Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Not Trust Anyone!

Elizabeth5220

By Elizabeth5220
in Coping with Celiac Disease

Recommended Posts

Elizabeth5220 Apprentice
Elizabeth5220
Posted

I was at my brother's for Christmas weekend and his well-meaning wife told me that Bugles corn chips were gluten-free. As her father has been gluten-free for over a decade and she is familiar with gluten-free lifestyle, I trusted her. She even made me Betty Crocker gluten-free brownies.

So I just went grocery shopping and picked up a bag of Bugles at the store to read the ingredients and....NOOOOOOO!! They contain wheat flour. So all week long I did not eat all of the gluten filled goodies only to eat stupid Bugles and be glutened!!!

Lesson: Do not eat anything that I don't personally read the ingredients.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

You are so correct. Some people say they follow the diet very strict but then they cheat! Just crazy... I just ran into a person today who said there sister is gluten-free & is very good about it because she works in a doctor's office & knows all ther is to know....yeah, right I then find out she eats gluten foods all the time but it doesn't bother her so she's okay with some gluten.. She is dx'd celiac. I almost blew up & wanted to scream...

These type of things annoy me so much... Pure insane smart people....

Booghead Contributor
Booghead
Posted

:P If you didn't get sick no big deal, just this once.

My friend and her sister are both dx celiac. My friend has no symptoms so she frequentyl cheats (every week) her sister who is deathly ill when eating gluten also cheats "but not as much".

LOL it's not my place to tell them how to live.

mushroom Proficient
mushroom
Posted

The only people they are cheating is themselves - their health. Why should we care (except of course that it makes others believe everyone can - and should, just this once :P )

mommida Enthusiast
mommida
Posted

Some of the Bugles flavors do not contain gluten. They are not labeled "gluten free".

mamaw Community Regular
mamaw
Posted

I have never found any bugle that was gluten-free...not even the plain one...are you sure it is bugle's that you seen gluten-free????

Lisa Mentor
Lisa
Posted

I have never found any bugle that was gluten-free...not even the plain one...are you sure it is bugle's that you seen gluten-free????

Nor have I. They used to be my favorites. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

I ate them about 3 months ago. They were chocolate (maybe some peanut butter) with a lot of powdered sugar, I can't remember what the flavor was listed as. I had a small handfull and put them out for guests at a party. I did not get sick and I try to read labels all the time (especially with something that I don't usually eat).

mamaw Community Regular
mamaw
Posted

I just went to General Mills & the choc.peanut butter bugle says it may contain wheat in the ingredient list...the original states may contain milk & wheat...

I used to really like these too but I don't think I would eat them...

Elizabeth5220 Apprentice
Elizabeth5220
Posted
  • Author

:P If you didn't get sick no big deal, just this once.

My friend and her sister are both dx celiac. My friend has no symptoms so she frequentyl cheats (every week) her sister who is deathly ill when eating gluten also cheats "but not as much".

LOL it's not my place to tell them how to live.

The thing is, I think I did get sick. I felt nauseous most of the weekend and a little feverish--also I very cranky and mentally dull. I thought it was the flu but now wonder....

My thought on cheating...hypertension is a very dangerous disease that has few if any symptoms until you die of a stroke or heart attack. If you are dx celiac and don't follow a gluten-free diet, just because you don't have symptoms does not mean that you are not doing damage and will ultimately cause serious problems...

Reba32 Rookie
Reba32
Posted

some people just don't care enough about themselves, and don't attribute their headaches, join pain, high cholesterol, weight problems, and brain fog to eating gluten. They figure they don't get gut pain, so they're ok. It's their choice.

Celtic Queen Explorer
Celtic Queen
Posted

It's funny because my Uncle called me the other day and said he wanted to send our family some cookies. Then he thought about me and didn't want to tempt me. I told him I wouldn't be tempted at all and that I felt so much better gluten free that I wasn't about to ruin that. I told him hubby and my son would enjoy the cookies.

I don't think he truly got it until he was having Christmas Eve dinner with my cousin, who is also diagnosed. He said said she explained it all to him in detail about eating gluten free has made such a big difference in her health. I think a light bulb came on for him.

Personally, I'm still fighting so hard not to get accidentally glutened that I'm not even remotely interested in doing it on purpose.

srall Contributor
srall
Posted

I agree: Either I read the label myself or I make it myself before I eat it...the risk is too great.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,974
    • Most Online (within 30 mins)
      7,748
    LRB
    Newest Member
    LRB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.