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Wow! Suddenly Feel Better Than Ever Before!

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navigator Apprentice
navigator
Posted

Started to feel an improvement a couple of weeks ago but for a week now I've felt better than at any point in my life! I keep thinking,' this is how other people feel, I had no idea!' I'm staying awake all day and evening, I'm walking every day, no aches, palapatations or numbness/tingling. I've even worked a day as a receptionist at the place where I go for massage, reiki and reflexology.

I had to finally give up my well-paid job as a social worker due to intimidation,bullying and threatened disciplinary action by senior management due to my illness. This was the first I'd worked since May, with the exception of one week when I went back to work against GP's advice to try and prevent disciplinary action. I was so ill, I put in my resignation the following week. It felt good to be out for the day. I'm now going to work a day a week and if I continue in good health I can increase this.

We travelled about 250 miles each way to visit my daughter at the weekend and I stayed awake for both journeys. My husband and I are so happy about this - it's a first. Normally I can't stay awake on any journey longer than 45 minutes. :D

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Di2011 Enthusiast
Di2011
Posted

Oh my isn't this the most amazing yet bizarre of "ah-ha" moments!!!??!! I had mine about 2 weeks ago. The washing up was done, clothes washed, floors clean, vaccumed and I was sitting at the table wondering what was next... "ah-ha" was this what some normal/healthy people actually do????????????????????????????

Metoo Enthusiast
Metoo
Posted

I had mine yesterday! I feel so awake! I get up and go to bed with feeling like I am dragging! My stomach still is a little messed up....but yesterday I ate a bunch for lunch and felt FULL not pain! I realized that is what full is supposed to feel like!!

maximoo Enthusiast
maximoo
Posted

I'm so happy for you (& everyone else who has improved!) I have a friend with a host of problems: fibromyalgia, herniated/bulging discs, scoliosis, gastro problems, etc. She has to take 50,000 units of Vit D daily! She was blood tested for celiac but it was negative. However I still begged her to go gluten-free & she finally did. Within 2 weeks the severe head/neck pain she has every single day of the yr has diminished, and her gastro problems are gone. I told her she will continue to improve. I almost feel like a Dr. b/c my advise helped. ; ) So to everyone you all will continue to improve, some more slowly than others

I wish you all the best!

Silencio Enthusiast
Silencio
Posted

I would like to know how long you guys were having day to day problems before you started feeling better. I think it would be helpful to others too.

navigator Apprentice
navigator
Posted
  • Author

I first started attending GP and hospital 3 years ago with debillitating fatigue. I'd had trouble with bowels, bloating, palpitations and joint aches all my life and just thought that everyone was the same and so never sought medical advice about these. I was finally diagnosed on 6th May this year and initially did not experience any improvement. At the end of August - beginning of September I started having good days/bad days. About 2/3 weeks ago I stopped having bad days and for the past week I have felt better than at any time in my life.

Hope this is the information you were looking for.

India Contributor
India
Posted

Silencio - I've not had such a dramatic recovery but I can tell you that I do feel much better than I used to. My recovery was quite rough as I felt rather worse before I got better. After about eight months, I started figuring out my additional intolerances (soy, corn and FODMAPs) and that really helped. If you're not feeling better yet, keep looking for answers.

Navigator - glad to hear you're doing so well!

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Silencio Enthusiast
Silencio
Posted

Yeah im feeling totaly fine right now, its just the beginning though. Im sure it will get a lot worse once im totally off gluten and take some in by accident.

  • 2 weeks later...
navigator Apprentice
navigator
Posted
  • Author

My improvement has continued and I'm still working one day every week. It feels really good to be working all day and still feel okay at the end of the day - and I now get my treatments at half-price as I work every week :)

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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