Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You Might Be Celiac If.......


AVR1962

Recommended Posts

catsmeow Contributor

You might be celiac if....

You've gone to the grocery store and were excited to find a gluten free isle just to turn around and see that it's also the bread isle. Doh! lol :D

GGGGRRRR..that is TRue for my local HEB grocery store!!! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 61
  • Created
  • Last Reply
Ellie84 Apprentice

...if you find yourself "seeing celiacs everywhere" and have to stop yourself from telling them their obvious ill health is from gluten.... :ph34r:

That's so true... Everytime I meet people on forums and they complain about GI-problems I tell them about celiac disease. Call me weird, but I feel it's my duty to do so. celiac disease is largely undiagnosed here in NL: only 1 out of 8 is diagnosed and that's an optimistic number. Missing: over 125,000 patients. The biggest problem is that doctors don't take it seriously here. Most Dutch coeliacs have been sent home for years with "everyone's got GI-problems at some point, it's just IBS". It usually takes years before doctors actually start testing anything, and even then wrong advices are given.

My doctor put me on a diet before I ever had a biopsy. This elongated the whole process with a year, I even had to do a gluten reintroduction to get my biopsy. Gluten reintroduction failed horribly after a few weeks, leading to a nice stay at the hospital again. It was unsafe to continue, so my gastroenterologist gave me the diagnosis by evidence of my severe reactions to gluten.

After these experiences I feel that someone has to educate the public. If the doctors know nothing about it, how else should people know? So I never hide that I have celiac disease and I explain a lot to whoever wants to hear. The more people know about it, the better.

mushroom Proficient

Don't feel bad for the Dutch, Ellile -- they estimate that 97% of Americans are undiagnosed :unsure:

Di2011 Enthusiast

I think this is probably anywhere?? I look at people now and think 'get off the gluten'.

anyways.. back to topic...

you might be celiac if you feel/look like crap

Aim should be to test babys at birth...

Roda Rising Star

You might be celiac when you go to the bathroom and can identify the last thing you ate. :blink: (yeah, I know it was gross) :P

kareng Grand Master

You might be Celiac if you think this is a funny gift for your GI when filled with vegetable soup:

The Toliet Mug

2449.detail.a.webp

IrishHeart Veteran

Aim should be to test babys at birth...

I believe they do in Italy. Very wise.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

You might be Celiac if you think this is a funny gift for your GI when filled with vegetable soup:

The Toliet Mug

2449.detail.a.webp

That is AWESOME!!!!!!.....Dr G. is sooo getting this for Christmas....

IrishHeart Veteran

After these experiences I feel that someone has to educate the public. If the doctors know nothing about it, how else should people know? So I never hide that I have celiac disease and I explain a lot to whoever wants to hear. The more people know about it, the better.

I could not agree more! Same for me!!!

My cousin says if I were Native American, my given name would be "She Who Sees Celiacs Everywhere" (much like that creepy little kid in the movie who sees "dead people" :lol: )

Ellie84 Apprentice

Imagine you only have the energy to make 2 christmas cards. You might be a celiac if one of them goes to your grandfather and the other one to your gastroenterologist.

IrishHeart Veteran

Y M B a C.... if your GI doc is on speed dial.

kareng Grand Master

Y M B a C.... if your GI doc is on speed dial.

Y M B a C .......took me a minute! :P

IrishHeart Veteran

Y M B a C .......took me a minute! :P

Yes, but I know you all are quick....How lazy of moi, I know....My Mom was here for a week and it was my first THX since 2006 that I was NOT SICK (YAAAY!!) and I was a hostess once more and I am a wee bit tired today. whew. :lol: eating pie and being lazy

ElseB Contributor

There's a stomach bug going around and you are actually jealous of the people with diarrhea. (true story lol)

:lol: Let me guess, you also get C after being glutened?

Lisa Mentor

Here is a thread that was begun several years ago....sit back and enjoy!

Di2011 Enthusiast

You may be Celiac if ... you lose your sense of humour for a number of days at a time..

and you are SO much more grateful than others when you get it back. :)

IrishHeart Veteran

You may be Celiac if ... you lose your sense of humour for a number of days at a time..

and you are SO much more grateful than others when you get it back. :)

:lol: Glad you're feeling better, kiddo.

Y M B a C if you totally understand when someone is feeling out of sorts because they don't feel so hot.... ;)

  • 1 month later...
kareng Grand Master

You might be Celiac if....

You have in depth discussions on toast, toasting times and toasters.

navigator Apprentice

He! He! :D:D:D

Celiac Ninja Enthusiast

You may be a celiac when...you have to recite the celiac information in your head that you'll be telling people for the rest of your life, and your getting good.

love2travel Mentor

...if you wait for the first Tuesdsay of the month to get 20% off at your favourite store that stocks those expensive gluten-free flours and recognize everyone in the store... ;)

IrishHeart Veteran

Y M B a C if you look forward to reading funny new posts on C.com

Jestgar Rising Star

......You roll your eyes at someone discussing a "tummy big" that gave them a day of gastrointestinal issues.

IrishHeart Veteran

......You roll your eyes at someone discussing a "tummy big" that gave them a day of gastrointestinal issues.

:rolleyes: Do you just wanna say "waaaaa, poor you!" and then play a tiny fiddle on your fingers? :lol:

  • 3 weeks later...
Cathey Apprentice

Here is a thread that was begun several years ago....sit back and enjoy!

Thanks Lisa, what a great laugh and smile I have now. Thanks for sharing that post.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.