Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Distended Abdomen


Dr. Jill

Recommended Posts

IrishHeart Veteran

Oh no, some of us really have no butts. Just legs that go up to the trunk, nothing in between!

Oh I know, I lost mine, too for a while....just a flat, painful, weak pancake. I could not sit or lie down or walk comfortably for 3 years. No joke. The doctors had no explanation and suggested a scooter to get around and to take drugs. I said that's not an answer...what the hell is CAUSING it? (well, we know now) My sitz bones, gluteals, sciatica, piriformis muscles and hamstring attachments, the IT-band, quads, calf muscles EVERYTHING --excruciating BURNING pain. My entire pelvic floor was affected. I cried every day from the pain. The MT (who is also a nurse) and the PT (who is specialty- trained in pelvic floor disorders) both said they have never seen muscular wasting like I experienced. I am in rehab to restore massive lost muscle mass. 2X a week for the last year. And exercises and strengthening every day. It is grueling, but I make slow progress.I had to find those people myself to start this process and get back to a "normal life". I am almost like a kid learning to walk and move all over again. I was a dancer, a swimmer and --I had to stop all of that. My muscles would not work and I was burning 24/7. A soup can was heavy.

And in the past few months --after being gluten-free for a year---there IS a butt coming back. :) And definition to the muscles that became like wet noodles. And less pain. I use 2 lb. weights now. 10 whole reps! I have great hope.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I have been over 4 years gluten free and can now eat dairy again. I still have a totally flat belly. It was huge before. I used to get asked if I was pregnant when I wasn't, and I was pretty thin too. Just wanted people to know that a flat belly with dairy is possible.

Bubba's Mom Enthusiast

Oh I know, I lost mine, too for a while....just a flat, painful, weak pancake. I could not sit or lie down or walk comfortably for 3 years. No joke. The doctors had no explanation and suggested a scooter to get around and to take drugs. I said that's not an answer...what the hell is CAUSING it? (well, we know now) My sitz bones, gluteals, sciatica, piriformis muscles and hamstring attachments, the IT-band, quads, calf muscles EVERYTHING --excruciating BURNING pain. My entire pelvic floor was affected. I cried every day from the pain. The MT (who is also a nurse) and the PT (who is specialty- trained in pelvic floor disorders) both said they have never seen muscular wasting like I experienced. I am in rehab to restore massive lost muscle mass. 2X a week for the last year. And exercises and strengthening every day. It is grueling, but I make slow progress.I had to find those people myself to start this process and get back to a "normal life". I am almost like a kid learning to walk and move all over again. I was a dancer, a swimmer and --I had to stop all of that. My muscles would not work and I was burning 24/7. A soup can was heavy.

And in the past few months --after being gluten-free for a year---there IS a butt coming back. :) And definition to the muscles that became like wet noodles. And less pain. I use 2 lb. weights now. 10 whole reps! I have great hope.

Add me to the list of those who've lost their butts! It's now flat with a bit of droopy skin at the bottom. My legs and arms are twigs. Chest has flattened too. :(

I used to hoist the 30# bag of dog food onto my shoulder and carry it into the house from my car. Now I can't lift it.

I want a ba-donk-a-donk butt! :P

IrishHeart..I'nm so glad you've finnally got the right people helping you come back to health. It's a long road when you've gotten as weak as you did.

Aly1 Contributor

My tummy got flat after 2 or 3 months of gluten-free - but now at 5 months it's suddenly ballooned up again. I've been trying to figure out if I've been doing anything differently and I can't say that I have. I can't figure it out. Hope it goes away again :(!

dilettantesteph Collaborator

My tummy got flat after 2 or 3 months of gluten-free - but now at 5 months it's suddenly ballooned up again. I've been trying to figure out if I've been doing anything differently and I can't say that I have. I can't figure it out. Hope it goes away again :(!

I found that the longer I was gluten free, the more sensitive I got to lower levels of gluten. Symptoms returned without me changing anything. I had to change things to make the symptoms go away again.

What helped was to keep a food/symptoms journal. That helped connect the symptoms to certain food items. It also helped to become more aware of possible low level cc issues.

I hope you figure things out. It's no good going around looking pregnant when you aren't.

Aly1 Contributor

I found that the longer I was gluten free, the more sensitive I got to lower levels of gluten. Symptoms returned without me changing anything. I had to change things to make the symptoms go away again.

What helped was to keep a food/symptoms journal. That helped connect the symptoms to certain food items. It also helped to become more aware of possible low level cc issues.

I hope you figure things out. It's no good going around looking pregnant when you aren't.

Well I am used to dressing the belly (loose shirts are a staple!) since I've done it all my life! I just discovered I have problems now with onions, maybe that's what was doing it? We'll see...

cap6 Enthusiast

You mean I might have a butt someday? !!! :D

lol My flat one has always been a joke in our circle of friends. My daughter once offered to buy me "butt pads" to round me out! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,117
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.