Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Heart Is Broken....

upwitht21

By upwitht21
in Related Issues & Disorders

Recommended Posts

upwitht21 Rookie
upwitht21
Posted

We found out a few weeks ago that after years of trying and 10 rounds of fertility meds we conceived entirely on our own. I was diagnosed with celiacs back in November and have been gluten free every since.

Sadly our miracle baby didn't make it and I'm left with a sad heart. We saw a heart beat on Monday and this morning I miscarried. I'm scared to try again. I'm worried we will have to deal with miscarriage after miscarriage like so many others have and I don't know that my heart can handle that. I have had a dramatic change since going gluten free from less gray in my hair to my bones not hurting. I feel amazing. I run, lift weights, and eat very healthy and well balanced. So hard to understand why god makes the decisions he does sometimes.

My doctor said if my hormone levels continue to drop at the rate they are going she sees no reason why we can't try again after my next period. I've already passed the baby and all that is left is lining (thank goodness for that) it happened very naturally. A few word of encouragement would be great right now. I really don't feel like my celiacs effected anything (I'm super careful and dedicated to the diet). My doctor did say they will check my progesterone levels next time just to be sure they weren't the cause.

What a long, miserable day.

Jess

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


love2travel Mentor
love2travel
Posted

We found out a few weeks ago that after years of trying and 10 rounds of fertility meds we conceived entirely on our own. I was diagnosed with celiacs back in November and have been gluten free every since.

Sadly our miracle baby didn't make it and I'm left with a sad heart. We saw a heart beat on Monday and this morning I miscarried. I'm scared to try again. I'm worried we will have to deal with miscarriage after miscarriage like so many others have and I don't know that my heart can handle that. I have had a dramatic change since going gluten free from less gray in my hair to my bones not hurting. I feel amazing. I run, lift weights, and eat very healthy and well balanced. So hard to understand why god makes the decisions he does sometimes.

My doctor said if my hormone levels continue to drop at the rate they are going she sees no reason why we can't try again after my next period. I've already passed the baby and all that is left is lining (thank goodness for that) it happened very naturally. A few word of encouragement would be great right now. I really don't feel like my celiacs effected anything (I'm super careful and dedicated to the diet). My doctor did say they will check my progesterone levels next time just to be sure they weren't the cause.

What a long, miserable day.

Jess

Oh, Jess. I am SO very sorry. My heart aches for you. Miscarriages are so devastating. I've been there and understand, though mine happened before my celiac diagnosis. It made me so furious when people would tell me there wasn't enough for a bond and that it was probably for the best, anyway. Well, that was crap. Don't listen to people who mean well but, well, are cruel. Surround yourself with only positive things including your husband. Concentrate on you during this time.

Freely grieve as long as you need to. It must be extra difficult as you have been so diligent on the diet.

Though cliche, take one hour, then one day at a time. You will undoubtedly go through a range of emotions - let them happen naturally. Please take care of yourself, ok? I will be praying for you, as many others will as well.

luvs2eat Collaborator
luvs2eat
Posted

I am so terribly sorry. I have no answers, but please know that you are in my prayers!

alex11602 Collaborator
alex11602
Posted

I am so sorry (((hugs))) I know that it is very difficult, but you just start by taking it one day at a time and you will always have that bond to your unborn baby, but in time it will be not as difficult to think of the baby. I wish you ease of the pain this has caused and best of luck to you.

Lisa Mentor
Lisa
Posted

Jess, I have been in your shoes as has my adult daughter. I told her, not to very long ago, that the reason may not be clear right now, but someday it will be. :)

Hugs to you and a good cry is required. xxxooo

rosetapper23 Explorer
rosetapper23
Posted

I am brokenhearted FOR you! This is the ultimate sadness....

Before I knew I had celiac, I miscarried three times...and I also had to take fertility medications. I know it is extremely difficult for you now, but I promise you--the grief DOES dissipate over time. It could be that your body still has not entirely healed from years of eating gluten, and you may be somewhat deficient in either vitamins or minerals that would have been necessary to help your baby grow. If you're currently underweight, please add healthy saturated fats to your diet (avocados, nuts, olives, organic butter, etc.). This will help your body absorb your fat-soluble vitamins...and having a bit more weight on your bones may help your hormones. Once my sister and I gained a bit of weight, we were both able to conceive and carry our babies to term. As you know, though, it was NOT your fault whatsoever that you lost your beloved baby. Some things cannot be explained...or understood.

In a few months, you'll see--your joy will return when you conceive again. In the meantime, my heart goes out to you....

lucia Enthusiast
lucia
Posted

Your loss is so sad, and I'm sorry. It sounds like your pregnancy may have been possible though because of the changes in your body from a gluten-free diet. That's hopeful if or when you decide to try again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

I'm so sorry for your loss.

