Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do All Celiacs Have A Leaky Gut?


alicewa

Recommended Posts

alicewa Contributor

Do all celiacs have a Leaky Gut? Even when on the gluten free diet? I've heard they normally do (and almost always will continue to do so) as damage can occur even when gluten free.

Mine was a mild-to-moderate case. I'm really worried. This can be the cause of diabetes and other autoimmune diseases!!!

Please help if you can. I'm worried :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Omma Rookie

Do all celiacs have a Leaky Gut? Even when on the gluten free diet? I've heard they normally do (and almost always will continue to do so) as damage can occur even when gluten free.

Mine was a mild-to-moderate case. I'm really worried. This can be the cause of diabetes and other autoimmune diseases!!!

Please help if you can. I'm worried :(

I have Leaky Gut, but not diagnosed celiac although I suspect I am. As far as the Leaky Gut goes I'll be interested to hear what others have to say about it. My Dr. (naturopath) has been working with me trying to heal my gut by using various herbs and staying gluten free. I will get tested again 9months after the first test to check my progress. My biggest issue with the Leaky Gut right now is malabsorption, not getting enough nutrients from my food.

Good luck to you!

rosetapper23 Explorer

Okay, this is a complicated issue, and I can only speak to what I learned at a celiac conference. The physiology was a little over my head, but the basic concept was this: There are junctures that line our intestines. When you don't have celiac, they open very briefly to allow nutrients and small molecules to pass through the intestinal lining. With celiac, for some reason the junctures remain open for extended periods of time when gluten is ingested. This causes large molecules, like gluten, to pass unrestricted through the intestinal lining, causing Leaky Gut and triggering autoimmune diseases. One of the potential treatments for celiac deals with stopping the action of the junctures remaining open--rather, the medication will cause them to close quickly the way they're supposed to. If I understand this concept correctly, as long as we maintain a strictly gluten-free diet, the Leaky Gut issue should resolve. I invite others to provide their comments on this topic, since I'm not an expert.

GFinDC Veteran
cahill Collaborator

My leaky gut has responded well to rotation diet (in addition to being gluten and soy free)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,777
    • Most Online (within 30 mins)
      7,748

    Sandra Carter
    Newest Member
    Sandra Carter
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.