Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Happy (Re)Birthday To Me!

cyberprof

By cyberprof
in Coping with Celiac Disease

Recommended Posts

cyberprof Enthusiast
cyberprof
Posted

Happy Birthday to me! And Happy Re-Birthday to me too! Thursday is my birthday yes, Im a Groundhog. And in two weeks, it will be five years since I was diagnosed and went gluten-free. I have to say that this is one of the best things that has ever happened to me, after the birth of my kids.

Since diagnosis, Ive adapted to eating gluten-free and manage most situations pretty well. Business meetings and travel are still a challenge, but not unmanageable. Im known for having both a KIND bar and a LARA bar in my purse at all times.

My recovery was pretty easy and a lot of problems cleared up unexpectedly. What had become daily episodes of gas, burping, indigestion, stomach gurgles/rumbles, big D, nausea - all gone. Canker sores a monthly or weekly occurrence gone except for after glutening. Arthritis in knees, hips, spine, feet

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

First--Happy Birthday!!! Second, I'm surprised to see that your life story so closely mirrors mine. I was diagnosed at 47, and my son was the same age as your own son: 15. I'm also grateful that he was spared the many years of illness, and he grew to be tall (6'4") just like your son. The charts had indicated that he was supposed to be 6'5" to 6'8", but his growth slowed tremendously when he developed celiac at age 11. He didn't disclose to me that he was feeling ill, and it wasn't until he was 15 that he began to have problems attending school because he'd become so very ill. You and I both have a lot to be grateful for. Isn't it nice to say good-bye to the arthritis and plantar fasciitis?

When asked what I miss most, I also respond with, "Croissants!" And I also miss puff pastry and phyllo--ah, just to be able to eat them one more time would make me feel so fulfilled...

I enjoyed reading your post...and wish you a most wonderful birthday!

AVR1962 Collaborator
AVR1962
Posted

Happy birthday and congratulations on five years fo progress being gluten-free. Thanks for letting me that I can look forward to some of my issues passing. Struggling right now with planter's faciitis myself.

ravenwoodglass Mentor
ravenwoodglass
Posted

Happy Birthday!!!!!!!

sa1937 Community Regular
sa1937
Posted

Happy Birthday!!! Your post is an inspiration to so many who are struggling to regain good health!!!

It's my son's birthday today, too...another groundhog.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

HAPPY BIRTHDAY! :D

It's so nice to read your story of gaining good health, both for yourself and your son.

It sure sends a strong message of hope for those new to the diet, like me.

Aly1 Contributor
Aly1
Posted

Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyberprof Enthusiast
cyberprof
Posted
  • Author

Happy birthday and thanks for sharing your story. Can you share something else? I'd love a carrot cake recipe!! :)

THanks!

The carrot cake and brownies are from the Gluten Free Goddess Cake - Open Original Shared Link

Brownies - Open Original Shared Link She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has ever complained...even my non-gluten-free and non-df daughter!

cyberprof Enthusiast
cyberprof
Posted
  • Author

Happy birthday and congratulations on five years fo progress being gluten-free. Thanks for letting me that I can look forward to some of my issues passing. Struggling right now with planter's faciitis myself.

It's funny about the plantar faciitis...I had it so bad that I couldn't walk at times in the 3 years before diagnosis. Even wore a night-splint for 10 months straight. Special shoes, inserts, ice - no dice. Nothing helped. But then in all the excitement about celiac, it took me about a month to realize that I wasn't in pain anymore. It could be a coincidence...but it never came back!

notme Experienced
notme
Posted

happy birthday(s)!!! it's awesome to feel so much better after so many years of being ill for no 'reason' - i was 47 when i was diagnosed, too - and my b-day is next week :) *aquarius rocks*

Aly1 Contributor
Aly1
Posted

THanks!

The carrot cake and brownies are from the Gluten Free Goddess Cake - Open Original Shared Link

Brownies - Open Original Shared Link She's updated her recipe so it's dairy-free too although the original with butter is to-die-for if you can have butter. I makethe carrot cake dairy free and use earth balance for the frosting and no-one has ever complained...even my non-gluten-free and non-df daughter!

Yay, thanks! :)

livelifelarge24 Enthusiast
livelifelarge24
Posted

Happy birthday :) this post made my day as its giving me hope! I was undiagnosed for 20 years, ecstatic to finally have an answer and feel better. But I feel like I've been more sensitive than ever, even the tiniest bit of cc and I'm down for days. Your post gives me so much hope not ro give up on myself. Thank you :)

IrishHeart Veteran
IrishHeart
Posted

Happy Birthday from one Prof to another! :)

Thanks for sharing your inspirational story.

I am a late-in-life DXed celiac myself, but this last year of being gluten-free has been a year of slow healing and because I relentlessly pursued a DX, I feel as though, I too was re-born. I was the walking dead for 3 years. Not anymore. It will take me a while, but at least it is progress. ;)

Good for you--- and continued good health to you!

Cheers,

IH

Love the Abigail Adams quote, BTW--very true indeed!

Buffheart Apprentice
Buffheart
Posted

Happy belated birthday!

cyberprof Enthusiast
cyberprof
Posted
  • Author

Thanks everyone! While some parts of the gluten-free diet are confounding, overall I am very happy and I'm glad if that gives others hope for the future. My big hope is that as more people get diagnosed, the food industry (especially restaurants and caterers) develop ways to accomodate us easier.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.