Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Everything Got Better Except The Migraines.....why?


nadien

Recommended Posts

nadien Newbie

Hi,

Gluten free for 4 months and dairy free. I had a lot of problems that disappeared with saying bye to gluten, but not the daily migraines. Does it take longer for some symptoms to leave than others?

THANK YOU!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sora Community Regular

Hi,

Gluten free for 4 months and dairy free. I had a lot of problems that disappeared with saying bye to gluten, but not the daily migraines. Does it take longer for some symptoms to leave than others?

THANK YOU!!!

I am new so I am not sure on that but I do know that migraines can be caused by many other things. Chocolate, alcohol, especially red wine, too much acid, tomato, juices and tea. Caffeine is a big migraine trigger for some and cheese and nuts and severe weather changes, lots of things. Many years ago I had migraines daily and just kept taking pills and after a while they didn't work so good so took more and more. What happens is what is called a rebound migraine. The pills can actually keep the migraine going. Switching two different types of pain killers will stop that rebound. I ended up in emergency.

Chemicals and preservatives cause migraines for some people and some strong odors. I can't even smell peppermint without getting a migraine.

Don't know if that helps but I sure do sympathize. :ph34r:

Lisa Mentor

My son-in-law gets terrible migraines and we suspect it's MSG related.

When you remove gluten from your system, sometimes you can hear other intolerant voices.

Skylark Collaborator

I had the same thought as Sora. There are a lot of migraine trigger foods we still eat gluten-free.

Pac Apprentice

I join the other posters, check for other food intolerances and allergies. I get incredible migraines from rice.

eatmeat4good Enthusiast

I had migraines too.

Gluten is the worst.

Then Salicylates.

Then MSG...ugh.

Then fish. Yeah, the day after eating it I get a big bad headache.

Now I'm free of migraines except sometimes the menstrual migraine.

Incidentally I've read that those can actually get worse after Celiac is diagnosed and healing starts to take place. It has to do with the hormones.

I agree with everyone else. Foods could be triggering your migraines.

But be careful because daily migraines can indicate other conditions too. Like aneurysm, kidney problems, brain tumor. Not to be scary here, but sometimes we think it's food and it's really a medical condition that needs to be addressed. Tell your Dr. because daily migraines can be dangerous.

nadien Newbie

Thanks yall for the suggestions and advice. Im going to pay more attention to what triggers the migraines.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

And migraines can be triggered by non-food things as well. Barometric pressure and poor cervical alignment are two for me. I couldn't shake mine until I had spent some time with my chiropractor.

cahill Collaborator

My migraines were triggered by nightshades. Mainly potatoes.

sora Community Regular

And migraines can be triggered by non-food things as well. Barometric pressure and poor cervical alignment are two for me. I couldn't shake mine until I had spent some time with my chiropractor.

I forgot the cervical alignment, that's one of mine too. Actually got a migraine last night from shoveling snow.

Chiro's are great for those.

Bubba's Mom Enthusiast

You've been given a good list of migraine triggers, but thought I'd add...you may need a folic acid supplement if you're not getting enough in your diet/or aren't absorbing it well? A deficiency has been linked to migraines, and since you are getting them daily it would suggest it's something you're lacking, rather than something you're ingesting every day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      27

      My journey is it gluten or fiber?

    2. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.