Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Happy (Re)Birthday To Me!


cyberprof

Recommended Posts

cyberprof Enthusiast

Happy Birthday to me! And Happy Re-Birthday to me too! Thursday is my birthday yes, Im a Groundhog. And in two weeks, it will be five years since I was diagnosed and went gluten-free. I have to say that this is one of the best things that has ever happened to me, after the birth of my kids.

Since diagnosis, Ive adapted to eating gluten-free and manage most situations pretty well. Business meetings and travel are still a challenge, but not unmanageable. Im known for having both a KIND bar and a LARA bar in my purse at all times.

My recovery was pretty easy and a lot of problems cleared up unexpectedly. What had become daily episodes of gas, burping, indigestion, stomach gurgles/rumbles, big D, nausea - all gone. Canker sores a monthly or weekly occurrence gone except for after glutening. Arthritis in knees, hips, spine, feet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

First--Happy Birthday!!! Second, I'm surprised to see that your life story so closely mirrors mine. I was diagnosed at 47, and my son was the same age as your own son: 15. I'm also grateful that he was spared the many years of illness, and he grew to be tall (6'4") just like your son. The charts had indicated that he was supposed to be 6'5" to 6'8", but his growth slowed tremendously when he developed celiac at age 11. He didn't disclose to me that he was feeling ill, and it wasn't until he was 15 that he began to have problems attending school because he'd become so very ill. You and I both have a lot to be grateful for. Isn't it nice to say good-bye to the arthritis and plantar fasciitis?

When asked what I miss most, I also respond with, "Croissants!" And I also miss puff pastry and phyllo--ah, just to be able to eat them one more time would make me feel so fulfilled...

I enjoyed reading your post...and wish you a most wonderful birthday!

AVR1962 Collaborator

Happy birthday and congratulations on five years fo progress being gluten-free. Thanks for letting me that I can look forward to some of my issues passing. Struggling right now with planter's faciitis myself.

ravenwoodglass Mentor

Happy Birthday!!!!!!!

sa1937 Community Regular

Happy Birthday!!! Your post is an inspiration to so many who are struggling to regain good health!!!

It's my son's birthday today, too...another groundhog.

Bubba's Mom Enthusiast

HAPPY BIRTHDAY! :D

It's so nice to read your story of gaining good health, both for yourself and your son.

It sure sends a strong message of hope for those new to the diet, like me.

Aly1 Contributor

Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!! :)

THanks!

The carrot cake and brownies are from the Gluten Free Goddess Cake - Open Original Shared Link

Brownies - Open Original Shared Link She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has ever complained...even my non-gluten-free and non-df daughter!

cyberprof Enthusiast

Happy birthday and congratulations on five years fo progress being gluten-free. Thanks for letting me that I can look forward to some of my issues passing. Struggling right now with planter's faciitis myself.

It's funny about the plantar faciitis...I had it so bad that I couldn't walk at times in the 3 years before diagnosis. Even wore a night-splint for 10 months straight. Special shoes, inserts, ice - no dice. Nothing helped. But then in all the excitement about celiac, it took me about a month to realize that I wasn't in pain anymore. It could be a coincidence...but it never came back!

notme Experienced

happy birthday(s)!!! it's awesome to feel so much better after so many years of being ill for no 'reason' - i was 47 when i was diagnosed, too - and my b-day is next week :) *aquarius rocks*

Aly1 Contributor

THanks!

The carrot cake and brownies are from the Gluten Free Goddess Cake - Open Original Shared Link

Brownies - Open Original Shared Link She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has ever complained...even my non-gluten-free and non-df daughter!

Yay, thanks! :)

livelifelarge24 Enthusiast

Happy birthday :) this post made my day as its giving me hope! I was undiagnosed for 20 years, ecstatic to finally have an answer and feel better. But I feel like I've been more sensitive than ever, even the tiniest bit of cc and I'm down for days. Your post gives me so much hope not ro give up on myself. Thank you :)

IrishHeart Veteran

Happy Birthday from one Prof to another! :)

Thanks for sharing your inspirational story.

I am a late-in-life DXed celiac myself, but this last year of being gluten-free has been a year of slow healing and because I relentlessly pursued a DX, I feel as though, I too was re-born. I was the walking dead for 3 years. Not anymore. It will take me a while, but at least it is progress. ;)

Good for you--- and continued good health to you!

Cheers,

IH

Love the Abigail Adams quote, BTW--very true indeed!

Buffheart Apprentice

Happy belated birthday!

cyberprof Enthusiast

Thanks everyone! While some parts of the gluten-free diet are confounding, overall I am very happy and I'm glad if that gives others hope for the future. My big hope is that as more people get diagnosed, the food industry (especially restaurants and caterers) develop ways to accomodate us easier.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      I have a lot to learn!  Thank you
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.