Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-Free?


yelahsky

Recommended Posts

yelahsky Newbie

Hi, I've recently had to start eating gluten-free and I'm still learning to say the least. I was wondering if everything that says it is gluten-free actually is gluten-free?? I had some salad dressing that said on the back that it was gluten free but it still seemed to bother me, so I'm not sure if it was that or something else in it or with my stomache.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Hi, I've recently had to start eating gluten-free and I'm still learning to say the least. I was wondering if everything that says it is gluten-free actually is gluten-free?? I had some salad dressing that said on the back that it was gluten free but it still seemed to bother me, so I'm not sure if it was that or something else in it or with my stomache.

Welcome to the forum!

When we're new, it seems like we can react to most anything and everything. And since the FDA has not come up with guidelines as to what exactly constitutes gluten-free, we are at the mercy of manufacturers, some of whom are very good about testing and labeling. Or you could be reacting to an ingredient in the salad dressing even if it is gluten-free or to something you ate a day or two earlier. 'Tis all such a puzzle.

irwinjo75 Newbie

From what I've last found, (which it seems "facts" can be changed every day <_<) gluten free can actually be 20 ppm gluten. Has anyone else heard of that one? So, that would mean that even if it says "gluten free" it isn't always 100% gluten free. Some products are really and truly free of all gluten, but then products can be labeled as gluten free with that 20ppm level. The food industry has put up a long, hard battle to keep from having to put what is in their foods on the label and so it makes it really difficult to buy prepared foods. If only they knew how many struggling Celiacs there are who would buy their foods if they could be sure they wouldn't get "glutened" with them! Watch the "natural flavors" in foods. They can be the culprit a lot of times and often it is from barley or corn (if corn is a problem for you like it is for me, watch out ... it is everywhere)

BabsV Enthusiast

I had some salad dressing that said on the back that it was gluten free but it still seemed to bother me, so I'm not sure if it was that or something else in it or with my stomache.

When I was first diagnosed it seemed like everything set me off and I felt like I was having a reaction. I remember reacting to a mixture of red wine vinegar and olive oil that had been drizzled over a salad -- it was agony. You might just want to go very simple and natural in terms of meals for a few weeks and then slowly add foods back in. This has been working for me although at 5+ months in I still have to be careful about anything acidic and I can't do anything particularly spicy at this point. Hopefully it will all come in time.

CeliacMOM78 Rookie

From what I've last found, (which it seems "facts" can be changed every day <_<) gluten free can actually be 20 ppm gluten. Has anyone else heard of that one? So, that would mean that even if it says "gluten free" it isn't always 100% gluten free. Some products are really and truly free of all gluten, but then products can be labeled as gluten free with that 20ppm level. The food industry has put up a long, hard battle to keep from having to put what is in their foods on the label and so it makes it really difficult to buy prepared foods. If only they knew how many struggling Celiacs there are who would buy their foods if they could be sure they wouldn't get "glutened" with them! Watch the "natural flavors" in foods. They can be the culprit a lot of times and often it is from barley or corn (if corn is a problem for you like it is for me, watch out ... it is everywhere)

Corn is a problem for you as a celiac or for a different reason? Corn meal and tortilla's are my go to! AHHAHAHAHHAAA!

kitgordon Explorer

Some people have additional food intolerances such as corn or soy, but I believe most celiacs are safe with corn. If you have just started the diet, you may have stomach problems just because you aren't healed yet; it doesn't always mean that you've been glutened or have additional intolerances.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,024
    • Most Online (within 30 mins)
      7,748

    Maus14
    Newest Member
    Maus14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.