Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Embarrassing Mistake

lovegrov

Recommended Posts

lovegrov Collaborator
lovegrov
Posted

This is sort of embarrassing to admit but maybe posting will help keep somebody else from doing the same type of thing in the future.

We were out of town a couple of weeks ago and I saw some Midel cookie gluten-free flavors I hadn't seen before, so I bought two bags. Sunday afternoon I opened the lemon ones and ate a few. A couple of hours later I developed a headache and a few minutes later was throwing up. Yep, the lemon ones were NOT gluten-free but were sitting right beside other gluten-free flavors in the store. Somehow I saw them as gluten-free when I picked them up and I never looked at the label again. It's the first time in more than 10 years I've made that sort of mistake, so it shows that experience doesn't make you immune to stupidity.

My reaction lasted only a few hours but unfortunately those few hours were during the time my wife and I were supposed to go see Chris Thile and the Punch Brothers in concert. Bummer.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

That's a good reminder to stay vigilant! I catch myself "assuming" a bit too much at times.

Glad you made a quick recovery richard. :)

alex11602 Collaborator
alex11602
Posted

Glad that your reaction didn't last long.

And those Mi-del cookies are tricky ones sometimes...a store down the road from us has the wheat filled ginger ones right in between the packages of gluten free ones. My husband said something to the manager but they didn't change it.

IrishHeart Veteran
IrishHeart
Posted

Oh no! Sorry this happened to you. Glad your symptoms resolved quickly, even though you had to miss the show.

It was good of you to share this info about the Midel cookies and to tell us even 10 -year "veterans" make boo-boos once and a while.

I made a doozy with an "alleged" gluten-free flourless cake in Dec. that gave me symptoms for 2 months. (upscale restaurant menu said it was but the bakery it came from makes many flour products, too) My bad.

Glad you are okay! :)

Silencio Enthusiast
Silencio
Posted

I did the same thing with pasta in the organic section. Just assumed it was also gluten free and didn't notice it wasn't til the next time I was about to buy it.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

So sorry you got glutened and had to miss the show. :(

Thanks for posting your story. It will alert others to watch more carefully. I've noticed they are putting organic and gluten free items together on the shelves. We have to continue to read labels...sigh.

dilettantesteph Collaborator
dilettantesteph
Posted

Can you tell me, do you normally throw up when glutened? I don't. A few weeks ago I got really sick with a lot of throwing up to the point where I was barely conscious. My husband took care of me or I probably would have thrown up all over myself and everything around me and who knows, chocked to death.

I assumed it wasn't gluten because it was so different from my reaction to trace levels. I had no idea what it could have been. Maybe I got a big dose somehow? Is throwing up more likely to happen with a big dose?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Ugh Richard--can happen to the best of us. Just sorry you had to miss the show.

lovegrov Collaborator
lovegrov
Posted
  • Author

I don't think that throwing up is necessarily "normal" in general, but on the 3-4 occasions that I KNOW I've gotten a decent dose of gluten, I've had a headache and thrown up. The nausea hits anywhere between 2 and 4 hours after ingesting and for a while it's fairly severe. Sometimes I have diarrhea and sometimes I don't. I also generally have some chills or sweats, which I also had for weeks before and after my diagnosis. There's no way in heck I could EVER do a challenge, not that there'd ever be any need for me to do so. I was diagnosed by blood test and biopsy.

richard

kareng Grand Master
kareng
Posted

I don't think that throwing up is necessarily "normal" in general, but on the 3-4 occasions that I KNOW I've gotten a decent dose of gluten, I've had a headache and thrown up. The nausea hits anywhere between 2 and 4 hours after ingesting and for a while it's fairly severe. Sometimes I have diarrhea and sometimes I don't. I also generally have some chills or sweats, which I also had for weeks before and after my diagnosis. There's no way in heck I could EVER do a challenge, not that there'd ever be any need for me to do so. I was diagnosed by blood test and biopsy.

richard

This cookies have almost tripped me up, too.

I think its quite common for a headache to cause nausea so if the gluten gives you a headache then you might get nausea & vomitting.

GFinDC Veteran
GFinDC
Posted

Easy thing to do. I used to eat Midel cookies but stopped due to soy. They do have packages that look very similar. The stores I go to do the same thing too, putting the gluten-free cookies right next to the non-gluten-free cookies. I have had to look twice to make sure which are gluten-free.

Lots of stores put the FFL Ezikiel bread next the gluten-free bread too.

faithforlife Apprentice
faithforlife
Posted

I've done that! I spit out a mouth full once! Lol!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.