Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee Ugh!


GFreeMO

Recommended Posts

GFreeMO Proficient

After eliminating dairy, soy and most processed gluten free items, I am still feeling very gassy and uncomfortable. This morning I felt pretty good when I got up, that is until I had my cup of coffee. I am not tolerating coffee anymore. It leaves me feeling very similar to how I feel when I have been glutened. I don't get D with it but I get very bad gas pains and a trapped gas feeling. It's apparent that I need to go off coffee and switch to decaf tea now. I was just wondering if anyone else has similar issues with coffee.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Coffee is one of those things your body may "see" as gluten. Some people have the same issue with tea, or decaf tea. Try it and see.

I almost freaked giving up coffee (I was in the try anything stage). I dont think coffee is a problem, but strangely enough I lost my taste for it. But oh wow do I have a chai habit now!!

GFreeMO Proficient

I just read a few articles about how coffee can be cross reactive for celiacs. I think that means that the body will have a reaction because it is recognizing coffee (or soy, casein,) whatever it may be as gluten even though it's gluten free. Interesting.

AMom2010 Explorer

I have never been able to tolerate coffee. Even when I sneaked it when I was little it made me sick to my stomach. Now I feel terrible all over when I drink it.

T.H. Community Regular

Do you have any issues with corn? I just found out the other day that coffee is often polished with cornstarch - wacky crazy stuff.

Poppi Enthusiast

Pricklypear, I could have written your post!

When I have coffee now I feel glutened for a few hours. Brain fog, nausea, major fatigue and headaches. I was heartbroken to give up coffee, I love coffee.

I've replaced with with Chai. I drink a lot of it. I find it more satisfying than other teas because it has such a complex flavour. I have at least 6 varieties of chai in my cupboard.

pricklypear1971 Community Regular

Pricklypear, I could have written your post!

When I have coffee now I feel glutened for a few hours. Brain fog, nausea, major fatigue and headaches. I was heartbroken to give up coffee, I love coffee.

I've replaced with with Chai. I drink a lot of it. I find it more

satisfying than other teas because it has such a complex flavour. I have at least 6 varieties of chai in my cupboard.

It's so good, isn't it???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cait Apprentice

Yes! I'd been off coffee for a bit, then started drinking it again recently. Can't tolerate it anymore. Am also a chai junkie now. What are your favorite kinds?

pricklypear1971 Community Regular

Yes! I'd been off coffee for a bit, then started drinking it again recently. Can't tolerate it anymore. Am also a chai junkie now. What are your favorite kinds?

I've tried Oregon Chai less sweet and Tazo. I prefer Tazo.

I like brewing by the bag, but it's only "tea" - not strong or spicy enough for milk. I'd love to maker own but have hesitated to commit with all the food weirdness.

RollingAlong Explorer

Has anyone seen any research that supports the idea of coffee crossreacting with gluten. I've seen this idea, but not any research.

pricklypear1971 Community Regular

Has anyone seen any research that supports the idea of coffee crossreacting with gluten. I've seen this idea, but not any research.

Cyrex Labs is who I see referenced regarding this. I can't find the research, but there are articles EVERYWHERE. too many to sift through to find the research. I haven't worried much about it since I figured out it doesn't bother me, and developed the chai habit.

Here's a kink to the test:

Open Original Shared Link

pricklypear1971 Community Regular

This might be helpful.

Open Original Shared Link

dilettantesteph Collaborator

That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it.

I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans.

Coffee is one of my treats.

pricklypear1971 Community Regular

That gluten cross reactivity stuff seems to be unsubstantiated. I spent a lot of time checking references and none of them seemed to substantiate it.

I have problems with a lot of coffee, but do fine with Wegmans organic, washed whole beans.

Coffee is one of my treats.

We always buy organic, too. Perhaps that helps. I've heard of people having coffee issues. - not gluten related, usually caffeine or chemical.

Poppi Enthusiast

We always buy organic, too. Perhaps that helps. I've heard of people having coffee issues. - not gluten related, usually caffeine or chemical.

I have tried coffee from a variety of sources, caffienated, decaf, organic, regular, locally roasted, factory roasted... it all makes me feel like I've been glutened. I know that anectodes are not data but my experience is definitely that my body sees coffee, thinks gluten and takes a few hours to sort out the mistake.

thleensd Enthusiast

Do you have any issues with corn? I just found out the other day that coffee is often polished with cornstarch - wacky crazy stuff.

Wait, what? Ugh, this is not good. Do you have a link or any more info? Would it rinse off?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,927
    • Most Online (within 30 mins)
      7,748

    drw80whz
    Newest Member
    drw80whz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.