Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


Bella001

Recommended Posts

Bella001 Explorer

Hello!

I've been gluten free for nearly two years. I've become more and more concerned about a reaction to food to the point I'm avoiding things I may be able to eat. Can somebody please ease my mind or confirm my fears about what I may eat? I keep eating the same stuff day after day and it's getting old!

Here are my foods of concern:

Pickles, Boar's Head. I know they say all their stuff is gluten free but it has vinegar, that is my concern.

Sauerkraut-Boar's Head in a bag.

Rum, I use to drink Malibu and haven't since. I only drink red wine now. I cannot drink vodka, it kills my stomach!

I feel like all I eat is chicken, fish, red meat, fruit, and veggies! Please give me some advice!

P.S. I cannot have nuts, eggs, or dairy either!

Thanks so much!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I don't know for certain about Boar's Head but I can say they are a very reputable company and have always been quite forthcoming with information. I'm sure if you called they would let you know if they use distilled vinegar or another type that is gluten free. They make the best sauerkraut that you can buy in a store, I'd hate to realize I have to give it up. I quit drinking years ago so I wouldn't know a thing about that other than the fact that I can't have a beer with my brother when I visit home.

Sweetea888 Newbie

I was diagnosed with celiac disease at the end of May in 2006. When I had been gluten free for about two years (about the same place you are now), I had a similar sort of meltdown where I wanted to cry every time I went to a restaurant, went to the grocery store or was invited to a friend's house to eat.

But, you can get past this. There are many, many sources available now where you can figure out what you can eat and be SURE you are not getting any gluten. First, WalMart (and Sam's Club) have very clearly marked gluten-free products, for instance. You didn't say what grocery stores are near you, but Kroger and several other national chains have pretty good gluten free products. Also, a lot of Indian and Thai foods are gluten free.

You seem to be concerned about vinegar...there is a lot of conflicting information about there about vinegar. I feel more comfortable using apple cider vinegar and staying away from white vinegar, but most sources say it is o.k. in the United States. In any event, I try to stick with pickles that the company says are o.k. Vlasic and Mt. Olive both have a lot of gluten free pickles...check their websites or email or call them. Also www.thatpickleguy.com has an online store and the pickles there are all gluten free. I have never had any problem with any Boar's Head meats, cheese or any other of their products...and I"m pretty sensitive.

I eat a lot of shrimp and fish, but I also cook turkey breast and turkeyloins. I get really, really tired of chicken. I can't have pork or beef because of a tick bite allergy problem, so I feel your pain on being limited. There are a number of refried beans that are gluten free and most corn tacos and taco shells are gluten free. There are also gluten free corn tortillas, and with corn and rice and all the other ingredients, a lot of Mexican made at home is good and inexpensive. There are also a lot of salsas that are gluten free.

Just recently, Betty Crocker has come out with several products that make having dessert less expensive, easier and delicious...now there are cake mixes, frostings, and chocolate chip cookies that are clearly marked gluten free. Also, both Rice Krispies and

and most of the Chex (except Wheat, of course) are now gluten free.

HOpe this helps. Don't get discouraged. There is a LOT of information available online.

mamaw Community Regular

All Boar's Head deli meats are labeled as well as Dietz & Watson deli meats. Both excellent !.

Plain old Heinz vinegars are gluten-free except for Malt vinegar....

I make our homemade sauerkraut but to date I have never seen kraut that wasn't okay to eat. They do put perservatives in bought kraut...usually kraut is just cabbage & salt....I have eaten bagged silver floss..

hth mamaw

Jestgar Rising Star

Also, both Rice Krispies and

and most of the Chex (except Wheat, of course) are now gluten free.

HOpe this helps. Don't get discouraged. There is a LOT of information available online.

The brown rice Krispies, and some of the Chex - be sure to read the label!

lynnelise Apprentice

Rum is made from distilled sugar cane so it is safe to drink!

Metoo Enthusiast

Rum is made from distilled sugar cane so it is safe to drink!

I drink clear rum like Malibu and Heaven Hill.

I clearly cannot have vodka it works a number on me, its not good. I really enjoyed vodka too, but oh well it doesn't like me now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,337
    • Most Online (within 30 mins)
      7,748

    Susan1001
    Newest Member
    Susan1001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.