams of gliadin daily for the innate immune system followed by the adaptive immune system in coeliac disease to kick in and start producing antibodies and cause villous atrophy. “3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy?” Only biopsy, as the gold standard of diagnosis, can tell for certain if villi have recovered. Having said that video capsule etc. can give an indication of any inflammation. “4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust?” Assuming your employer provides all necessary PPE - appropriate mask and overalls etc. All you can do is take the precautions that are advised according to risk assessments and regulations of the relevant industry governing bodies? (I don’t know what this would be in the USA. Sorry. But there’s safety and governing regs in the UK for this sort of thing. Assuming it would be very similar over the pond in fairness). “5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.)” This comes down to personal threshold of gluten tolerance. People that are highly sensitive may need certified products. Especially those with dermatitis herpetiformis - the skin manifestation of gluten sensitivity. Listen to your body on this one. “6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?” This one is easy - when following a strict gluten free diet, avoid products that say May contain traces of gluten. But it does not have to be labelled gluten free. There are many foods naturally gluten free. Having said that, there is nuance and personal tolerance threshold. If you’re super sensitive “may contain gluten” labelling is a godsend. But this kind of labelling is more aimed at informing customers with type 1 food hypersensitivity/ allergy reactions. The company is basically legally covering themselves, because there may be a risk of cross contamination. Not to be confused that it means there is cross contamination. In addition to products being labelled gluten free. Many products that are labelled can still contain gluten by the way - in fact any processed products labelled gluten free can still contain the allowable level of gluten (up to 20 parts per million according to Codex). A study was done not too long ago that showed gluten free processed products such as cereals, breads, flours etc. can and some are in fact contaminated and have above the legal allowable amount of gluten in them. While most gluten free products are fine for most celiac patients and tolerated, highly sensitive patients fail to heal fully if relying on processed gluten free products. The trace gluten exposure adds up for someone eating a typical western diet of gluten free cereal for breakfast, gluten free sandwich for lunch, gluten free pasta or pizza for dinner for example day after day, week after week. This is why, at least in the beginning after diagnosis, the gluten free diet should be one of whole real food - food that does not require a label. Meats, oily fish, eggs, beans, natural gluten free complex carbohydrates and vegetables according to custom and taste. Limit fruit as fructose worsens leaky gut and has been hypothetically linked to increased OCD and ADHD - Professor Richard Johnson published study on this recently. “7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful?” NO and YES. What you listed as your current, limited diet is nutrient poor. Correct it as soon as possible for your own sake and future health! Ditto what others have replied regarding vitamin and minerals that are lacking in malabsorption syndromes like celiacs and need replenishing. Gluten free products are not fortified. You were likely healthier, dare I say it, on a gluten containing diet for this reason. Your brain , and gut for healing and maintenance, needs lots of nourishment from omega 3s, B complex vitamins, folate, B12, iron, selenium etc. Meats, fish, natural fats that come with, do not fear - the brain is made of fat. Limit sugar, seed oils, and high glycemic cereals and fruit like bananas unfortunately as they can cause blood sugar highs and lows that can worsen anxiety in some people. Refined carbohydrates should be limited for the same reason. Fructose and simple sugars in excess feed the unhealthy gut bugs that wreak havoc with anxiety disorders like OCD. White potatoes can be problematic for some, also. It can take six weeks of elimination to see improvements. Note, consult your physician regards insulin adjustment if you reduce carbohydrates in the diet. Dr Bernstein diabetes protocol has worked for thousands. Ketogenic and low carbohydrate diets for mental and neurological conditions have shown improvements. Limited studies have and are being conducted under metabolic psychology and nutritional psychology. In a good proportion of anxiety disorders, mental, and neurological conditions including dementias, the brain is lacking nutrition and usable energy, not a drug. Similar in many autoimmune conditions, including celiacs, the prevailing hypothesis is that gut inflammation and resultant permeability allowing exposure to antigens begets triggering the genetically susceptible immune system response. Modern lifestyle exposure, one of the biggest being the food we choose to eat plays a huge role. Avoid ultra processed products, high in seed oils, refined grains, and sugar. Not just gluten can cause a leaky gut. Fructose, alcohol, egg white lysozyme, emulsifiers, added gums, the list goes on. “8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if it’s gluten or something else but our dish washer doesnt seem to make it completely clean.” If in doubt have your own cutlery set, plate and dishes etc. for your sole use that you handwash yourself. Carry a camping fork/spoon set when out and about if needed. “9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.” That’s a classic OCD fear. Nothing to do with gluten as such. OCD brain is using gluten as the excuse here. I personally have the habit of using a cleansing wipe or dust cloth on my phone, nightly, that eases this sort of worry. For example a micro fibre dust cloth will do the trick, keep one on your nightstand? They are antibacterial as particles cling to the cloth. “10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers.”  NO. But again these OCD thoughts are hard to argue with. If in doubt, just a quick wipe with a cloth daily should suffice. Normal cleanliness practice. But if you don’t, or forget, don’t sweat the small stuff. “11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.” Better if it is gluten free, yes. “12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc.” Still safe if do not explicitly contain gluten grains / derivatives AND if within the use by and use within dates. “I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore.” Really hope these replies to your questions help. Just remember, in the midst of overwhelming thoughts and darkness under OCD clouded vision, the light and sunshine is always shining above. Take a moment or two when you are able in each day - even if it’s last thing at night - to meditate. Focus on something that you enjoy and appreciate. Or sit in a quiet space and try to relax and tune in to your higher self. Ask for guidance and soothing from your guardian angel. Over time it works but don’t worry if your brain is anxious. Eventually it will quieten down some. Try to focus on a real food, nutrient dense and naturally gluten free diet, this will help your anxiety and future health in the long run. Please eat real food - not cornflakes and sandwiches. Eat a steak, eggs or fish for example. Gluten exposures may happen, but don’t sweat it, dust yourself off so to speak, and carry on with a natural gluten free diet as best you can. Own your OCD don’t let it own you! Similarly, when it comes to a gluten free diet for celiac disease, own the process, don’t let it own you! You’re 18. That’s great. I’ve been managing OCD since childhood (in my 40s now. Many years of research, trial and error so to speak. Diet makes a difference. To quote Doc Brown to teenagers Marty and Jennifer, ‘ …your future hasn’t been written yet. No one’s has. It’s whatever you make it. So make it a good one.’
    • maryannlove
      Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan.  Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist.  Staying on my Mylan until it's gone.  (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down.  Will be forever grateful to her.  Apparently high percentage of folks with Celiac also have Hashimotos so all this relevant/helpful on Celiac.com.    
    • KimMS
      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we can't guarantee 100%, but it's likely safe category." I'm wondering if it is worth switching to Amneal or at least getting my thyroid levels checked. If the med is causing my symptoms, I'm guessing it's not because of gluten but maybe the potency is different from Mylan and I need different dosing. Accord was recalled for lower potency, but my pharmacist said the pills I have were not part of that lot.  
×
×
  • Create New...