Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nutritionist Needed

Mizzo

Recommended Posts

Mizzo Enthusiast
Mizzo
Posted

I live on Ri border and cannot drive into childrens hospital Boston for nutritionist appt's. Anyone use a nutritionist in the area they can recommend? From Providence to Marlboro, Ma area along rte 495 belt

I just had an appt with my Pedi offices new Nutritionist who didn't know what the hell she was doing. I left the appt with a standard healthy lifestyle form with a couple of things crossed off and bulger and spelt bread added. YUP !!! She said I will look a few things up for you for our next appt. Well I got home and looked up Spelt bread and bulger and am not going back of course. Maybe as a nutritionist she should have looked a few things up for me before she sent me home with really dangerous advice. I am writing the office to inform them of my decision to stop using her and why.

That being said I don't know who else to direct my nutritional questions too and am looking . My daughter is in the 98th percentile for wt and ht. with a ltd variety of vegetable eating so I need solid advice.

Please, only recommendations for those you have had good personal experience with.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

No reco except advice to contact a local Celiac support group. They can usually reco someone.

Mizzo Enthusiast
Mizzo
Posted
  • Author

No reco except advice to contact a local Celiac support group. They can usually reco someone.

Our local support group (small) is all adults , no families and they do not seek nutritionist help, unfortunately for me.

pricklypear1971 Community Regular
pricklypear1971
Posted

Perhaps another group, reasonably nearby knows of one you can ask for a referral?

I've noticed Celiac specialists seem to network...if you can find a Celiac nutritionist somewhat nearby that may be your best bet for a local referral.

frieze Community Regular
frieze
Posted

nutritionist is not a legally protected title in the US. Dietician is. good luck

Cara in Boston Enthusiast
Cara in Boston
Posted

Do you see the Nutritionist at Children's? My son (6) was diagnosed there so we see their nutritionist twice a year. I don't recall her name, but she seemed to know what she was talking about. We usually meet in a group setting with one or two other families. I also have celiac disease and see a WONDERFUL nutritionist at BIDMC. Her name is Melinda Dennis. She also has celiac disease and has authored some books on the subject and founded a local support group. Perhaps if you can get in contact with her she can recommend a pediatric nutritionist who can help you. Did you talk to your doctor at Children's? They should be able to help as well. We have been very pleased with our experience there. They didn't give up (like the doctors at Mass General) on my son after conflicting blood test results and eventually found that he did indeed have Celiac Disease.

Cara

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,047
    • Most Online (within 30 mins)
      7,748
    terri migut
    Newest Member
    terri migut
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.