Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question Regarding Dairy-Free

MotoMommy

Recommended Posts

MotoMommy Newbie
MotoMommy
Posted

Hello,

I have now been wheat/gluten free and dairy free for two weeks. (No major changes yet.) My gastroenterologist suggested that I go dairy free for awhile as well as wheat/gluten free.

Wheat/gluten free has been fairly easy for me. The hardest part of my diet is the dairy part!! Many gluten-free products that I would like to have contain dairy. How do I know I really have to go that drastic? Could I have a little lactose-free milk or put lactase drops into something dairy? I have lots of stomach problems...so would lactose-free not be enough and I need complete dairy free? Should I go dairy-free for a certain amount of time and then introduce lactose-free stuff or could I start with lactose-free and if not feeling well then go dairy-free? You get the picture! Aughhhh! Any suggestions on what worked for you is appreciated. :)

Sonja

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

When doing a trial I'd avoid the gluten free products anyway. They gave me a lot of trouble and even cross contaminated my son. When we went strictly to whole foods we all did much better. It's also much easier to identify what is giving you trouble that way. We followed the GAPS order of reintroducing dairy. I have been able to introduce ghee and homemade yogurt from raw milk. My partner can handle fresh raw milk and butter in moderation and she and the kids can both eat hard cheese and dairy kefir. I can have gluten free firm gorgonzola but have reacted badly to other cheeses.

mushroom Proficient
mushroom
Posted

The best way to find out what you can eat (i.e., differentiating between casein and lactose intolerance) is to go totally dairy free, and then challenge after a week or two with a well-aged cheddar cheese, or some yogurt. There is very little lactose in these products but plenty of casein. If you tolerate these fine you will only have to avoid the lactose, like milk, cream, ice cream , frozen yogurt (at least that's all I had to cut out - I could even have sour cream because it's cultured). I initially used the Lactaid tablets but then they were not enough. There are lots of good milk substitutes like almond and hemp, and hemp and coconut ice cream from Whole Foods if you really get a craving. I would recommend staying away from soy or Rice Dream (refined with barley).

Skylark Collaborator
Skylark
Posted

When I go dairy-free, I do it strictly. I agree with Shroomie about challenging, but I'd suggest giving it three or four weeks before you challenge. You want any inflammation to really settle down and that takes at least a couple weeks.

stanleymonkey Explorer
stanleymonkey
Posted

tofutti cream cheese is gluten free and daiya cheese is also

MotoMommy Newbie
MotoMommy
Posted
  • Author

Domesticactivist, Mushroom, Skylark, and StanleyMonkey,

Thank you all for your input. It is wonderful to be able to ask a question, go about my day, and come home to all this wealth of info in your responses! Thank you, it helped me to make my gameplan on how to go about this. I will try to stick to whole foods and then in a month start challenging to see if I can tolerate some forms of dairy. Blessings to you all.

Sonja

Reba32 Rookie
Reba32
Posted

when you're initially going gluten free, I think it's best to stick with whole natural foods, rather than just manufactured substitutes for manufactured gluteny foods. Go with the foods that Nature made gluten free. Stick with the outside aisles at the grocery store, just plain fresh vegetables, fruits, meats, fish. Plain frozen fruits and vegetables are generally less expensive, especially in winter.

Manufactured foods lack vitamins mostly, and are usually full of added sugars and salt that we just don't need, and don't add anything to our ravaged bodies anyway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MotoMommy Newbie
MotoMommy
Posted
  • Author

Thank you Reba! :D

granolagal Apprentice
granolagal
Posted

Hello,

I have now been wheat/gluten free and dairy free for two weeks. (No major changes yet.) My gastroenterologist suggested that I go dairy free for awhile as well as wheat/gluten free.

Wheat/gluten free has been fairly easy for me. The hardest part of my diet is the dairy part!! Many gluten-free products that I would like to have contain dairy. How do I know I really have to go that drastic? Could I have a little lactose-free milk or put lactase drops into something dairy? I have lots of stomach problems...so would lactose-free not be enough and I need complete dairy free? Should I go dairy-free for a certain amount of time and then introduce lactose-free stuff or could I start with lactose-free and if not feeling well then go dairy-free? You get the picture! Aughhhh! Any suggestions on what worked for you is appreciated. :)

Sonja

Just wanting to say thanks for posting this MotoMommy! I was just diagnosed 3 weeks ago and haven't gone dairy free. I've been struggling with the same dilemma so this post was helpful for me too! B)

AVR1962 Collaborator
AVR1962
Posted

You mentioned a recent diagnosis and lots of digestive issues. I would go off both for 2 months to allow time for some healing before trying any dairy and when you do try it, you can take lactose digestive enzymes if you find out it is your issue. To avoid possible CC or getting confused with another possible food allergy at this point, I would avoid the gluten-free products. There's additives in both dairy free and gluten free foods that don't always set well on the stomach. More than anything you want healing before you sart experimenting.

MotoMommy Newbie
MotoMommy
Posted
  • Author

I'm glad this post helped you Granolagal! :D And AVR1962...thank you!

Sonja

BeFree Contributor
BeFree
Posted

"The hardest part of my diet is the dairy part!!"

It's hard...I'm doing OK without gluten but I am really craving cheese and dairy products the most. I tried eating dairy for about a week but I just didn't feel right. It was a heaviness and tiredness that built up in my system slowly. I decided to avoid dairy for awhile to give my body a chance to heal. It's hard though.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.