Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac/gerd Mixture

Jeff S.

By Jeff S.
in Coping with Celiac Disease

Recommended Posts

Jeff S. Newbie
Jeff S.
Posted

I first thought I had GERDS. Then When I did my observation and deductive reasoning (process of elimination) I suspected some form of Gluten intolerance. So I began removing gluten from my life.

What I am finding now is tht I must have both. Because when I eat clearly marked gluten free pasta or cereals I am still getting quite a bit of burning in my upper gastrointestinal.

Is having both common? Could it indicate the lack of a particular digestive enzyme? If so then which one?

I welcome any thoughts or insights. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

If you're newly gluten-free it could be anything. You're on a roller coaster for the next 6 months.

I like Digest Gold enzymes and a probiotic.

Jeff S. Newbie
Jeff S.
Posted
  • Author

If you're newly gluten-free it could be anything. You're on a roller coaster for the next 6 months.

I like Digest Gold enzymes and a probiotic.

I am familiar with that product. I have been taking other things lately. perhaps I will try that product now again. Thanks.

Lisa Mentor
Lisa
Posted

Not sure of your history, but if you have a gluten intolerance or Celiac, it will take some time to heal. Dairy is also an irritant until healing can take place, but can be reintroduced later successfully (for most people).

Going gluten free precludes accurate testing should you decide to be pursue conformation with Serology or Endoscopic tests. If you want to go that route, you should remain on a full gluten diet.

Googles Community Regular
Googles
Posted

When I was first diagnosed things that were acidic made my GERD react (ie tomatos, orange juice etc). Now I get it really bad when I get glutened. It can take weeks for it to go away. If you have recently gone gluten free you should do a food journal and see if there is anything that connects when you have it. Good luck.

Jeff S. Newbie
Jeff S.
Posted
  • Author

When I was first diagnosed things that were acidic made my GERD react (ie tomatos, orange juice etc). Now I get it really bad when I get glutened. It can take weeks for it to go away. If you have recently gone gluten free you should do a food journal and see if there is anything that connects when you have it. Good luck.

Thanks for your response. I can eat eggs or meat with no difficulty whatsoever. but even certified gluten free carbohydrates give me an issue....certified gluten free oatmeal, gluten free rice pasta, gluten free cookies all give me a reaction. How ever that rection is less than if I ate their gluten counterpart. It is a puzzle.

But I am acknowledging what has been said here about being completely gluten free for a longer period of time may be required. thanks all.

Jeff S. Newbie
Jeff S.
Posted
  • Author

Not sure of your history, but if you have a gluten intolerance or Celiac, it will take some time to heal. Dairy is also an irritant until healing can take place, but can be reintroduced later successfully (for most people).

Going gluten free precludes accurate testing should you decide to be pursue conformation with Serology or Endoscopic tests. If you want to go that route, you should remain on a full gluten diet.

Yes my D.O. warned me about that. My thinking is why do I need a diagnoses when 1) my body tells me clearly that I cannot handle gluten and 2) medical science does not have any better a remedy than I do (stop eating gluten.) So I am thinking I do not need to go through very much rigamarole.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jeff S. Newbie
Jeff S.
Posted
  • Author

Not sure of your history, but if you have a gluten intolerance or Celiac, it will take some time to heal. Dairy is also an irritant until healing can take place, but can be reintroduced later successfully (for most people).

Going gluten free precludes accurate testing should you decide to be pursue conformation with Serology or Endoscopic tests. If you want to go that route, you should remain on a full gluten diet.

ps. thanks for the reminder about dairy. I guess I need to take that much more seriously. I have been consuming some organic grass fed cows milk 1%.

BabsV Enthusiast
BabsV
Posted

I had a history of GERD due to a sliding hiatus hernia which I finally had repaired surgically -- and the GERD miraculously went away. No pills, I could eat anything without a problem, yay! Fast forward to me developing GERD symptoms that would not go away...not with any PPIs, going on the GERD diet, etc. After a few months of that and lots of tests they finally tested me for Celiac and I had both positive bloodwork and biopsy! As I've healed the GERD symptoms have slowly gotten better but I'm on Prilosec (omeprazole 20mg) twice a day, morning and evening. My doctor is hopeful that over time I will be able to drop the dosage or discontinue it completely. I can tell you that if I get glutened my GERD symptoms are severe for about 24-48 after being glutened. I'm 5 months into the diet and finally starting to see a decrease in abdominal pain but I've noticed I do better if I stick to natural foods and have really had to ramp up my protein intake. I've only just added dairy (hard cheese) back into my diet. So far so good on that one. I'm still not really eating any citrus but was just able to add in tomatoes in moderation. You just may need more time to heal...and stick to a simple, natural diet for a while with minimal gluten-free replacement foods. That approach seems to be working for me.

To deal with GERD symptoms I was told: raise the head (only the head) of your bed several inches -- I put books under the legs of my headboard; skip the fizzy drinks (sodas, seltzers); try to minimize caffeine and alcohol because it can relax the esophageal sphincter which makes the GERD worse; avoid acidic foods and really fatty meals which are hard for your system to digest; don't eat within 2-3 hours of when you are going to go to bed. I swear there was more but can't remember right now. If you search online for GERD symptoms you'll get tons of hits with ways to deal with them.

Good luck.

dilettantesteph Collaborator
dilettantesteph
Posted

With my son and I, GERD is a symptom of glutening. We are among the tiny number of celiacs who can react to the tiny amounts of gluten allowed in gluten free foods. Here is an explanation:

Open Original Shared Link

I hope that helps.

mommida Enthusiast
mommida
Posted

GERD symptoms may be how different conditions present. Some of which have a known association with Celiac.* It depends on how severe the symptoms become that you would go in for treatment.

hernia

some parasite infection*

barret's esophagus

Eosinophilic esophagitus* (This is especially interesting because it has food "triggers", so it can have a direct connection to gluten.)

Ughhh, got to go just found a flea on the cat. :blink:

Scotslass Newbie
Scotslass
Posted

I have had coeliacs for 9 years now and I also have regular and frequent heartburrn / indigestion . I go through rennies like they were sweeties. I actually have never married the two and have always thought they were problems on their own. :huh:

hmmmmm

AndrewNYC Explorer
AndrewNYC
Posted

Any processed food can and will create and worsen GERD, including gluten free processed foods you are describing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,043
    • Most Online (within 30 mins)
      7,748
    Churro
    Newest Member
    Churro
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.