Miscarriages are awful to endure, but it does not mean you cannot have a baby. You probably conceived because the gluten is out of your system. I bet you will conceive again if you can get up the heart to try. Just stick to the diet super-carefully and get very well-nourished to be sure things go well.

abaker521 Rookie
abaker521
Posted

I am so so sorry Jess. I know words won't do much good now but just know that when things happen that are out of your control there's always a reason. Nature is smart. I know everything will work out for you soon and you'll have the baby you've been trying for. As you know I'm sort of in the same boat.. I want to have a baby very soon but I feel like my body just isn't healing as fast as I'd like. These things take time unfortunately and can be so very frustrating. My heart goes out to you.

kareng Grand Master
kareng
Posted

I'm so sorry. This may help or you may just send the guys in the white coats for me. I really haven't said this to anyone but my hub.

I had 2 early miscarriages that I knew of. The kind where you say " oh! I'm pregnant. Let me stop the caffiene.". When I miscarried, it was just a strong period. But each time I felt it was a boy and the same person. When I finally was pregnant with my oldest, I felt he was those babies. I don't have a belief in reincarnation. I'm just sure he was trying to be born to me. So.... Maybe that body wasn't quite perfect, but in a few months, he or she will be able to grow in a new, better body.

The other good thing is, the doctor's are now on notice. Some don't get too concerned until its the next pregnancy. This gives them something to go on.

rosetapper23 Explorer
rosetapper23
Posted

kareng,

I can so relate! With my first miscarriage, I strongly imagined a little girl who resembled my mother. With my next pregnancy, I gave birth to a little girl who was the image of my mother. I, too, believed that she simply needed to be born. I've never spoken of this to anyone....and it amazes me that someone else felt this, too!

ravenwoodglass Mentor
ravenwoodglass
Posted

So sorry for your loss. My thoughts are with you.

((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

upwitht21 Rookie
upwitht21
Posted
  • Author

If you saw me you would never think I was sick with anything I'm 5ft 4in and weigh 121 pounds with 22% body fat. I'm very fit and healthy. All of my vitamin levels are in the normal range and I feel great. I'm completely at a loss for words with the whole situations. Im very strict with the diet. We have a completely gluten free home and lifestyle, both of my children also have celiacs so we are extra careful with it.

I know in my heart that now wasn't the right time but I just want to throw a temper tantrum about it. I just don't understand why we had to try so hard to get pregnant for it to happen so easily when it did just to lose the baby in the end. I really don't see the whole point in that. I know god has a plan but is it to much to ask for him to send me a text to just clue me in a little.

Thanks for giving me a place to vent my hurt and frustrations.

Jess

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I'm so sorry for your loss.

Do things that nurture you. Listen to music, read a good book, watch a silly movie. Continue on your healing path, and when the time is right, your baby will come.

Don't put pressure on yourself to "start over" right away. Feel your feelings.

(((hugs)))

researchmomma Contributor
researchmomma
Posted

If you saw me you would never think I was sick with anything I'm 5ft 4in and weigh 121 pounds with 22% body fat. I'm very fit and healthy. All of my vitamin levels are in the normal range and I feel great. I'm completely at a loss for words with the whole situations. Im very strict with the diet. We have a completely gluten free home and lifestyle, both of my children also have celiacs so we are extra careful with it.

I know in my heart that now wasn't the right time but I just want to throw a temper tantrum about it. I just don't understand why we had to try so hard to get pregnant for it to happen so easily when it did just to lose the baby in the end. I really don't see the whole point in that. I know god has a plan but is it to much to ask for him to send me a text to just clue me in a little.

Thanks for giving me a place to vent my hurt and frustrations.

Jess

I have had five miscarriages due to endometriosis and the pain was all consuming.

Loves2travel has it right in my opinion....well meaning people say the dumbest things. Just ignore them and heal.

I finally conceived my son and I will tell you that I can't imagine having a different child. I know that is just talk to make myself feel better but I really can't picture it.

I am very sorry you are going through this. Big Hugs. Be good to yourself.

bartfull Rising Star
bartfull
Posted

I am so sorry. :( A big ((((HUG)))) to you, and know that you will be in the thoughts and prayers of so many of us.

jswog Contributor
jswog
Posted

I can't really offer you anything but big cyber hugs, but I do know that there is a board on the forums at babycenter.com just for grieving mothers after miscariages. I've not been there, but I've heard it's a great community of support. I know there were several here who've also 'been there done that' who've offered you support, but if you feel like you want to talk to others going through this at the same time, I would encourage you to check it out. Big hugs!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,133
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.